Facilitating Humanitarian Donations WFH Program

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Facilitating Humanitarian Donations WFH Program
Global ForumSeptember 2005
Claudia Black WFH Program Director Assad
Haffar, MD WFH Humanitarian Aid Coordinator
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Background

• Hemophilia aid program started in 1996
• Mainly channels donated clotting factor
  concentrates
• Life-saving medicine sent to PWH in severe need
  with limited access to treatment in developing
  countries

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Why a Humanitarian Aid Program?

• Targets countries with limited access to
  treatment
• Meets urgent, immediate and short-term needs
• Provides immediate support to PWH
• Helps to support WFH development projects in
  different countries
• Promotes long-term impact (leverage when part of
  national program)

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Countries with limited access to treatment

• Afghanistan
• The family fled to Iran, where the child Ahmmed
  Nasir was operated on using a WFH donated product.

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Urgent, immediate and short-term needs

• Argentina
• The summer camp was possible thanks to WFH
  product donation that arrived in time to help
  fulfill young PWH dreams.

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Support WFH development projects in different
countries

• Philippines
• WFH product donations helped in establishing
  good donation practice and further GAP program in
  different regions in the Philippines.

Cebu, Philippines Jonas Arenas, 16 years old
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History and Coverage

• Started in 1996 with 2,879,130 IU
• ?
• Reached 21,873,105 IU in the year 2002
• ?
• Increased to 54,384,928 IU in the year 2004
• ?
• Total 120,840,821 IU donated product
• since the introduction of the program

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WFH Product Donations1996 - present
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WFH Regions
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Program Achievements

• WFH Humanitarian Aid Program is the largest and
  most credible supply channel of donated
  hemophilia medication in the world
• Donations sent to 55 different countries all over
  the world last year
• Helped improve the lives of more than 17,000
  people

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Improving lives

• WFH product donations help meet urgent surgical
  needs.

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Accepting Donations

• Donations from manufacturers, hospitals, home
  care companies
• WFH accepts products recognized by a specified
  regulatory agency
• WFH looks for products with 6 months shelf life
• Minimum accepted of 2 months shelf life before
  shipment

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Sending Donations

• Donations are sent to recipient countries through
  one of two channels
• Hemophilia of Georgia (HOG), Atlanta, USA where
  a qualified pharmacist supervises receiving and
  channelling donations on behalf of the WFH
• WFH Headquarters, Montreal, Canada, where a
  physician supervises the donation process
• All documents are prepared by WFH

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Receiving products from Donors
HOG Story
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Packaging donations
HOG Story
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Recipients

• Based on expressed need, WFH ensures donated
  products are sent to
• Registered hemophilia treatment centres
• Official National Hemophilia Member Organizations
  (NMO)
• Both are informed of donations
• Official acknowledgement of receipt submitted
  to WFH as soon as the product arrives in the
  recipient country
• Guidelines for product distribution in recipient
  countries.

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Reporting

• Recipients must submit detailed report to WFH on
  the utilization of the donated product. In 2004,
  reporting rate exceeded 80.
• Reports are provided to donors upon request.
• US 501-C-3 tax receipt through WFH / USA, a
  not-for-profit organization affiliated with WFH.

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Future Challenges

• Constant need for more donations
• International security situation
• Documentation required for product entry (MOH)
• Very limited shelf life of donated products vs.
  WHO Guidelines for Drug Donations
• Unique nature of CFC
• Avoiding waste of valuable life-saving product

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Making a Difference

• WFH is immensely grateful for the generosity of
  its donors. Their contributions have allowed our
  global network to save many lives.
• Together, we are making a world of difference!