A Network Perspective

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A Network Perspective Michael Yare Cancer
Registry Co-ordinator West London Cancer Network.

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West London Cancer Network

• 2.1 million population
• 10 primary care trusts
• 9 acute trusts
• Chelsea Westminster, Ealing, Hammersmith
  Hospitals, Hillingdon, North West London
  Hospitals, Royal Brompton and Harefield,
  Kingston, St. Marys, West Middlesex
• 1 Cancer Registry Co-ordinator

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Network Informatics Team

• Network Informatics Team
• Project Manager
• Informatics Co-ordinator
• Cancer Registry Co-ordinator
• Specialisation
• 1/3 of the workload
• Tumour boards
• Cancer information groups

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Cancer Registry Co-ordinator

• Started August 2002
• Support the trusts in the network to take on the
  task of collecting cancer registration data
  (electronically)
• Baseline assessment
• Communications
• Part of the informatics team

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First Tasks

• Physically cover a lot of ground
• Introduction to cancer managers, cancer data
  personnel
• Familiarity with TCR
• Cancer data collection methods
• Project plan
• Baseline

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Current Project Activity

• Baseline report
• Questionnaire, information gathering
• Communication
• Frequently asked questions, presentations,
  meetings
• The TCR project
• ?

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Thames Cancer Registry

• Network co-ordinators
• Angela Newnham
• Sameena Qureshi
• TCR Cancer Network Liaison Group
• Registry contacts
• Liaison
• Information
• Quality assurance

• National issues
• Other cancer registries
• Other registration co-ordinator roles
• Long established expertise of TCR

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We Stand Alone, Together

• TCR Co-ordinators Group
• Other networks and co-ordinator roles
• A problem shared
• Communication issues
• Operational issues
• The objectives
• cancer minimum dataset
• cancer registry minimum dataset

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Reflections for the Future

• Not an easy task for anyone
• Do the networks create the strategy or do the
  trusts make the network?
• There is no national policy or strategy?