HEPATITIS SCREENING for BLOOD BORNE VIRUSES HIV, Hepatitis C and Hepatitis B'

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HEPATITIS SCREENING for BLOOD BORNE VIRUSES
(HIV, Hepatitis C and Hepatitis B).

• TENANT ADVOCACY GROUP

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Health Promotion Planning

• HEPATITIS SCREENING for BLOOD BORNE VIRUSES
  (HIV, hepatitis C and hepatitis B).

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HEPATITIS SCREENING for BLOOD BORNE VIRUSES
(HIV, Hepatitis C and Hepatitis B).

• Health Promotion Planning
• Tenant Advocacy Group.
• Kempsey and Taree Aboriginal and Communities
  Health Program

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Step 1What is the Problem?

• 1. The invisibility of Aboriginal people and
  their communities who are reluctant to admit to
  having Hepatitis C in our communities.
• A lack of awareness within Aboriginal communities
  about risk factors, transmission, signs, symptoms
  and treatments.

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Step 1What is the Problem?

• The lack of knowledge and acceptance, wide-spread
  myth of how they can catch it, deserve what they
  get, financial costs associated with treatment
  and management of hepatitis C, in terms of
  reduction in quality of life and well being and
  of occupational and social discrimination and
  isolation, in terms of medical and hospital care,
  lack of knowledge from the community.

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Step 1What is the Problem?

• Blood Borne Viruses (HIV, hepatitis C and
  hepatitis B).
•  The New South Wales Hepatitis C Strategy
  2000-2003 (NSW Health 2000) noted that there may
  be special problems for people who inject drugs
  and people with HCV in the Northern Rivers area
  of NSW, immediately north of the MNC. These
  included access problems related to

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Step 1What is the Problem?

•  Lack of specialised HCV services.
•  Need to travel large geographical distances to
  access services and lack of public transport.
•  Limited access to information relating to the
  hepatitis C epidemic in rural and regional areas
  of New South Wales.
•  Special problems for people who inject drugs
•  Lack of specialised HCV services
•  Need to travel large geographical distances to
  access services
• Lack of public transport.

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What is the health issue in a sentence?

• A lack of awareness within Aboriginal communities
  about risk factors, transmission, signs, symptoms
  and treatments for hepatitis C and poor access to
  appropriate services. Low self-esteem, low sense
  of personal worth, powerlessness, invisibility,
  anger, resentment, lack of engagement in the
  educational and social structures of our society
  - all psychological indicators of a reduced
  capacity to recover from trauma, chronic or acute
  illness and stress.

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How would you address this issue? What would
your goal be?

• Conduct education sessions, discussion groups and
  individual information and counselling session
  with Aboriginal and social housing tenants in the
  Taree and Kempsey regions with a view to
  providing simple, understandable information
  about and screening for Blood Borne Viruses (HIV,
  hepatitis C and hepatitis B). Also developing
  resource kits with containing relevant printed
  resources.

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How would you address this issue? What would
your goal be?

• Provide simple, culturally appropriate
  information about Blood Borne Viruses.

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How would you address this issue? What would
your goal be?

• Provide opportunistic screening for Blood Borne
  Viruses

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How would you address this issue? What would
your goal be?

•  Build networks between the Aboriginal tenants
  in Kempsey and Taree and the tenant group
  services, activities and structures that are
  building throughout the Northern Region.

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How would you address this issue? What would
your goal be?

• Bring Aboriginal social housing tenants together
  so they can meet and get to know other tenants
  with Blood Borne Viruses in their area that they
  may not have yet met.
•      

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How would you address this issue? What would
your goal be?

•  Develop links between the Aboriginal tenants
  in Kempsey and Taree and local health service
  providers.

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How would you address this issue? What would
your goal be?

•  Development of a community driven support group
  for people affected by Blood Borne Viruses if
  community identifies a need.

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An overarching goal

• To improve access to health and education
  services around Blood Borne Viruses to improve
  the health of the community. To potentially serve
  as a pilot project for the rest of the state.

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Who is effected by the problem?

• Target Group
• 1.    Aboriginal Social Housing tenants in
  Kempsey and Taree
• 2.    Department of Housing (DOH),
• 3.    Housing Advisory Group, Kempsey and Taree
• 4.    Office of Community Housing (OCH)
• 5.    Aboriginal Housing Office (AHO)
• 6.    Communities and Families
• 7.    Government Departments (Courts/ Schools)
• 8. Mid North Coast Area Health Service (MNCAHS)
•      

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Who cares for them (target group) or works with
them?

• (People who the target group like and respect.
  These are people we will work with to fix the
  problem)
•        Housing providers DOH, OCH, AHO
•        Housing Advisory Group, Kempsey and Taree
•        MNCAHS
•        Community Cottage
•        ACON (AIDS Council of NSW)
•        Local Councils
•        Communities
•        Northern Region Social Tenant Council Inc
•        Northern Regional Tenant Resource Service

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Step 2Contributing factorsWhat shapes the
problem?

• What is the reason for the problem?
• What causes the problem?

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Step 2Contributing factorsWhat shapes the
problem?

• 1. Poverty
• 2. Lack of appropriate education
• 3. Communication
• 4. Prejudice
• 5. Discrimination
• 6. Generational abuse/violence/dysfunction
  leading to Drug and Alcohol abuse and criminal
  activity and incarceration
• 7. Lack of resources
• 8. Isolation
• 9. Stress

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Objectives (how are we going to address the
health issue

• (What will help fix the health issue? What will
  help reach the goal?)
• Provide simple, culturally appropriate
  information about Blood Borne Viruses

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Objectives (how are we going to address the
health issue

• Provide opportunistic screening for Blood Borne
  Viruses

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Objectives (how are we going to address the
health issue

• Provide a social forum (BBQ lunch) to bond
  community members and encourage attendance.
• Discuss social status and how it affects them
  so they can discover commonality of experience
  and feelings.

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Objectives (how are we going to address the
health issue

•   Build networks between the Aboriginal tenants
  in Kempsey and Taree and the tenant group
  services, activities and structures that are
  building throughout the Northern Region

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An overarching goal2

• Development of a support group for people
  affected by Blood Borne Viruses if community

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Objectives (how are we going to address the
health issue

•  Bring Aboriginal social housing tenants
  together so they can meet, get to know, and gain
  support from other tenants with Blood Borne
  Viruses in their area that they may not have yet
  met

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Objectives (how are we going to address the
health issue

• Development of a support group for people
  affected by Blood Borne Viruses if community
  identifies a need.

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       Objectives (how are we going to address
the health issue

•  Listening to and validating individuals'
  stories this process gives credence to their
  value as people and to the factors that have
  contributed to their dependency on social support
•  

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Step 3What Health Promotion Strategies will we
use to create change?

• Strategies
• Education one to one, group discussion, printed
  resources

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Step 3What Health Promotion Strategies will we
use to create change?

• Strategies
•  Advocacy - Tenant Advocacy Group approaching
  Health Services and the Cottage to advocate for
  tenants, facilitating process

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Step 3What Health Promotion Strategies will we
use to create change?

• Strategies
•    Mobilization- encouraging group dynamics,
  community development, getting screened
  (empowering people to look after their own
  health), developing support group if community
  driven

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Step 3What Health Promotion Strategies will we
use to create change?

• 1. Fliers promoting event
• 2. Social gathering (BBQ)
• 3. Blood Borne Viruses Education sessions
• 4. Blood screening for Blood Borne Viruses
  (private)
• 5. Providing info packs about Blood Borne Viruses
• 6. Fliers promoting follow up BBQ
• 7. Follow up education
• 8. Results from Blood Borne Viruses screen
  (private)
• 9. Referrals to HIV, hepatitis C and Sexual
  Health services as appropriate
•  

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Step 3What Health Promotion Strategies will we
use to create change?

• Same process repeated in Taree Kempsey 

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Step 4Partnerships - Working together

• What is out there now?
• What can we use?
• Who can help?
• What is happening now?
• Resources
• What we can use, who can help us

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Partnerships - Working together

• Northern Regional Tenant Resource Service
• Northern Region Social Tenant Council Inc.
• Department of Housing
• Local Councils
• ACON (AIDS Council of NSW
• Aboriginal Housing Office
• Department of Health (MNCAHS )
• Office of Community Housing
• Community Cottages

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Partnerships - Working together

• Resources (What we can use, who can help us)

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Partnerships - Working together

• . Northern Regional Tenant Resource Service
  cottage use / BBQ
• 2. Northern Region Social Tenant Council Inc
• 3. Department of Housing
• 4. Office of Community Housing
• 5. Aboriginal Housing Office
• 6. MNCAHS printed resources, education,
  screening
• 7. Local Councils
• 8. Community Cottages
• 9. ACON
• 10.Community

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• Step 5
• Getting Started
• Planning and administration
• Action Plan Objectives 1-3 

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Getting Started

• Work in Partnership with all above to get the
  right information out to Aboriginals and the
  communities about Blood Borne Viruses (HIV,
  hepatitis C and hepatitis B).

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What has to be done (activities)

• 1. Contact the services listed above to enlist
  help in finding participants
• 2. Set a target dates for activities /discussion
  forums and find book an appropriate venue
• 3. Create Fliers distribute
• 4. Develop info packs

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What has to be done (activities)

• 5. Phone write / fliers to tenants who may be
  willing participants in the discussion forums
• 6. Buy supplies for BBQ
• 7. Conduct discussion groups / BBQ / blood
  screening / distribute info packs
• 8. Follow up fliers

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What has to be done (activities)

• 9. Follow up discussion groups / BBQ / blood
  results
• 10. Initiate discussion around support groups
• 11. Initiate referrals to health services as
  needed / identify what support people need to get
  there
• 12. Repeat process in other site

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By whom

• . NRSTC Inc members
• 2. Assisted and supported by the NRTRS.
• 3. Tenant Advocacy Group members
• 4. MNCAHS
• 5. ACON
• 6. Communities

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By when

• 1.Start within one month of funding becoming
  available
• 2. Finish within 12 months of the project
  starting

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Outcomes

• 1. A list of tenants to be contacted
• 2. Date set but still negotiable, venue booked,
  BBQ booked
• 3. A list of tenants who have made a commitment
  to attend the discussion forums Guidelines for
  the discussions
• 4. Dates set for discussion forums, Venue
  confirmed, Guidelines agreed

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Outcomes

• 5. Screen discussions
• 6. Transcriptions ready to be collated with the
  Hepatitis C project and packed at Taree and
  Kempsey
• 7. Fliers
• 8. BBQ
• 9. Discussion group/ package done
• 10. Follow up (outcomes for both Kempsey and
  Taree)

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Outcomes 2

• Development of a support group for people
  affected by Blood Borne Viruses if community
  identifies a need.
• See Attachment 1 for details of the Blood Borne
  Viruses (HIV, Hepatitis C and hepatitis B) and
  Screening

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Step 6EvaluationSuccess or not

• Objectives
• 1 to 3

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Step 6EvaluationSuccess or not

• Objective 1
• Sessions will have been conducted as per the time
  line in Kempsey, Taree the factors contributing
  to their need for social support identified and
  collated info on
• Blood Borne Viruses (HIV, hepatitis C and
  hepatitis B).

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Step 6EvaluationSuccess or not

• Objective 2
• Community will have a clearer understanding of
  Blood Borne Viruses (HIV, hepatitis C and
  hepatitis B). Contributing to their sense of
  powerlessness and a sense of the commonality of
  their difficulties

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Step 6EvaluationSuccess or not

• Objective 3
• This assists individuals to put their problems
  into a wider perspective, regain their sense of
  worth and self-esteem, and see ways of
  negotiating the 'problem' that may be more
  supportive of their needs and educated
  communities on Blood Borne Viruses (HIV,
  hepatitis C and hepatitis B).

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(What happened? Have things changed? What do we
now see?)

• 1 to 3
• Outcomes
• Community will have a better understanding of
  Blood Borne Viruses (HIV, hepatitis C and
  hepatitis B). Circumstances within the context of
  the society as a whole

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(What happened? Have things changed? What do we
now see?)

• Outcomes
• Greater networking between Community in Kempsey
  and Taree, between tenants in Kempsey and other
  towns, increased knowledge about the Blood Borne
  Viruses (HIV, Hepatitis C and hepatitis B)
  support systems available to them

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(What happened? Have things changed? What do we
now see?)

• Outcomes
• Community will have a stronger sense of their own
  worth and power, an enhanced ability to seek out
  the support they require and an increased
  knowledge of advocacy in Blood Borne Viruses
  (HIV, hepatitis C and hepatitis B) and getting
  their needs met.

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BUDGET

• ITEM
• Phone
• Stationary and The Public Health Bush Book Volume
  1 strategy and resources
• BBQ Cost
• Other costs venues
• Meals for interviewers Refreshments for
  Aboriginals and community participants
• TOTAL

• 100-00
• 180-00
• 350-00
• 80-00
• 350-00
• 1060-00

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Attachment Project ScheduleProject Title

• Tasks to be done
• Contact Community Cottages and clients/groups in
  Kempsey and Taree region re the project and ask
  that the project be discussed at the next general
  meeting.
• Purpose
• To identify volunteers who are willing and able
  to facilitate a discussion group and
• Who are willing to contact tenants who are
  members of the minority groups listed in A4 with
  a view to explaining the project to them and
  encouraging them to attend End
  March/April 2004

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Tasks to be done

• Formulate guidelines for those conducting the
  discussion groups protocols, code of conduct,
  confidentiality agreements, coding
• Develop an agreement of confidentiality to be
  signed by all who participate
• Develop a contract between those conducting the
  discussion forums and the NRSTC that they
  undertake to abide by the protocols
• Purchase equipment necessary to ensure that the
  tenants know about the workshops/BBQ on Blood
  Borne Viruses (HIV, hepatitis C and hepatitis B)
  and distribute these to those conducting the
  discussion groups. May/June 2004

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Who will do it and how?

• Members of Tenant Advocacy Group, NRTRS RTW and
  Support Worker, Armidale
• Fliers/BBQ Blood Borne Viruses (HIV, hepatitis C
  and hepatitis B).
• Northern Links email network
• Direct email and
• Telephone contact
• By End March/ April 2004

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Possible difficulties or constraints

• Ensuring that as many tenants as possible are
  aware of the project and that minority and
  special needs groups are contacted
• By End March/ April 2004

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What will you do to address the difficulties or
constraints?

• Enlist the help of key tenants in each tenant
  group,
• Email and telephone contact,
• Enlist the help of the Community Development
  Workers in each town
• Fliers/BBQ
• Blood Borne Viruses (HIV, hepatitis C and
  hepatitis B).
• End March/April 2004

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Tasks to be done

• Formulate guidelines for those conducting the
  discussion groups protocols, code of conduct,
  confidentiality agreements, coding
• Develop an agreement of confidentiality to be
  signed by all who participate
• Develop a contract between those conducting the
  discussion forums and the NRSTC that they
  undertake to abide by the protocols
• Purchase equipment necessary to ensure that the
  tenants know about the workshops/BBQ on Blood
  Borne Viruses (HIV, hepatitis C and hepatitis B)
  and distribute these to those conducting the
  discussion groups. May/June 2004

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Who will do it and how?

• Members of Tenant Advocacy Group, Northern Region
  Social Tenant Council Management Committee and
  members of the Sub-Committees in conjunction with
  the NRTRS RTW and Support Worker
• May/June 2004

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Possible difficulties or constraints

• Ensuring that the central importance of the
  guidelines and protocols is understood by all
  involved and taken on board
• May/June 2004

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What will you do to address the difficulties or
constraints?

• Distribute a package that
• Makes clear the process and the reasons behind
  the process
• Ensure that the contract is signed
• Ensure that confidentiality agreements are
  understood and signed by all participants
• Put in place
• May/June 2004

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Tasks to be done

• Tenant groups that are hosting a discussion group
  will contact tenants in their area and invite
  them to attend on a specific date or dates and
  distribute a small package of information so that
  potential participants are clear about the
  projects objectives, methods, protocols, and
  expected outcomes Blood Borne Viruses (HIV,
  hepatitis C and hepatitis B).
• June/July 2004

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Who will do it and how?

• Members of Tenant Advocacy Group, Members of the
  NRSTC Management Committee, members of the
  Sub-committees, other interested tenants who are
  members of existing tenant groups throughout the
  region
• June/July 2004

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Possible difficulties or constraints

• Overcoming local historical personality
  clashes, transport, locating and hiring an
  appropriate and private venue
• June/July 2004

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What will you do to address the difficulties or
constraints?

• Where personality clashes are an issue, it will
  be necessary to have more than one person
  conducting more than one discussion group
• June/July 2004

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Tasks to be done

• Discussion groups to be conducted Blood Borne
  Viruses (HIV, hepatitis C and hepatitis B).
• And BBQ and screening
• August/Sept 2004

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Who will do it and how?

• Members of Tenant Advocacy Group, Members of the
  NRSTC Management Committee, members of the
  Sub-committees, other interested tenants who are
  members of existing tenant groups throughout the
  region, NRTRS RTW
• August/Sept 2004

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Possible difficulties or constraints

• Transport, coordination, facilitation of the
  meetings
• Some of the community people may need transport
• August/Sept 2004

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What will you do to address the difficulties or
constraints?

• The RTW will assist with facilitation in a
  support role wherever possible, coordinating
  tenants will be encouraged to organise transport
  in their own areas with the support of the Tenant
  Advocacy Group and NRSTC and the NRTRS
• August/Sept 2004

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Tasks to be done

• Follow up of discussion group , assigning Blood
  Borne Viruses (HIV, hepatitis C and hepatitis B).
  Results.
• BBQ
• code names to ensure confidentiality
•  
• Sept/Oct 2004

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Who will do it and how?

• Follow up of discussion group , assigning Blood
  Borne Viruses (HIV, hepatitis C and hepatitis B).
  Results.
• BBQ
• code names to ensure confidentiality
• Sept/Oct 2004

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Possible difficulties or constraints

• Time, literacy skills of some members of the
  Tenant Advocacy Group and NRSTC Management
  Committee
• Sept/Oct 2004

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What will you do to address the difficulties or
constraints?

• The NRTRS Support Worker will be supported by the
  NRTRS RTW
• Sept/Oct 2004

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OUTCOMES

•  In the next months from November 2004 to
  February 2005
• Development of a support group for people
  affected by Blood Borne Viruses if community
  identifies a need.
•  

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HEPATITIS SCREENING for BLOOD BORNE VIRUSES
(HIV, Hepatitis C and Hepatitis B).

• The project will be completed within 12 months of
  the initial funding being granted

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HEPATITIS SCREENING for BLOOD BORNE VIRUSES
(HIV, Hepatitis C and Hepatitis B).

• Development of a support group for people
  affected by Blood Borne Viruses if community
  identifies a need.