Caregiving Relationships: For People Who Care for Adults Curriculum Training

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Caregiving Relationships For People Who Care
for AdultsCurriculum Training
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(No Transcript)
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Caregiving Relationships

• Developed by University of Illinois Extension
• to support those who are caregivers.
• Authors Amy Griswold and Rachel Schwartzenruber

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Training Objectives

• Participants will become familiar with the
  Caregiving Relationships curriculum.
• Participants will learn techniques for teaching
  Caregiving Relationships curriculum.
• Participants will develop strategies for using
  the Caregiving Relationships curriculum

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Caregiving Relationships Curriculum Overview
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• Purpose
• Designed to reduce emotional pressures
  associated with caregiving
• Goal of program is to prevent elder abuse and to
  strengthen relationships between caregiver and
  care receivers

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• Audience
• Caregivers helps to relieve stress before
  it is necessary to seek help

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• Modules
• 1. Mixed Emotions
• 2. Relationships in Caregiving
• 3. Loss and Grief Issues
• 4. Speak Clearly, Listen Clearly
• 5. Caregivers Need Care Too
• 6. Services and Professionals

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• Materials Available with Curriculum
• 1. Discussion guides
• 2. Posters/Overheads
• 3. Brochures
• 4. Suggested Readings and Websites

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• Curriculum could be used as
• A series of classes
• One module at a time, ie. lead discussion in
  a support group
• Discussion with client one-on-one using
  brochure
• A supplement for other classes

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Each module has

• Objectives
• Topics
• Posters/Overheads
• Activities
• Brochures

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Module 1 Mixed EmotionsObjectives

• Caregivers will
• understand both positive and negative outcomes of
  anger.
• recognize and identify events that trigger
  negative feelings.
• set personal goals for coping with negative
  feelings.

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Topics

• Benefits of caregiving
• Recognizing negative feelings
• Anger, frustration, guilt, fear
• What to do when you recognize negative feelings
• Using negative feelings constructively
• Forgiveness and making amends

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When Caregiving

• There is laughter and happiness
• There are uncomfortable feelings
• poster

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What do you think?

• We grow closer
• I give quality care.
• I feel good about myself.
• I am even more aware of our past together
• I now have an opportunity to repay for past care
• poster

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Feelings Change

• Riding the roller coaster
• How does this influence caregiving?
• poster

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• How do you talk about past experience?
• What has gone well in my experience as a
  caregiver?
• How has past relationship influenced this
  experience?
• poster

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Domino Effect poster
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Using Frustration, Guilt Fear

• Learn from them.
• Take action.
• Make changes.
• poster

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To Make Amends

• Apologize
• Show respect
• Accept what cant be changed
• Choose to forgive yourself
• Choose to forgive others
• poster

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Module 2 Relationships in Caregiving -
Objectives

• Caregivers will
• recognize that relationships may change as
  care-receivers age and become more dependent.
• identify ways that families can work together to
  support the caregiver.
• identify methods for families to respond
  positively to changes in relationships.

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Topics

• How family relationships have changed or are
  changing
• Tips for caregivers
• Ways families can work together to support the
  caregiver
• Family dynamics in distance caregiving
• Family meetings

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Family members may experience changes in
relationships with the person they care for or
with family members. poster
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It is normal for changing relationships to bring
out strong emotions. poster
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Tips for Caregivers

• Adjust your perceptions and expectations
• Express your feelings to someone
• Acknowledge your fears
• Realize it is normal to feel angry
• Understand that guilt is a common feeling
• poster

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• Suggestions
• Encourage independence
• Help the care-receiver feel valued and needed
• Listen to each other
• Keep communication open
• Trust and respect each other
• Acknowledge and resolve negative feelings
• Accept the other person
• poster

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Rules for a Family Meeting

• Involve everyone concerned
• Ask family members to list concerns
• Make a list of needs or request help with tasks
• Ask family members to list what they will do
• Prepare a written plan
• Continue to meet and evaluate poster

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• Remember
• It is normal for relationships to change
• Keep family communications open and honest to
  maintain your family relationships
• poster

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Module 3 Loss and Grief Issues for Caregivers -
Objectives

• Caregivers will understand
• that loss and grief issues are part of
  caregiving.
• the nature of loss and grief and identify
  specific losses.
• the importance of building support systems and
  coping strategies.

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Topics

• Losses experienced by family caregivers
• Ambiguous losses
• Grief
• Types of grief
• Relationship issues in grief
• Recognizing depression
• Coping with grief

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• Caregiver Losses
• Job/Career
• Home
• Relationships
• poster

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Ambiguous Loss

• Loss not easily explained
• Vague and uncertain issues
• Physical presence with mental absence
• Variety of causes
• No rituals
• poster

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Strategies

• Acknowledge losses
• Find time for others
• Be realistic
• Laugh
• Forgive self
• Forgive others
• poster

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• Caregiver Grief
• Is an emotional response to loss
• Begins anytime
• Is different for each person
• Is necessary
• poster

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Types of Grief

• Anticipatory
• Incomplete
• Disenfranchised
• Stifled
• Morbid
• Normal
• poster

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Behaviors AttitudesCommon in Normal Grief

• Shock, numbness, denial
• Disorganization
• Anger, frustration and rage
• Helplessness and fear
• poster

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Behaviors Attitudes, cont.

• Guilt and regret
• Relief
• Sadness, disbelief
• Lower resistance to illness
• Fatigue
• poster

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Discussion

• How do you acknowledge losses in your family?
• How does your community give support when a loss
  occurs? A death?
• Do men and women grieve differently?
• poster

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Depression or Grief Response

• Sadness
• Tearfulness
• Sleep Problems
• Appetite Changes
• Weight Changes
• poster

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Grief or depression?

• Grief
• Moves toward recovery
• Feels emotional pain and guilt
• related to the loss
• Allows laughter
• Accepts support
• poster

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• Depression
• Stuck in sadness
• Increasingly unable to function
• Expresses helplessness, hopelessness, pessimism
  and emptiness
• No longer enjoys favorite activities
• May resist help and support
• poster

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Strategies

• Understand seriousness of the illness
• Come to terms with death
• Share the relationship meaning
• Bring closure to difficult past
• Say goodbye when appropriate
• poster

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Strategies (continued)

• Seek solitude
• Allow intense feelings
• Maintain health and friendships
• Gather memories
• Journal
• Accept social support
• poster

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Benefits of Successful Grieving

• Increased feelings of strength and security
• Deeper self-understanding
• Greater capacity to understand others
• Enriched perspective of reality
• poster

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Module 4 Speak Clearly, Listen Carefully -
Objectives

• Caregivers will
• understand the benefits of effective
  communication.
• apply effective communication skills in
  caregiving situations.
• identify skills to improve communication in
  caregiving relationships.

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Topics

• Learn to express your feelings
• Speak clearly
• Listen carefully
• Respond accurately
• Speaking to an older person

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Communication History

• Protect
• Conflict
• Distant
• Abuse
• poster

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The only communication habits and patterns you
can change are your own. poster
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Speak Clearly

• Know what you want
• Be specific
• Stay focused
• Speak with tact
• Own your feelings
• poster

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I Messages

• I feel frustrated when I dont get any help from
  my children.
• I feel frustrated when you dont help me or why
  dont you help me?

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Listen Carefully

• Listen with empathy
• Do not interrupt
• Accept what is said
• Receive criticism with an open mind
• poster

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Respond Accurately

• Pay attention to non-verbal messages
• Get all the facts
• Check your interpretation
• Be honest
• poster

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When its Difficult

• Get the persons attention
• Look directly at the person
• Drop your pitch
• Eliminate background noise
• Speak slowly and clearly
• Keep verbal nonverbal messages consistent
• poster

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Module 5 Caregivers Need Care, Too Objectives

• Caregivers will
• recognize the warning signs of stress.
• identify ways to manage caregiver stress.
• learn where to find respite in their communities.

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Topics

• You are not alone
• Ways to manage stress
• Respite programs

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Common Warning Signs of Stress

• Headaches
• Sleep difficulties
• Grinding teeth
• Crying easily Short temper
• Digestive problems Tense muscles
• Eating too much/not enough
• Drug/alcohol abuse
  
  poster

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Ways to Manage Caregiver Stress

• Express your feelings to someone
• Take care of your physical health
• Continue meaningful activities
• Take time for yourself
• Avoid negative ways of coping
• poster

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Respite Care

• Respite can be an opportunity to get away from
  duties.

• Dont think you have to do it all
• Encourage the care-receiver to be as independent
  as possible
• Ask for help
• poster

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It is important to

• Recognize warning signs of stress
• Manage stress
• Find respite care
• poster

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Module 6 Services ProfessionalsObjectives

• Caregivers will
• be able to locate social service agencies in any
  community.
• understand the steps to assess what services are
  needed for the care-receiver.
• learn tips on how to best communicate with social
  service agency representatives, the older adult,
  and family members.

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Topics

• Setting up services
• Locating services
• Sources of information
• Types of services available

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Things to Consider

• Care-receivers familys circumstances wishes
• Independence of care-receiver
• Realistic goals/plan for future
• Living arrangements
• Financial legal aspects
• Informal support systems
• poster

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Aging Network

• Eldercare Locator
• Bureau of Aging, Long Term Care and Resources
• Area Agencies on Aging
• County/Tribal Aging Unit
• Local Service Providers
• poster

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Other Sources of Information

• Other caregivers
• Support groups
• Health care professionals
• Home care agencies
• Parish nurses/Clergy
• Friends and family
  poster

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Types of Eldercare Services

• Adult day services
• Homemaker services
• Home delivered/senior dining
• Respite care
• Home health care
• poster

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Eldercare Services (continued)

• Transportation
• Medical equipment suppliers
• Senior centers
• Information assistance
• Senior subsidized housing
• Assisted living
• poster

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Eldercare Services (continued)

• Retirement communities
• Care/Case managers
• Nursing facilities
• Legal assistance
• Benefit specialists
• poster

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Selecting Resources

• Review family needs
• List formal informal support
• Record necessary information
• Ask each contact for the same information
• Find out what documents are needed
• Prepare ahead for appointments
• poster

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Selecting Resources (cont.)

• Utilize support specialists
• Designate one advocate for each area
• Keep all information current
• Keep everyone informed
• Record all contacts made incl.dates names
• Explore rights to appeal if services denied
• poster

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Make a Plan

• List tasks
• Decide who is responsible
• List agencies involved
• Write it down
• Continue to evaluate and change as needed
• poster

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Caregiving Goals

• Safety
• Health
• Happiness
• Independence
• poster

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Sample Class Outline

• 945 am Registration
• 10 00 Welcome Introductions
• 1015 Curriculum Overview
• 1045 Module Overview Objectives, Topics and
  Activities
• Module 1 Mixed Emotions
• Module 2 Relationships in Caregiving
• Module 3 Loss and Grief
• Noon Lunch
• 1245 pm Module Overview Objectives, Topics and
  Activities, cont.
• Module 4 Caregivers Need
  Care Too
• Module 5 Speak Clearly and Listen Carefully
• Module 6 Services
  Professionals
• 145 Evaluation Process and Web Supports
• 215 Marketing
• 230 Closing

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Evaluation Process and Web Supports
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Access web site at

• http//www.uwex.edu/ces/flp/caregiving/education/r
  elationships/index.cfm

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Caregiving Relationship web site provides

• Curriculum overview
• Author biographies
• Names and contact information for class
  leaders/facilitators
• Teaching materials/resources for class
  facilitators/leaders
• Evaluation information

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Teaching materials on site include

• Wisconsin specific pieces
• Additional educational pieces
• Teaching tips for each of six modules
• PowerPoint posters for use in group settings
• Evaluations
• www.uwex.edu/ces/flp/caregiving/education/
• relationships/forclassleaders.cfm

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Evaluations for curriculum

• After class participant evaluations
• -used after teaching the module in any group
  setting.
• -tally sheet is available on the web site

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Evaluations for curriculum, cont..

• Six-month participant follow-up
• -sent to all class participants with their plan
  of action which was developed in the after
  program evaluation

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Evaluations for curriculum, cont.

• ALL class leaders/facilitators are encouraged to
  use evaluations and to complete 6-month follow-up
  evaluations.
• We will be following up every 6 months to see
  what parts of the curriculum you have been using.
  A log sheet is provided on the evaluation web
  site.

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Other Materials Available

• Projected expenses chart
• Participant certificate
• Curriculum order forms and information

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Marketing
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Why Market?

• Increase awareness of caregiver issues services
• Increase knowledge of caregivers
• Increase use of educational opportunities by
  caregivers
• Fulfill mission of agency/organization

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Marketing Materials for Class Leaders

• Confirmation letter to workshop participants
• Promotional brochure
• Sample press release
• Promotional strategies
• Press releases for individual modules
• www.uwex.edu/ces/flp/caregiving/education/relation
  ships/forclassleaders.cfm

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Marketing methods

• Word of Mouth
• Print
• Local paper
• Local newsletters (aging unit, senior center,
  civic community organizations, schools, church,
  synagogue etc)

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Marketing methods, cont.

• Print, cont.
• Flyers, posters (hospitals clinics, social
  service agencies, restaurants, community bulletin
  boards, employers, senior dining sites, senior
  centers etc..)

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Marketing methods, cont.

• Radio
• Television
• Group presentations (clubs, organizations,
  gatherings of older adults, support groups etc.)

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Marketing Methods, cont.

• One-on-one communication
• Have conversations with older adults and
  caregivers
• Testimonials offered by caregivers
• Personal invitations to participate in CR session
• Your examples

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Supports

• Alliance Website
• Fellow CR facilitators/class leaders
• Local Coalitions
• Others

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Any Questions?
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Summary

• Curriculum is available, flexible and easy to use
• Wisconsin pieces are available
• Marketing materials are available
• Evaluation materials are available

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• PowerPoint presentation developed by Peggy
  Nordgren, Associate Professor, Family Living
  Agent, UW-Extension-Taylor County with
  contributions from
• Judy Olmanson, Northern Area Agency on Aging,
  Rhinelander
• Lynn D. Scheinoha, CIRS-A, Information
  Assistance Specialist, Manitowoc County Aging
  Resource Center
• Maurine Strickland, MA, CIRS-A, Information
  Assistance Program Specialist, Bureau of Aging
  Long Term Care Resources

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• Reviewers
• Mary Brintnall-Peterson, Ph.D., Program
  Specialist in Aging, UW-Extension
• Barbara Robinson, Aging Program Specialist,
  Bureau of Aging and Long Term Care Resources
• Kathy Miller, Family Living Agent,
  UW-Extension-Bayfield County

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