FAMILYCENTERED CARE AND THE ADOLESCENT HEADED FAMILY

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FAMILY-CENTERED CARE AND THE ADOLESCENT HEADED
FAMILY

• Office of Adolescent Pregnancy Programs
• Care Grantee Conference
• Lee Savio Beers, MD
• Amy Lewin, PsyD
• Tininka Rahman, BSN

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Learning Objectives

• The participant will know the definition of
  Patient- and Family-Centered Care in the Medical
  Home
• The participant will be able to discuss how
  Patient- and Family-Centered Care can strengthen
  the adolescent headed family
• The participant will be able to discuss barriers
  to Patient- and Family-Centered Care and possible
  solutions

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Brainstorming

• How do you define Patient- and Family-Centered
  Care?

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Patient- and Family-Centered Care

• Patient- and family-centered care is an
  innovative approach to the planning, delivery and
  evaluation of health care that is grounded in
  mutually beneficial partnerships among health
  care patients, families and providers. Patient-
  and family-centered care applies to patients of
  all ages and may be practiced in any health care
  setting.
• Institute for Family-Centered Care,
  www.familycenteredcare.org

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Definitions

• Family-Centered Care assures the health and
  well-being of children and their families through
  a respectful family-professional partnership. It
  honors the strengths, cultures, traditions and
  expertise that everyone brings to this
  relationship. Family-Centered Care is the
  standard of practice which results in high
  quality services
• Maternal and Child Health Bureau, Division of
  Services for Children with Special Health Needs,
  July 2005

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Definition of Family

• Two or more persons related in ANY way
• Biologically
• Legally
• Emotionally
• Defined by patients and families

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Core concepts of FCC

• Dignity and respect
• Information sharing
• Participation
• Collaboration
• Not just Family-focused care

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More brainstorming

• How can Patient- and Family-Centered Care affect
  and/or strengthen the adolescent headed family?

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What is the evidence?

• Boie et al, 1999
• Do parents want to be present during invasive
  procedures performed on their children in the
  emergency department? A survey of 400 parents.
• Parents want to be present
• Want to participate in the decision about their
  presence

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More evidence

• Laffel et al, 2003
• Impact of ambulatory, family-focused teamwork
  intervention on glycemic control in youth with
  Type I diabetes
• Improved health outcomes

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More evidence.

• Chernoff et al, 2002
• A randomized control trial of a community-based
  support program for families of children with
  chronic illnesses Pediatric Outcomes
• Ireys et al, 2001
• Maternal outcomes of a randomized control trial
  of a community based support program for families
  of children with chronic illnesses

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ExampleMaternal Depression

• Casey et al., 2004
• Maternal depression, changing public assistance,
  food security and child health status
• Leiferman et al., 2002
• The effect of maternal depressive symptomatology
  on maternal behaviors associated with child
  health
• Brennan et al., 2003
• Maternal depression, parent-child relationships
  and resilient outcomes in adolescence

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Something to think about.

• How and where can the adolescent headed families
  you serve receive Patient- and Family-Centered
  Care in a comprehensive Medical Home?

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What is a Medical Home ?

• Not a building, house or hospital
• Primary care that is
• Accessible
• Continuous
• Comprehensive
• Family-Centered
• Coordinated
• Compassionate
• Culturally Effective

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Even more brainstorming

• What are the barriers to finding/providing
  Patient- and Family-Centered Care?
• How can you overcome these barriers?
• How can you encourage others in your community to
  provide Patient- and Family-Centered Care to
  adolescent headed families?

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Put your knowledge to work

• Develop an action plan for your program
• Needs
• Barriers
• Strategies

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Reporting out

• What are the highlights of your action plan?
  What will you do when you return home?

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Additional resources

• Institute for Family-Centered Care
• www.familycenteredcare.org
• American Academy of Pediatrics Medical Home
  Initiative
• www.medicalhome.org
• AAP Policy Statements Family Centered Care and
  the Pediatricians Role and Care of Adolescent
  Parents and their Children
• www.aap.org

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QUESTIONS?

• Lee Savio Beers, MD
• 202 884 3797
• lbeers_at_cnmc.org
• Amy Lewin, PsyD
• 202 884 3106
• alewin_at_cnmc.org
• Tininka Rahman, BSN
• 202 884 5794
• trahman_at_cnmc.org