Follow Up

1
Follow Up

• 1st child 2 years corrected Dec 2003
• Recruitment continues until July 2006
• Last child follow-up in December 2008
• Tools used
• Professionals questionnaire
• Parents questionnaire

2
Follow Up

• Domains Assessed
• Developmental
• Cognitive (non-verbal and verbal) and Motor
• Special Senses
• Vision and Hearing
• General Health (Seizures, Feeding, Resp, Renal,
  etc)
• Hospital Admissions
• Height and Weight
• Neurological Assessment (CP, hydrocephalus,
  other)
• Other

3
Follow Up

• Paediatricians Questionnaire
• Developed by consensus meeting UK (NPEU and
  Oxford HA) 1993
• Criteria for disability defined
• Used in similar form for paediatricians in UKOS
  trial
• Currently used in TEAMS

4
Follow Up

• Parents Questionnaire
• Combines
• PARCA (Parents report of Childrens abilities)
• Non-verbal cognition
• Macarthur
• Verbal cognition
• 1st completed forms now returned

5
Follow Up

• Non-verbal cognition and Verbal cognition
• Used in TEDS (Twins early development study
  Saudino and P Lomin et al)
• Modified and evaluated in UKOS trial
• (Marlow and Johnson et al)
• Correlation with MDI Bailey Scales (BSID II)
  composite score
• r 0.64 p lt0.0001

6
Summary

• Continual recruitment process
• UK
• Europe
• Await results of EU directive implementation
• Follow up underway, so far so good
• Thanks for having me