Collaborative Communication in Multicultural Aphasia Intervention

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Collaborative Communication in Multicultural
Aphasia Intervention

• Outreach and Education Strategies
• Ellayne S. Ganzfried, M.S. CCC-SLP
• Executive Director
• National Aphasia Association
• November 21, 2008
• ASHA-Chicago

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National Aphasia Association (NAA)

• NAA is a consumer-focused, not-for-profit
  organization that was founded in 1987 as the
  first national organization dedicated to
  advocating for persons with aphasia and their
  families. Resources include
• NAA Hotline [phone]) helps over 4,000
  families a year.
• NAA National Registry links to over 440 US and
  International aphasia support groups and 220
  state representatives
• www.aphasia.org receives over 30,000 hits per
  month, potentially helping over 150,000 families
  a year.

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NAA Resources, contd

• The Aphasia Handbook A Guide for Stroke and
  Brain Injury Survivors and Their Families -- with
  its simple, illustrated design and practical,
  non-technical content this award-winning,
  internationally acclaimed book is a
  user-friendly, easy-to-understand resource.
• Aphasia Bill of Rights adopted in 2006, available
  on www.aphasia.org
• News Bulletin

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Multicultural Task Force (MTF)

• Formed in September 2007
• Members reflect various settings variety of
  languages/cultural experiences and expertise
• Monthly conference calls

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Mission and Goals

• The mission of the NAAs Multicultural Task Force
  ( MTF) is to enhance the understanding and
  intervention of aphasia and its consequences in
  different linguistic and sociocultural
  environments

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Mission and Goals

• The MTFs mission includes the following goals
• 1. To bring together the input from a
  multidisciplinary cohort of researchers and
  practitioners as well as people with aphasia to
  clinical practices.

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Mission and Goals

• 2. To link research on aphasia in different
  languages and in individuals from different
  cultures to clinical practices.
• 3. To bring together the input from both
  national and international researchers and
  practitioners.

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Mission and Goals

• 4. To collect and disseminate literature on
  aphasia in different languages and in individuals
  from different cultures among researchers,
  practitioners, and people with aphasia.
• 5. To be an active resource center for the
  national and international public.

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MTF Accomplishments

• Creation of MTF web page
• Recruitment of multicultural state
  representatives
• Fostering the creation of multicultural support
  groups
• Press release on MTF and issues

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MTF Accomplishments

• Newsletter articles on multicultural topics
• Translation of NAA brochure into Spanish, Greek,
  Chinese, Tamil, Portuguese, Hebrew, Korean ,
  Russian and French
• Revision of NAA Mission and Bill of Rights

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MTF Accomplishments

• Application and consideration for grants
• Collaboration with related organizations and
  outreach to international aphasia community

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Next Steps

• Expand MTF membership and multicultural state
  representative network
• Brochure translation into additional languages
• Creation of DVD and/or on line video about
  aphasia in English and in other languages

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Next Steps

• Survey of constituents to determine current and
  future needs access to resources and
  availability of multicultural services

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National Aphasia Association
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National Aphasia Association

• 350 Seventh Avenue-suite 902
• New York, NY 10001
• [phone]
• [phone] (fax)
• [phone]
• www.aphasia.org
• naa_at_aphasia.org

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For More Information

• Ellayne Ganzfried, M.S., CCC-SLP
• Executive Director
• ganzfried_at_aphasia.org
• Amy Coble
• Information/Administrative Coordinator
• coble_at_aphasia.org