Mark Duman

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Patient Information Forum8-pack Overview

• Mark Duman
• chair_at_pifonline.org.uk
• 07985 639 887
• May 2006
• www.pifonline.org.uk

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The User Environment

• Information is key at all levels but especially

Citizens Juries
Citizens
Users
Individuals
Shared clinical decision-making/ wellness/ choice
3
The Organisational Environment
White papers/ consultations
Strategy
Support
Grassroots
Consumers/ patients/ carers/ family
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Patient Information Forum

• better communication, better health
• Established via Kings Fund in 1997
• Original focus on acute trusts in London
• Umbrella group of over 300 health information
  specialists in the UK (and Ireland)
• NHS Trusts, and NHS Direct, NHS Direct Wales,
  NHS24, MHRA, NICE, Picker, UK National Screening
  Committee (50)
• Commercial e.g. BUPA, EMIS, Lloydspharmacy,
  Pfizer (20)
• Patient groups e.g. Alzheimers Society, Blood
  Pressure Association, British Lung Foundation,
  Diabetes UK, Epilepsy Action, MIND, MS Society,
  Scottish Consumer Council (20)
• Professional e.g. Royal College of Psychiatrists,
  General Medical Council, Academic and Other (10)
• Funding from 50 membership fee/ conference(s)
• Efforts of Steering Group and others mainly
  voluntary

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Core values (DRAFT)

• Taking a patient-focused approach to our work
• Providing an independent voice on health
  information issues
• Sharing expertise and experience around health
  information
• Promoting equity in provision of and access to
  health information
• Facilitating access to quality information for
  patients and beyond
• Improving the patient experience through
  information
• Encouraging a continuous learning culture around
  health information
• Influencing the development of healthcare policy
  around the provision of healthcare information

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Current Products Services

• Networking/ Sharing experience, policies and
  proposals
• PiF aware email alerts
• Question and Answer service (eCommunity)
• Website
• Annual conference(s)
• Workshops - 15-50 people meet to improve a
  common theme
• Health information centres (Sep. 05)
• Information on screening (Dec. 05)
• Patient information in Scotland (Jan. 06)
• The (Cardiff) Book Prescription scheme (Apr. 06)
• Patient access to medical records (Sep. 06)
• Training (e.g. BMA Library, ABPI IPI, LMCA)

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Future Products Services

• PiF Appraisal
• Practical review of materials
• Synergistic with Information Accreditation Scheme
  (in England)
• PiF Events
• Conferences
• Workshops
• PiF People
• Advice/ consulting on health information issues
• PiF Training
• Health information and communication
• With partners e.g. Connect, Plain Language
  Commission, RNIB
• Personal Development Plan for patients