ORGAN DONATION: BRIDGING THE GAP

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ORGAN DONATION BRIDGING THE GAP

• Paul M Schwab
• Executive Director
• Association of Organ Procurement Organizations

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The Organ Shortage A National Crisis
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Transplant-Related DataPercentages 12/31/00
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COMPARISON OF POTENTIAL VS. DONORS BY
RACE1997--1999
Other 3
Other 5
Asian 2
Asian 4
African American 12
African American 21

Caucasian 83
Caucasian 70
n18,524
n7,790
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REFERRAL, REQUEST AND CONSENT RATES BY RACE,
1997-1999

Percent
Cauc Afr Asian Am
Cauc Afr Asian Am
Cauc Afr Asian Am

Calculated as percent of requests
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CONVERSION RATES 1997-1999
Donors as of Potential
Avg 42


plt.01
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Organ Procurement Organizations

• 59 in USA
• Federally Designated
• Non-Profit
• One per Geographic Area
• Multidisciplinary
• Gatekeeper Role
• Also Involved with Tissue

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National OPO Priorities

• Close Consent Rate Gap
• Advance Science of Donation
• Achieve Shared Accountability
• Preserve Public Trust

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Overview of Action

• Web Site Communications
• Strategies, Programs, and Initiatives
• DHHS (DOT, HRSA) Supported Projects
• Coalition on Donation
• AOPO Task Force on Multicultural Issues

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Findings of Web Site Analysis

• 59 Reference Diversity
• 70 Include QA Section
• 63 Address Common Myths
• 50 Describe Initiatives
• 20 Use Spanish or other other
  foreign languages
• 9 Include Area Demographic Numbers

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Web Site Q and A Sections

• Should Minorities Be Particularly Concerned About
  Organ Donation?
• Can Organs Be Given To Different Racial and
  Ethnic Groups?

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Web Site Dispelling Myths Sections

• Lack of Info About Issue
• Religious Beliefs
• Distrust of Medical Community
• Fear of Premature Death
• Racial Disparity

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Strategies

• Seek Targets of Opportunity
• Use Like Requestors
• Become Culturally Competent
• Go Where the Action Is
• Think Outside of the Box
• Institutionalize Focus
• Connect

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Programs

• Community Outreach
• Employee Training in Cultural Competence
• Population-based Events
• Minority Task Forces
• Involvement with Minority Health Practitioners

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Initiatives

• Newsletter to Faith Community
• Brochures in Different Languages
• Profiles of Inspirational Persons
• Involvement of Celebrities
• Community Fairs/Festivals

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HHS-supported Projects

• Lead Division of Transplantation, HRSA
• Emphasis in Discretionary Grant Programs
• Focus on Possible Best Practices

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OneLegacy Population Demographics (based on 2000
Census)
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One Legacy Interventions

• 1 - Asian Community Initiative
• 2 - South/Metro Inner City Model
• 3 - Hispanic-Focused Paid Media Advertising

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1 Intervention ResultsAsian Family Consent
Rate Improvement
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Intervention 2Baseline for South/Metro Success
Measurement
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Intervention 3Results To-Date
2002 projection based on 3 months actual
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Coalition on Donation

• National Hispanic Campaign (Done Vida) -- April
  2002
• National African American Campaign -- September
  2002

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AOPO Task Force on Multicultural Issues

• Established in 2002
• Cross-cutting Composition
• Infuse Corporate Structure
• Selected Initiatives
• Recruitment Video
• Data Base
• Hospital Strategies

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Other Organizations of Note

• ASMHTP
• MOTTEP
• UNOS
• NATCO

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Stay in Touch

• 703-556-4242
• http//www.aopo.org
• organdonation_at_aopo.org