The Road to Collaboration

1
The Road to Collaboration

• Judy Beckett
• Louise Bryant
• Academic Unit of Psychiatry
• Behavioural Sciences, University of Leeds

Academic Unit of Psychiatry and Behavioural
Sciences
2
Partnership working

• Levels of user involvement
• Control users design, undertake disseminate
  result of study, users have decision making
  power.
• Collaboration active ongoing partnership
  throughout the study, sharing of power in
  decision making.
• Consultation lowest level of involvement, no
  sharing of power in decision making.

From Involve (2004), Faulkner (2004)
3
Acceptability feasibility of an AE advocacy
service for self-harm

• Project idea initiated by Louise Pembroke
  experience as a user of mental health and AE
  services in relation to self-harm.

4
Research partners

• Management group Louise Pembroke, Allan House
  Hilary Dyter (LMHAG)
• Research Team Louise Bryant (PI), Judy Beckett,
  Helen Buckland Cath Sweeney (researchers with
  experience of using AE following self-harm)
• NHS partner AE consultant, Stephen Bush

5
Process of involvement

• Management group agreed principles of involvement
• Recruitment of staff with personal experience of
  self-harm
• Training
• Data collection (interviewing)
• Data input, analysis and write-up
• Evaluation of involvement

6
Evaluation of involvement

• Telford et al (2004) Principles of successful
  consumer involvement in NHS research
• Questionnaires developed by SWYMH NHS Trust
  staff and service user versions

Full report available from http//www.leeds.ac.uk/
medicine/psychiatry/index_p.html
7
Workshop activity
8
Reflection on the evaluation tools

• Principles of involvement (Telford et al)
• Successful involvement requires more than
  adherence to the 8 principles
• No reflection of the power relations in
  collaborative research

9
SWYMHT evaluation questionnaire

• Responses are not anonymous
• Personal reflections not independent evaluation