Autism Spectrum Disorders Centers for Disease Control and Prevention

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Autism Spectrum DisordersCenters for Disease
Control and Prevention
Centers for Disease Control and
Prevention National Center on Birth Defects and
Developmental Disabilities

• OSEP
• December 8, 2008

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CDC Programs Specific to ASDs

• Surveillance/MonitoringAddress questions on the
  prevalence/trends
• Epidemiologic Research Examine risk/protective
  factors
• Prevention/Translation of Research Learn the
  Signs. Act Early.

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CDC Establishing a Network to Monitor ASDs and
other DDs in the United States
Washington
Maine
Montana
Minnesota
Vermont
North Dakota
Michigan
Oregon
New Hampshire
Wisconsin
South Dakota
Massachusetts
Idaho
New York
Wyoming
Michigan
Rhode Island
Connecticut
Pennsylvania
Iowa
Nebraska
New Jersey
Nevada
Ohio
DC
Indiana
Delaware
Illinois
Utah
Maryland
West Virginia
Colorado
California
Kansas
Virginia
Missouri
Kentucky
North Carolina
Tennessee
Arizona
Oklahoma
Arkansas
South Carolina
New Mexico
Mississippi
Georgia
Alabama
Texas
Florida
Louisiana
Alaska
U.S. Virgin Islands
CDC 11 ADDM Sites 2006-2010 (10CDC) 16 ADDM
Sites 2001-2006 (15 CDC)
Hawaii
Puerto Rico
Guam

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Surveillance Year 2002(8-year-olds born in 1994)

• Sites represented approximately 10 of US
  8-year-old children - 2,685 children were
  identified with an ASD.
• The average prevalence across all sites was very
  similar to 2000 at 6.6 per 1,000.
• There was also a range 3.3 (AL) to 10.6 (NJ) per
  1,000 children
• Between 1100 and 1300 with an average of 1150
  children with ASD.

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Study to Explore Early Development (SEED)
Multi-state collaborative study to help identify
factors that may put children at risk for autism
spectrum disorders and other developmental
disabilities. California, Colorado, Georgia,
Maryland, North Carolina, Pennsylvania Approximat
ely 2,700 children, ages 2 to 5, and their
parents will be part of this study.
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Research Areas Included

• Infection and immune function, including
  autoimmunity
• Reproductive and hormonal features
• Gastrointestinal features
• Genetic features
• Investigation of the broader ASD phenotype
• Sociodemographic characteristics
• Substance use, hospitalizations and injuries,
  sleep disorders, and mercury exposure

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Parent Education CampaignDevelopmental
milestones and early warning signs of delay
Every child should meet their full potential.
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Learn the Signs.Act Early.
Parent education campaign about developmental
milestones and warning signs of delay
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Campaign Objectives

• Increase AWARENESS of developmental milestones
  and early warning signs
• Increase KNOWLEDGE in the benefits of early
  action and early intervention
• Increase parent-provider DIALOGUE on the topic of
  developmental milestones and disorders
• Increase EARLY ACTION on childhood developmental
  disorders

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CommunicationLearn the Signs.
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Target Audiences

• Health Care Professionals (HCPs)
• Pediatricians, family physicians, physician
  assistants, nurse practitioners, nurses, and
  others
• Parents of Young Children
• Ages 4 and younger
• Early Educators (EEs)
• Preschool teachers, day care providers, and others

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Campaign materials
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MobilizationAct Early
Catalyst in helping parents and professionals to
learn the signs and act early
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Act Early Regional Summits

• Bringing together key stakeholders in states to
  improve early identification and early
  intervention.

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2007-2008 Act Early Regional Summits

• Region V Creating Medical Home Solutions for
  Individuals with Autism, December 2007
• Region VII Summit (Iowa, Kansas, Missouri and
  Nebraska) - Kansas City, MO February 2008
• Region VI Summit (Arkansas, New Mexico,
  Louisiana, Oklahoma, and Texas) - Albuquerque,
  NM March 2008

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Proposed outcomes of the Act Early Regional
Summits

• Increase awareness of Learn the Signs. Act Early,
  campaign and its impact in target regions
• Develop common understanding among stakeholders
  of opportunities, challenges and barriers to
  early identification and diagnosis
• Enhancing partnerships at the federal level (CDC,
  HRSA, AUCD)

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Proposed outcomes of Regional Summits (continued)

• Develop state teams to initiate and/or enhance
  state wide early identification, diagnosis and
  service provision and coordination for families
  with ASD
• Create national web-based forum to disseminate
  promising evidence-based practices for
  stakeholders to use to develop innovative
  approaches in their states

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Future plansAct Early activities

• AUCD and HRSA
• 2009 Act Early Regional Summits
• AUCD
• Act Early fellow
• Collaborative Research Awards
• Research Topics of Interest Developmental
  Screening

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Questions?

• www.cdc.gov/actearly
• www.cdc.gov/autism
• gpeacock_at_cdc.gov

The findings and conclusions in this
presentation are those of the author and should
not be construed to represent any agency
determination or policy.