Presidents Report

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Agenda Item III
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• PCPCC Stakeholders Working Meeting

Washington, DC July 16, 2008
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• Patient Partnership The PCMH as Facilitator of
  Care

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35-Year History Fighting for Women Families

• Our Priorities
• Workplace fairness
• Family-friendly workplace policies
• Access to quality, affordable health care

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Patient Centered Care Requires Patients at the
Table

• The Patient-Centered Medical Home Whats in it
  for patients?
• Aging population
• 130 million Americans with 1 or more chronic
  disease
• Poor quality and rising costs
• Disparities in access and quality of care
• Fractured health care system

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Patient Centered Care Requires Patients at the
Table

• The Patient-Centered Medical Home Whats in it
  for patients?
• Need for
• Better access to care
• Better coordination of care
• Better continuity of care
• Better patient engagement
• Reduce disparities
• Better satisfaction with the health care system

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Building a Coalition to Shape and Support the PCMH
Patient-Centered Medical Home
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Engaging Consumers in PCMH

• The PCMH Initial consumer reactions
• Is that like a nursing home?
• Didnt we try this with HMOs?
• Sounds great in theory but its really just
  about cost saving isnt it?

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Engaging Consumers in PCMH

• Consumer Engagement Strategy
• Introducing consumer advocates to the PCMH and
  involving them in shaping it
• Educating and engaging consumers and patients
• Funded through 2008 grant

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Engaging Consumers in PCMH

• Environmental scan
• Assess current efforts to communicate with
  patients and advocates
• Focus Groups
• National and local level
• Inform, and get feedback
• Develop consumer/patient principles
• What criteria need to be met to achieve
  patient-centered care

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Engaging Consumers in PCMH

• Develop consumer-friendly materials
• For advocates
• For patients and family members
• Involve consumers and patients
• Advocacy to help shape the medical home
• Educate and engage patients and consumers
• Monitor and assess evolution of the PCMH

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Project Advisory Committee Meeting

• AARP
• AFL-CIO
• Alzheimers Association
• American Diabetes Association
• American Heart Association
• American Hospice Foundation
• Center for Medicare Advocacy
• Families USA
• Family Voices
• Incenter Strategies to Advance Adolescent Health

• Leadership Conference for Civil Rights
• March of Dimes
• Mental Health America
• NAACP
• National Coalition for Cancer Survivorship
• National Consumers League
• National Council of La Raza
• National Family Caregivers Association
• National Health Law Program
• National Womens Law Center
• SEIU

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Key Elements of a PCMH Consumer Perspectives

• Access
• 24/7
• Continuity of care
• Medical history
• Treatment preferences
• Family, economic, social situation
• Good communication
• Dignity and respect
• Culturally and linguistically effective
• Patient understanding engagement encouraged

• Support for self-management
• Help with care coordination
• Medication management
• Transitions in care
• Getting appointments
• Help with informed decision-making
• Unbiased pros and cons
• Respecting preferences
• Improved quality and public reporting

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Next Steps

• Inform and engage consumer advocacy community
• Make the medical home truly patient-centered
• Develop and disseminate consumer-friendly
  materials
• Continuously assess the model as it takes shape

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Conclusion

• Consumers can embrace the PCMH
• Consumers and patients need a voice in shaping it
• You cant have patient-centered care without the
  patients!

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• thank you

sabrina corlette director, health policy
programs scorlette_at_nationalpartnership.org