Data Resource Center on Child and Adolescent Health Maximizing the use of the new national surveys o

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Data Resource Center on Child and Adolescent
HealthMaximizing the use of the new national
surveys of child and adolescent health and health
careEvery State and Family Child Health Leader
Deserves a Data Home AMCHP Annual
ConferenceFebruary 19, 2005 Dana Zive, MPH -
CAHMI and Oregon Health Science UniversityNora
Wells, MSEd - Family Voices
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What is the Data Resource Center?

• A website that delivers hands-on, user-friendly
  access to national, state and regional data from
  the 2001 National Survey of Children with
  Special Health Care Needs (NS-CSHCN) and the 2003
  National Survey of Childrens Health (NS-CH)
• A technical assistance resource
• email and telephone assistance
• hot topic e-updates
• in-person, telephone and online workshops
• Online educational materials, examples of data
  use by states and links to related websites

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What are the goals for the Data Resource Center?

• Provide centralized and user-friendly access to
  standardized national survey findings
• Build common knowledge, capacity and passion for
  using data to stimulate and inform system change
  locally and nationally

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Who are we?

• The Child and Adolescent Health Measurement
  Initiative staff
• Family Voices staff and family leaders advisory
  group
• Technical Advisory Committee

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Who else do you need to know about?

• The Data Resource Center is one of several
  efforts coordinated under the rubric of the
  Champions for Progress Center at UT State
  University
• You! State and Family advisory committees
  provide ongoing and essential input and guidance!
• Our sponsor! The Maternal and Child Health
  Bureau, Health Resources and Services
  Administration

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Where is the Data Resource Center?

• Data Resource Center for Child and Adolescent
  Health
• www.childhealthdata.org
• National Survey of Children with Special Health
  Care Needs
• www.cshcndata.org
• National Survey of Childrens Health
• www.nschdata.org

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What do state and family leaders say they need to
use data from the national surveys effectively?

• Easy access to the datadata already merged,
  cleaned, preconstruction of complex variables and
  weighting for complex sampling
• Specific knowledge of the survey questions asked
  and construction of indicator variables
• Technical help in interpreting and using the data
• Opportunities to learn from and share with other
  state and family leaders using data
• Opportunities to partner with other stakeholders
  to discuss, interpret and act on the data
  findings
• Concrete examples of potential uses and models of
  how data can be used

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What can you do?

• Access information about children, youth and
  their families
• Search and compare national, state, and regional
  survey results
• Learn to use data more effectively
• Discover how other state and family leaders are
  using these findings
• Get expert help by e-mailing us your questions,
  plus get links to other data sets and resources

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Additional ways data might be used

• Educating Policymakers
• What are key policy issues for your state ?
• What programs need what information?
• What data could help them learn about child
  health needs?
• Advocacy
• Are there key pressure points in program budgets
  or priorities coming up?
• What methods would be most effective in
  presenting your case?
• How could you use data in Fact Sheets, Testimony,
  the media, along with family stories?
• Grant Writing
• How can you use data to strengthen your proposal?

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Thinking about ways data could be used in your
state

• Identifying/documenting needs
• How many children in your state have what needs?
• How does data support what youre hearing from
  the field (providers, families, other agencies)?
• Building partnerships
• What partners could use this data Public
  Programs, Health plans, Hospitals, Providers,
  community groups, faith based organizations?
• How can you share data to support common efforts,
  improve care?

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National Survey of Children with Special Health
Care Needs

• Conducted for the first time during 2000 2001
• Random-digit dial telephone survey administered
  in 12 languages
• Uses SLAITS (State Local Area Integrated
  Telephone Survey) sampling mechanism
• Sponsored by the Maternal and Child Health Bureau
• National Center for Health Statistics of the CDC
  oversees sampling and administration

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Purpose

• To provide national and state estimates for the
  numbers of CSHCN in the population
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• To provide national and state baseline measures
  to compare with future survey results over time
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• To provide information for the Title V Block
  Grant needs assessment states are required to
  conduct every five years
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• To provide state-level information about
  insurance status for all children
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• To provide information about CSHCN and their
  families to help guide policy makers, advocates,
  and researchers
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National Survey of CSHCN
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In-depth CSHCN interview collects information on

• Child health and functional status
• Child health insurance status and adequacy of
  coverage
• Access to health care including amounts and
  types of health care services used by child and
  any unmet needs for services
• Care coordination
• Family-centeredness of childs health care
• Impact of childs health on family

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NSCH Survey Domains
Child Characteristics
Child Outcomes
Family Level Influences
Neighborhood and Community Influences
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Unique Features of the NSCH

• Comprehensive detailed snapshot
• Child family neighborhood
• Contains a variety of positive indicators to
  track youth development
• family strengths
• family relationships and behavior
• family processes
• household routines

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National Survey of Childrens Health

• 102,353 completed interviews
• Minimum 1,483 in Utah
• Maximum 2,241 in Louisiana and Ohio
• 25 states have more than 2,000 each
• Overall response rate 55.3
• Minimum 49.6 in New Jersey
• Maximum 64.4 in South Dakota
• 32 states were above 55

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Starting Point Candidate Indicators

• Eight Categories of Indicators
• Category 1 Physical and Dental Health (10
  indicators)
• Category 2 Emotional, Developmental and Mental
  Health and Well-Being (9)
• Category 3 Health Insurance Coverage (3)
• Category 4 Access to Care and Services (7)
• Category 5 Health Care System/Medical Home (7)
• Category 6 Child and Youth Activity and Success
  in School (10)
• Category 7 Family and Home Activities, Safety
  and Well-Being (9)
• Category 8 Neighborhood Safety and Support (3)

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Starting Point Candidate Indicators

• Category 1 Physical and Dental Health (10
  indicators)
• 1.1 Overall child health status
• 1.2 Healthy teeth
• 1.3 Healthy weight
• 1.4 Child impacted by asthma
• 1.5 Child impact by ADD/ADHD
• 1.6 Hospitalization for asthma
• 1.7 Overall impact on child
• 1.8 Overall impact on family
• 1.9 Lost school days
• 1.10 Child injury

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Starting Point Candidate Indicators

• Category 2 Emotional, Developmental and Mental
  Health and Well-Being (9)
• 2.1 Parent perceived emotional, mental or
  behavior problem
• 2.2 Breastfeeding
• 2.3 Risk for developmental delay
• 2.4 Parent concerns (0-5)
• 2.5 Asked about concerns (0-5)
• 2.6 Getting needed information (0-5)
• 2.7 Problems with Social Competence (6-17)
• 2.8 Problems with Social Behaviors (6-17)
• 2.9 Parent concerns (6-17)

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Starting Point Candidate Indicators

• Category 3 Health Insurance Coverage (3)
• 3.1 Currently insured
• 3.2          Type of insurance
• 3.3          Coverage consistency

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Starting Point Candidate Indicators

• Category 4 Access to Care and Services (7)
• 4.1 Preventive and dental care
• 4.2         Health service needs met
• 4.3         Mental health care
• 4.4         Medical care
• 4.5         Dental care
• 4.6         Prescription medication
• 4.7 Emergency care

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Starting Point Candidate Indicators

• Category 5 Health Care System/Medical Home (7)
• 5.1 Personal doctor or nurse
• 5.2 Communication and cultural sensitivity
• 5.3 Getting care quickly
• 5.4 Preventive care
• 5.5 Access to specialized services
• 5.6 Care coordination
• 5.7 Medical home index

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Starting Point Candidate Indicators

• Category 6 Child and Youth Activity and Success
  in School (10)
• 6.1 Out of school activities (6-17)
• 6.2 Regular exercise (6-17)
• 6.3 Work for pay (12-17)
• 6.4 Early childhood school (3-5)
• 6.5 Religious services
• 6.6 Volunteer activities (12-17)
• 6.7 Reading for pleasure (6-17)
• 6.8 Reading to young children (0-5)
• 6.9 TV watching (6-17)
• 6.10 Repetition of grade (6-17)

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Starting Point Candidate Indicators

• Category 7 Family and Home Activities, Safety
  and Well-Being (9)
• 7.1 Sufficient sleep
• 7.2 Family outings
• 7.3 Family parenting stress
• 7.4 Family conflict resolution
• 7.5 Home alone (6-11)
• 7.6 Non-parental care (0-5)
• 7.7 Household smoking
• 7.8 Poor households
• 7.9 Shared meals

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Starting Point Candidate Indicators

• Category 8 Neighborhood Safety and Support (3)
  
• 8.1 Child Supportive neighborhoods
• 8.2 Safety of child
• 8.3 Availability of child care

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• Data Search Recipe
• Step 1 Search the Data
• Step 2 Understand Your Findings
• Step 3 Tell Your Story

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Data Search RECIPE
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The Data Resource Center can help!
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Please visit us!

• National Survey of Children with Special Health
  Care Needs
• www.cshcndata.org
• National Survey of Childrens Health
  www.nschdata.org