EHDI Information Management

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EHDI Information Management

• Les R. Schmeltz, MS, CCC-A
• Iowa

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Looks like a simple, linear process

• Collect hospital information
• Identify hearing losses
• Refer for early intervention services
• Collect and report statistics

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EHDI Data and Patient Information Management
out
Then a
miracle
occurs
Start
Good work,
but I think we might
need just a little more
detail right here.
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Joint Committee on Infant Hearing 2000 Position
Statement

• Uniform state registries and national information
  databases
• Use of information generated

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Uses of Information Management

• To improve services to infants and their families
• To assess the quality of screening, evaluation
  and intervention
• To facilitate collection of data on demographics
  of neonatal and infant hearing loss

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Improving Services to Infants and Their Families

• Multiple system components must be integrated
• Each service provider participates
• Tracking and follow-up
• Monitoring of outcomes

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Integrating Multiple System Components

• Seamless system to infants and their families
• Provider participation

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Service Provider Participation

• Hospitals and other birthing facilities
• Primary care providers
• Service providers
• Early intervention and educational facilities

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Tracking and Follow-Up

• Timely and accurate description of services
  provided to each infant
• Documents recommendations for follow-up and
  referral to other providers
• Tracking

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Monitoring of Outcomes

• Effective information management used to promote
  program measurement and accountability
• Factors contributing to delay in providing EHDI
  services
• Measurement of quality indicators

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Effective Information Management

• Capable of aggregating data
• Provides evaluation data
• Centralized

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Information Collection

• Federal to state level
• State to hospital practitioner level
• Hospital level

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JCIH Quality Benchmarks Quality Indicators

• Benchmarks
• Quality Indicators
• Review process

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CDC Pilot National Data Set

• Number of live births
• Number screened prior to discharge
• Number screened before 1 month of age
• Total number referred from initial or multiple
  screenings for audiologic evaluation

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CDC Pilot National Data Set

• Number with diagnostic audiological evaluation by
  3 months of age
• Number of children with permanent congenital
  hearing loss aged 0-7

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CDC Pilot National Data Set

• Hearing loss must be classified by type, degree
  and laterality
• Average/median age in months of diagnosis of
  hearing loss
• Number of infants receiving intervention by 6
  months of age

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Handouts

• JCIH Benchmarks and Quality Indicators
• CDC Data Set Items