Komen Detroit Race for the Cure

1
Grant-Writing WorkshopKomen Detroit Race for the
Cure
Our Mission To save lives and end breast cancer
forever by empowering people, ensuring quality
care for all and energizing science to find the
cures. Our Vision a world without breast cancer
Komen Detroit Race for the Cure
2
Facilitators

• Joan Dennehy
• Breast Cancer Program Specialist
• Komen Detroit Race for the Cure
• Christine Fontichiaro
• Volunteer Grants Chair
• Komen Detroit Race for the Cure

• Maureen Keenan Meldrum
• Chair
• Komen Detroit Race for the Cure
• Julie Williams
• Partnership Program Coordinator
• The National Cancer Institutes
• Cancer Information Service

Komen Detroit Race for the Cure
3
Purpose of the Day

• Help attendees be able to develop a competitive
  Komen Detroit Race grant application

4
2008 Estimated New Cancer Cases/Deaths Among
Women, U.S.

• New Cancer Cases Deaths
• Skin 29,570 3,840
• (These numbers do not include basal and squamous
  cancers)
• Breast 182,460
  40,480
• Lung 100,330
  71,030
• Colon 54,310
  25,700

Cancer Facts Figures 2008. American Cancer
Society.
5
BREAST CANCER IN MICHIGAN
Mortality/ New Cases Deaths
Incidence 6,120 1,310 128.8
Cancer Facts Figures 2008. American Cancer
Society.
6
WHAT IS BREAST CANCER?

• Breast cancer is a disease where cells in the
  breast tissue divide and grow without the normal
  control.

7
BREAST ANATOMY PHYSIOLOGY

• Breasts are primarily fat and breast tissue
• Breast tissue is a complex network of lobules,
  lobes and ducts

Many breast changes occur over a womans lifetime.
8
GENETICS AND BREAST CANCER

• Several inherited mutations have been linked to
  breast cancer
• BRCA1 and BRCA2
• Gene mutations are spontaneous or inherited
• Most breast cancers are spontaneous gene
  mutations
• In the U.S. only 5 10 percent are due to
  inherited gene mutations

• Breast cancers occur as a result of a gene
  mutation.

9
IF FOUND EARLY, MORE LIVES CAN BE SAVED

• When diagnosed early, the better the treatment
  options, and the better the chance of survival
• In the U.S., when breast cancer found when it is
  confined to the breast, the 5-year survival rate
  is 98 percent
• There are 2.5 million breast cancer survivors in
  the U.S. today

10
BREAST SELF-AWARENESS (BSA)

• Know your risk
• Get screened
• Know what is normal for you
• Make healthy lifestyle choices

11
RISK FACTORS

• The most common risk factors are being female and
  getting older
• Other risk factors include having a family
  history of breast cancer or certain other
  cancers, an inherited genetic mutation, carcinoma
  in situ, dense breasts, radiation exposure at a
  young age, reproductive factors
• There are known risk factors that you can control
  and others you cannot change
• www.komen.org/riskmatrix

12
MAMMOGRAPHY IN THE U.S.

• Best screening tool widely available for finding
  breast cancer early
• Screening every year at age 40 for women at
  average risk
• If a woman is under 40 and has a family history
  or other concerns, she should talk with her
  doctor

13
DIAGNOSIS

• Not all breast cancer is the same there are
  several different types
• Today a biopsy is needed to make a diagnosis of
  breast cancer
• There are several ways a biopsy can be done
  some with a needle and some in the operating room
• The findings from a biopsy are reported on a
  pathology report

The pathology report findings will guide
treatment.
14
TREATMENT OPTIONS

• There are different ways to treat breast cancer
• Surgerymastectomy, lumpectomy, reconstruction
• Radiation
• Chemotherapy
• Hormonal therapy
• Targeted biologic therapy

15
CLINICAL TRIALS

• What is a clinical trial?
• Why are they important?

Treatment options are available due to clinical
trials.
16
RESOURCES

• www.komen.org
• 1-877-GO KOMEN
• Purchase educational materials through the
• promise shop!
• Komen.org/promiseshop

17
KOMEN VISION, PROMISE CORE VALUES
Core ValuesInclusionStewardship
HonestyOpennessPassionEmpowerment
Our PromiseTo save lives and end breast cancer
forever by empowering people, ensuring quality
care for all and energizing science to find the
cures.
Our VisionA World Without Breast Cancer.
Komen Detroit Race for the Cure
18

• Local presenting sponsor of
• Komen Detroit Race for the Cure
• Committed to a future free of cancer.

19
How Race Funds are Used

• 25 net income supports the Komen for the Cure
  Award and Research Grant Programs, which fund
  groundbreaking breast cancer research,
  meritorious awards and educational and scientific
  conferences around the world.
• 350,000
• 75 net income funds local breast cancer
  screening treatment and education projects.
• 1.58 million

20
18th Annual Susan G. Komen Detroit Race for the
CureMay 30, 2009Comerica Parkwww.karmanos.org
/detroitraceforthecure
21
Community Profile
22
Community Profile
23
Priorities

• Increased delivery of mammography screening to
  those most in need,
• Addressing outreach and education gaps to
  increase minority participation in clinical
  trials,
• Encouraging innovative collaboration among
  community organizations to develop programs that
  will both
• increase awareness and promote earlier detection
  of breast cancer in underserved populations,
• and demonstrate an increase in screening rates.
• Programs intended to maintain continuity of care
  by providing patient navigation and coverage of
  care-related costs such as transportation,
  parking, and temporary bridge insurance co-pays.

24
Using What Works Using Evidence to DevelopYour
Objectives Evaluation Plans

• Susan G. Komen for the Cure
• Detroit Affiliate
• Grant-Writing Workshop
• April 7 22, 2009

Julie I. Williams, MPH Partnership Program
Coordinator NCIs Cancer Information Service -
Midwest Region
25
NCIs CIS Partnership Program National Network
26
Our Road Map

• Understand
• What evidence-based programs (EBPs) are
• What to consider when adapting an EBP program
• Why evidence-based programs are important to use
  in the framework of your grant applications
• Discuss using an evidence-based framework to
  define Objectives and plan Evaluation

27
Our CurriculumNCIs Using What Works Adapting
Evidence-Based Programs to Fit Your Needs

• Designed for health promoters on national,
  regional, state and local levels.
• Addresses how to use evidence-based programs
  (EBPs).

28
Curriculum Organization

• What do we mean by Evidence-Based?
• Finding an Evidence-Based Program (EBP)
• Designing Your Objectives Evaluation Plan

29
1.

• What Do We Mean by Evidence-Based?

30
Pop Quiz!True or False

• Programs proven to be non-effective in the
  populations and settings in which they were
  studied are evidence-based.
• Strategies that have been proven to be effective
  can serve as best practices for programs.
• Evidence-based programs can lengthen the time it
  takes to develop a program.
• More funding agencies are now requiring program
  planners to use evidence-based programs.

31
Pop Quiz!True or False

• Programs proven to be non-effective in the
  populations and settings in which they were
  studied are evidence-based. FALSE
• Strategies that have been proven to be effective
  can serve as best practices for programs. TRUE
• Evidence-based programs can lengthen the time it
  takes to develop a program. FALSE (shorten)
• More funding agencies are now requiring program
  planners to use evidence-based programs.
• TRUE

32
An evidence-based program has been

• Implemented with a group
• Evaluated
• Found to be effective

33
Why the Fuss?

• More federal and state funders are requiring
  program planners to use evidence-based programs
  (EBPs).
• EBPs may shorten the time it takes to develop a
  program.
• Some consider evidence that is proven through
  research or derived from experience/practice.
• The best evidence may be a combination of
  research and practice.

34
What Is Evidence?

• Surveillance Data
• Systematic Reviews of Multiple Intervention
  Studies
• An Intervention Research Study
• Program Evaluation
• Word of Mouth
• Personal Experience

35
Komen Community Profiles

• Demographic data (age, race, ethnicity education,
  income levels)
• Breast cancer statistics
• An assessment of current services
• Key informant interviews
• Prioritization of gaps and services
• Is this evidence?

36
Komen Community Profiles Can

• Determine areas most in need
• Establish the need for interventions
• Target community education programs
• Guide strategic planning and decision-making
• Yes, this is a form of evidence.

37
Advantages of Using Evidence-Based Programs

• What are advantages to evidence-based programs
  (EBPs)?
• Effective in the study populations
• Cost effective
• Shorten the time it takes to develop a program
• Reduce the time it takes to research a community
• Help narrow the evaluation

38
Evidence-Based Program Barriers

• Using evidence-based programs limits creativity
• Evidence-based programs take too much time and/or
  money
• Evidence-based programs are
• too scientific

39
Evidence-Based Program Barriers

• Evidence-based programs restrict a communitys
  identity
• Identifying an evidence-based program is
  cumbersome

40
Terminology (See Handout 1 Important
Terminology)

• Theory-based ? guides What? Why? How?
• Best practices ?use effective strategies
• Evidence-based ? are effective programs
• Research-tested ? peer-reviewed/grant-funded

41
Levels of Evidence-Based Practice (See Handout
2 Levels of Evidence-Based Practice)
42
Levels of Evidence-Based Practice (See Handout
1 Levels of Evidence-Based Practice)
43
Levels of Evidence-Based Practice (See Handout
1 Levels of Evidence-Based Practice)
44
Levels of Evidence-Based Practice (See Handout
1 Levels of Evidence-Based Practice)
45
Levels of Evidence-Based Practice (See Handout
1 Levels of Evidence-Based Practice)
46
Levels of Evidence-Based Practice (See Handout
1 Levels of Evidence-Based Practice)
47
Summary What do we mean by Evidence-Based?

• An evidence-based program has been
• Implemented with a group
• Evaluated
• Found to be effective.

48
2.

• Finding an
• Evidence-Based Program(EBP)

49
Sources of Evidence-Based Programs

• Cancer Control P.L.A.N.E.T. RTIPS
  http//rtips.cancer.gov/rtips/index.do
• Guide to Community Preventive Services
  http//www.thecommunityguide.org/
• Institute of Medicine Reports http//www.iom.edu/
  CMS5/2955.aspx
• National Cancer Institute Research
  Dissemination and Diffusion http//cancercontrol.c
  ancer.gov/d4d/info_er.html

50
Sources of Evidence-Based Programs

• Agency for Healthcare Research and Quality
  Evidence-Based Practice Center Reports
  http//www.ahrq.gov/clinic/epcindex.htm
• Cochrane Review http//www.cochrane.org/reviews/
• Cochrane Library http//www3.interscience.wiley.c
  om/cgi-bin/mrwhome/106568753/HOME?CRETRY1SRETRY
  0
• Journals that report on EBPs, such as
  Evidence-Based Healthcare and Public Health

51
Research reviews, recommendations from CDC AHRQ
52

• RTIPs (NCI, SAMSHA) Find, view, download, and
  adapt programs and products used in
  evidence-based cancer programs
• Adapt them for use using NCIs Using What Works
  resource
• Register your program to be included in RTIPs
• Access to
• National CCC Plans Budgets
• Implementation Evaluation Guidelines for CCC
  Plans (CDC)

53
Guide to Community Preventive Services http//www.
thecommunityguide.org/cancer
54
Research-Tested Intervention Programs (RTIPs)
55
Research-Tested Intervention Programs (RTIPs)
56
Agency for Healthcare Research and
Quality http//www.ahrq.gov/clinic/epcindex.htm
57
Agency for Healthcare Research and
Quality http//www.ahrq.gov/clinic/epcindex.htm
58
Michigan Department of Community Health
(MDCH)/Michigan Cancer Consortium (MCC)
Resources on EBPs

• Provider Materials
• (http//www.michigancancer.org/OurPriorities/Breas
  t_SuggestedResources.cfm)
• Final Reports
• Literature Reviews (Native American and Hispanic
  communities)
• Project Briefs (www.michigancancer.org)
• Breast Cancer Risk Assessment
• Consumer Materials
• State mortality data and Special Cancer
  Behavioral Risk Factor Survey (SCBRFS)

59
Komen Community Profiles

• QUESTION How does the Komen Community Profile
  help in choosing the evidence-based program
  thats a best fit?
• Identifies communities in need
• Identifies service and resource gaps
• Identifies potential partnerships
• Others??

60
Selecting an Evidence-Based Program

• Ask yourself these questions
• What specific behaviors might be acquired,
  enhanced, or changed during this project?
• What information or skills are needed to learn
  to think and act in a
  new way about breast cancer?
• What resources are needed to carry out the
  program?
• What methods would best promote awareness of
  breast cancer prevention and early detection
  among special populations in Michigan?
• How does the EBP line up with the Priorities
  specified in the Komen RFA?

61
Criteria for Selecting a Program

• Is the program well-matched with breast cancer?
• Was the program conducted with people who had
  similar
• Socioeconomic status
• Resources
• Culture and Ethnicity
• Traditions
• Priorities
• Community structure and values
• Is the program similar to current organizational
  practice surrounding breast cancer promotion and
  early detection?

62
Criteria for Selecting a Program
Pay attention to the strategies the programs used
to achieve their objectives.

• These strategies can include
• Providing information
• Enhancing skills
• Improving the services and/or support systems
  that exist
• Changing incentives or barriers that maintain the
  problem
• Promoting access
• Making suggestions for policy changes

63
Summary Finding an EBP

• For EBP resources, refer to
• NCIs Cancer Control P.L.A.N.E.T. and RTIPs
• CDCs Community Guide ? evidence-based population
  interventions
• AHRQ ? evidence-based clinical practice
  guidelines
• MDCH/MCC ? for local Michigan resources
• When selecting an EBP consider your program
  objectives, target population, resources, and
  strategies.

64
Adapting an Evidence-Based Program to Fit Your
Needs

• Adaptation Guidelines

• Determine target population needs and whether
  this EBP addresses those needs
• Review the program and materials for
  appropriateness for your audience
• Define the extent of adaptation needed
• Develop mock-up versions of adapted products
• Consider the best media and channels that should
  be used to publicize your
  program
• Work with expert advisors program developers
  to ensure adapted products maintain
  accuracy of the originals

65
Adapting an Evidence-Based Program to Fit Your
Needs

• Adaptation Guidelines

• Pilot test the adaptation with representatives of
  your intended audience.
• Modify or revise the adapted program and products
  based on pilot test feedback.
• Implement the program
• Evaluate the effectiveness of your adapted
  program and products.

66
What Can Be Modified

• Names of health care centers or systems
• Pictures of people and places and quotes
• Hard-to-read words that affect reading level
• Ways to reach your audience
• Incentives for participation
• Timeline
• Cultural indicators based on population

67
What Cannot Be Modified

• The health topic
• Deleting whole sections of the program
• Adding in more strategies
• Guiding model or theory

68
The Newly Adapted Program

• The program should now include
• A summary of the needs assessment data
• Goals and objectives from the evidence-based
  program
• Program management needs (e.g., timeline, staff
  needs, budget, etc.)
• Evaluation methods

69
Summary Adapting an EBP

• The adaptation of an EBP should resemble another
  EBP
• There are guidelines as to what can and cannot be
  changed when adapting an EBP

70
3.

• Designing Your Objectives
• Planning Your Evaluation

71
Drafting Program Goals Objectives

• They help to
• Provide direction
• Narrow program scope
• Avoid straying from the Needs Assessment

72
Goals Definition

• The grand reason for engaging in your public
  health effort
• A broad, general statement of what you hope to
  accomplish
• Spans three or more years

73
Objectives Definition

• Specific and action-oriented They state how the
  goal will be achieved within a certain timeframe
• Objectives should be SMART
• Specific
• Measurable
• Achievable
• Realistic
• Time-framed
• Objectives are the foundation of your Evaluation
  Methods

74
Discussion Goals Objectives

• How can a Needs Assessment help you decide your
  goals and objectives?
• What are your organizations Goal Objectives?
• How does the Komen RFA line up with your
  organizations deliverables?

75
EBPs and Evaluation

• Review evaluation methods used in the original
  evidence-based program
• When discussing evaluation consider
• Venue
• Media
• Frequency
• Audience
• Age

76
Planning for Evaluation

• Describe the review of evidence-based strategies
  and adaptation
• Demonstrate partnership involvement with
  implementation of the project
• Identification of major tasks, deliverables and
  timelines
• Describe the process used for
  monitoring and documentation
  project activities

77
Summary Objectives Evaluation

• Discuss how to develop Objectives and Evaluation
  Plan using an evidence-based framework

78
Our Road Map Revisited

• I now understand
• What EBPs are
• What to consider when adapting an EBP
• Why evidence-based programs are important to use
  in the framework of my grant application
• I can now use an evidence-based framework to
  define Objectives and plan Evaluation.

79
Thank you!
Are there some questions? Julie I. Williams,
MPH williamj_at_karmanos.org Partnership Program
Coordinator NCIs Cancer Information Service -
Midwest Region 1.800.4.CANCER
80
Priorities

• Increased delivery of mammography screening to
  those most in need,
• Addressing outreach and education gaps to
  increase minority participation in clinical
  trials,
• Encouraging innovative collaboration among
  community organizations to develop programs that
  will both
• increase awareness and promote earlier detection
  of breast cancer in underserved populations,
• and demonstrate an increase in screening rates.
• Programs intended to maintain continuity of care
  by providing patient navigation and coverage of
  care-related costs such as transportation,
  parking, and temporary bridge insurance co-pays.

81
(No Transcript)
82
Submission Process

• Applications due July 1, 2009
• Email only to dennehyj_at_karmanos.org
• Required Information
• Cover Page (using the form provided)
• Abstract brief (200 words max) in lay terms
• Program Description (not to exceed five pages)
• Financial Information
• Budget (using the form provided)
• Justification (brief narrative explanation of how
  funds will be used)
• Organizational Information
• Biosketch (using the form provided)

83
Eligibility

• Institutions must be non-profit organizations
  located in or providing services to one or more
  of the following locations
• Wayne County, MI
• Oakland County, MI
• Macomb County, MI
• 2) Projects must be specific to breast health
  and/or breast cancer
• 3) If you are a current or past Komen-funded
  grant recipient, you must ensure that all past
  awards are up-to-date and in compliance with
  Komen requirements.

84
Writing the Abstract

• Statement of your case and a summary of your
  proposal.
• Be concise.
• 200 words max
• Use lay terminology.
• FIRST IMPRESSIONS ARE IMPORTANT.

85
Project Description

• Be specific - USE LOCAL DATA09 Community
  Profile
• 5 pages maximum
• Font size no smaller then 10 point
• 3 components
• -Facts and statistics
• -How your program will make a difference
• -Uniqueness of your program

86
RFAs Statement of Need
Your proposal must address one or more of these
priorities

• Increased delivery of mammography screening to
  those most in need,
• Addressing outreach and education gaps to
  increase minority participation in clinical
  trials,
• Encouraging innovative collaboration among
  community organizations to develop programs that
  will both
• increase awareness and promote earlier detection
  of breast cancer in underserved populations,
• and demonstrate an increase in screening rates.
• Programs intended to maintain continuity of care
  by providing patient navigation and coverage of
  care-related costs such as transportation,
  parking, and temporary bridge insurance co-pays.

87
Project Description

• Goals and Objectives
• (Evidence-based Strategies)

88
What Is Evidence?

• Surveillance Data
• Systematic Reviews of Multiple Intervention
  Studies
• An Intervention Research Study
• Program Evaluation
• Word of Mouth
• Personal Experience

89
Project Description

• Activities and Timelines
• Past / Current Komen Funding
• Comparable Programs
• Evaluation Plan
• Organizational Capacity
• Sustainability
• Administration
• Biosketches

90
Financial InformationBudget and Expenses

• Be realistic. Ask for what you need.
• Use the Excel Budget Form provided.
• Justify expenses with a brief narrative.

91
Financial InformationBudget and Expenses

• Salaries and fringe benefits for staff working on
  the program
• Consultant fees
• Meeting Costs
• Supplies
• Equipment (computers, copy machine), not to
  exceed 30 of direct costs)

• Other direct program expenses
• Indirect costs, not to exceed 10 of direct costs
• Media projects (film, radio, web sites, public
  service announcements, etc.)
• Print Materials

92
Funds may not be used for

• Medical or scientific research (costs associated
  with program evaluation are allowed).
• Scholarships or fellowships.
• Construction or renovation of facilities.
• Political campaigns or lobbying.
• Projects outside of the scope of breast cancer.

93
Organization Information

• Non-Profit status
• Financial stability

Komen Detroit Race for the Cure
94
Grant Application Check List
95
Important Dates

• Request for Application April 6, 2009
• Grant Writing Workshop April 7 and 22, 2009
• Consultation May 4 June 15, 2009
• Application Deadline July 1, 2009 500 p.m. EST
• Award Notification September 15, 2009
• Grant Period October 1, 2009 through
  September 30, 2010

96
Komen Detroit Race for the Cure

• Saturday, May 30, 2009
• 800 a.m.
• Comerica Park
• http//www.karmanos.org/detroitraceforthecure/