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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
Alliance of Czech Breast Cancer Associations
(ACBCA) 3rd November 2004 Iva Raskova Member of
the Supervisory Board

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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
Alliance of Czech Breast Cancer Associations
(ACBCA)   A non-profit organisation founded in
2002 by nineteen oncology groups, in order to be
generally beneficial  
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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA

• Our goals are
• To establish public information and education
  centres for oncology patients and organisations
• To give methodical assistance to oncology
  (breast cancer) organisations
• To coordinate projects and campaigns in support
  of breast cancer prevention
• To unite individuals and organisations to
  promote the rights of women with breast cancer
• To represent Czech women with breast cancer all
  over the world

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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
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• Structure of ACBCA
• Authorities ACBCA
• Administrative board (9 members oncologist,
• managers of commerce companies, managers of
  patient
• organisations)
• Advisory board (3 members - patient
  organisations)
• Employees
• Head Director Zdenka Jusková
• Project Manager
• External economist, volunteers
• Financial sources
• Incomes from services sales (seminars)
• Incomes from advertising (web)

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Information Centre
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA

• Internet site www.breastcancer.cz
• 400 sub pages and links, for example
• List of oncology patient associations
• Breast cancer and general cancer literature
  archive
• Links to other patient organisations
• List of lymph therapeutic workstations
• Recondition/curative trips
• Discussion forum and acquaintance forum (in plan)
• Magazine INFO ACBCA
• 5 issues annually

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Education Centre 5 workshops per year on the
management of patient organisations
Topics include fundraising, community work,
cooperation with PR/media, accounting for
non-profit organisation
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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
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Projects for a healthy community (by volunteer
female breast cancer survivors)
Project MAMMA countrywide campaign for
prevention of breast cancer
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• Courses for educators public talks on breast
  cancer prevention
• Purchase educational materials, aids and tools
  (breast instrumental jacket)
• Particular breast cancer organisations, with the
  help of ACBCA, deliver special programs for women
  working at school and in other institutes (town
  halls, insurance companies, financial and social
  offices, etc.)

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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
Billboard Exercise your right to a health
prevention check The Best Gift for a Child is a
Healthy Mother!
500 billboards across the country (June
November)
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Events for families The Best Gift for a Child is
a Healthy Mother! (June every year)
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
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Participation with Avon Cosmetics activities and
projects (Avon Walk for Breast Cancer, Road Show
education provided by breast cancer survivors
in 80 cities/towns around the whole of CR)
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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
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• Avon Phone Help Line against Breast Cancer
• (Mon Fri, 9 am 7 pm )
• Phone Operators
• Breast cancer survivors
• Oncologists
• Psychologists
• 20 25 contacts daily (967 in May, 563 in June)

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• Motivational projects for cancer patients and
  their friends You can do it, too!

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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA

• Year 2002
• Expedition Sonnblick Climbing the Alp Mountain -
  3105m
• 10 breast cancer survivors
• Non-sport women, members of 9 BC organizations
• Goal Everyone can climb Sonnblick!
• Start of traditional annual project
• Main sponsor ROCHE, Amoena
• Outputs Documentary film

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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
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• Year 2003
• Swimming relay Patient organisations in 16
  places in CR
• Organised 3105m swim as a relay. The event
  included
• Breast cancer survivors
• Family members and friends
• Supporters and interested visitors
• Goal Help overcome self-consciousness
• of wearing a swimming costume
• Main sponsor ROCHE, paid 1 CZK per 1m swum
• VIP face of the project Ilona Hlavácková,
• European Champion
• Outputs Leaflets, 10 min. video

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• Year 2004
• Walk with us 2 part project
• 350km long-distance walk
• 20 breast cancer survivors
• Members of 3 patient organisations from CR
• Goal Media attention, enjoy sports activity
• 2. National meeting of breast cancer survivors
• 120 participants
• Walked star shaped tour (3,6,9,12,15 km)
• Goals Bring survivors together,
• make new friendships, enjoy sports activity
• VIP face of the project Alice Nellis film
  director
• Main sponsors ROCHE and additional sponsors
• Outputs Press conference, leaflets,

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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
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Curative overnight tripsTogether with high
standard care lymph therapists,
physiotherapists2002 40 women2003 80
women2004 40 women
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
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Lobbying 2003 Department of Health Project
Care Quality for Patients (questionnaire survey
in 20 mamma diagnostic centers) 2004
Participation in special working group Project
Accessibility and quality of subsequent care for
cancer patients (with The League Against Cancer
Prague and The League Against Cancer Brno)
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Presentations Pragomedica Fair Prague, MEFA Brno
(International Fair of Medical Technology and
Pharmacy)
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• Congresses for doctors and nurses
• Oncology days
• Mass media
• TV and radio broadcasting
• Womens magazines
• Journals
• Regional and local press
• Breast cancer survivors personal stories
• Prevention

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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
Contact address
Alliance of Czech Breast Cancer Associations
(ACBCA) Sudomerská 33, 130 00 Praha 3, tel.
222 733 733 aliance_at_breastcancer.cz www.breastca
ncer.cz
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ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
ACBCA ACBCA ACBCA ACBCA ACBCA ACBCA
thank you for your attention