Interfacing Registries with EHRs Draft White Paper for AHRQ Patient Registries Handbook II

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Interfacing Registries with EHRs Draft White
Paper for AHRQ Patient Registries Handbook II

• Review and Discussion
• 09/30/2009

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2 main points

• Distinct roles of registry and EHR
• Functional interoperability
• Years of work ahead of us

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Definitions

• EHR An electronic record of health-related
  information on an individual that conforms to
  nationally recognized standards and that can be
  created, managed, and consulted by authorized
  clinicians and staff across more than one health
  care organization
• Individual focused, with the purpose of
  collecting, sharing, and using health information
  for the benefit of that individual

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Definitions

• Registry An organized system that uses
  observational study methods to collect uniform
  clinical and other data to evaluate outcomes for
  a population defined by a particular disease,
  condition, or exposure, that serves one or more
  predetermined scientific, clinical or policy
  purpose
• Population focused, and designed to fulfill
  specific purposes

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Challenges

• Widespread implementation of EHRs that cant
  exchange data (i.e., not interoperable)
• No common vocabulary
• Non-centralized approach to creating data
  standardization
• Multiple data capture systems being used in
  response to the above challenge
• Requiring re-entering of data
• Requiring more training, time, resources

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Challenges

• No current EHRs are fully interoperable in the
  core functions that would enable them to
  participate in the learning healthcare system
  that is envisioned by IOM
• Pre-interoperable environment

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Potential Solutions

• Development of building blocks towards
  interoperability
• Working incrementally, and building on success
• Creating solutions that are scalable to
  different platforms
• Using open standards
• Common language

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End Goal

• Functional Interoperability
• The ability of any EHR to exchange valid and
  useful information with any registry on behalf of
  any willing provider at any time in a manner that
  improves the efficiency of registry participation
  for the provider and patient and does not require
  significant customization to the EHR or the
  registry system
• Any EHR should be able to exchange data with any
  registry, and any registry should be able to
  exchange data with any EHR