involving people in running their own services

1
Removing Disabling Barriers user involvement and
Direct Payments Susan Morrell Manager, Leeds
Centre for Integrated Living

• involving people in running their own services
  
• Direct Payments
• Remaining barriers

2

• We are challenging society to take account of
  us, to listen to what we have to say, to
  acknowledge us as an integral part of society
  itself. We do not want ourselves, or anyone
  else, treated as second-class citizens and put
  away out of sight and mind.
• From A Critical Condition (Chapter 12 in Hunt. P.
  (ed.) 1966 Stigma The Experience of Disability,
  London Geoffrey Chapman)

3

• Alan Milburn, in the forward to the NSF for Long
  Term Conditions
• This NSF is a further demonstration of the
  priority health ministers attach to improving the
  lives of people living with long-term conditions
  by . . .
• Giving people choice, through services planned
  and delivered around their individual needs
• NSF for Long Term Conditions Quality Requirement
  8 Providing personal care and support
• Aim
• To ensure that people with long-term neurological
  conditions are able to choose where and how they
  live

4
Leeds Centre for Leeds Centre for Integrated
Living

• LCIL Management Committee Mission Statement
• We aim to increase the choices available for
  all disabled people in Leeds, enabling people to
  take control over their own lives. Our services
  are developed by disabled people, for disabled
  people. We actively promote a social model of
  disability approach, challenging the barriers
  that disable us so we can participate in everyday
  life as full and equal citizens

5

• Involving Disabled People
• in Future Strategies
• A report for Leeds City Council 2006
• Prepared By Dr Bill Armer
• Centre for Disability Studies
• The School of Sociology and Social Policy
• University of Leeds
• Available soon on the LCC Website

6
Modernisation Executive
Older Peoples Safety Group Chair Anna Cronin
de Chavez MT Lead - TBA Admin
Short Term Projects (e.g. Resource Centres, Joint
OT Work) James Woodhead Admin Varies
Older Peoples Modernisation Team Chair Mike
Evans\ Chris Reid MT Lead Mick Admin
Rebecca Todd
Disability Modernisation Team Chair Lesley
Smith Paul Langford MT Lead
Mick Admin Barry Bridle
Challenging Age Discrimination Chair Cllr Jim
McKenna MT Lead\Admin ebecca Todd
Short Term Groups (eg Ward 1) Mick/Angela and
various
Older Peoples Mental Health Chair Michelle
Moran MT Lead Jenny Thornton Admin
Promoting Older Active Life Chair Mick Ward MT
Lead\Admin Bronwyn Holden and Kathryn Ingold
Acquired Brain Injury Chair Mick Ward MT Lead
Karen Willcocks -Collins Admin Barry Bridle
Performance Group Not Presently Meeting
Joint Planning and Commissioning Strategy
(Disability) Chair Margaret Bell MT Lead\Admin
Mick
Diagnosis, Treatment and Acute Management Chair
Dr Helen Ford MT Lead Jo Powell Admin
Transport Access Group Chair Cllr Lancaster MT
Lead Mick Admin Barry Bridle
Single /Integrated Assessment Process Chair
Mick MT Lead Vacant Admin Rebecca Todd
Life Long Support Chair Susan Morrell MT Lead
Angela Admin Barry Bridle
Rehabilitation and Reintegration Chair\MT Lead
Elaine Pickles Admin Barry Bridle
Low Vision Services Committee Chair\MT Lead
Mick Ward Admin Barry Bridle
General Hospital Care (Older People and
Neurological conditions) Chair\MT Lead Sally
Mansfield Admin
Deafblind working group Chair\MT Lead Mick
Ward Admin Barry Bridle
Modernisation of Deaf Services Chair\MT Lead
Mick Ward Admin Barry Bridle

• Leeds Disability Modernisation Team
  structure

Intermediate Tier/LTC (CDM) Chair\MT Lead Elaine
Pickles Admin Rebecca Todd
Neurology - Stroke Services Chair George
McIntyre MT Lead Jo Powell Admin
Neurology - MS Services Chair Megan
Rowlands MT Lead Angela Admin West PCT
Falls Prevention Chair\MT Lead Amanda
Douglas Admin Rebecca\Sallys PA
Housing Strategy Chair Bridget Emery MT Lead
Dave Gibson Admin Barry Bridle
Medicines Management Chair\MT Lead Angela
Admin Barry Bridle
CROSS CUTTING STREAMS
CONSULTATION GROUPS
Local Area Agreement - Older People Themes MT
Link Kathryn Ingold and Bronwen Holden
Employment Block MT Link Mick
Continuing Care MT Link Elaine
Making Leeds Better (Long Term Conditions
Group) MT Link Mick Ward
Other Modernisation Teams eg Mental Health MT
Link Mick and Various
Older Peoples Champions Group Chair\MT Lead
Angela Admin Rebecca Todd
Older Peoples Ref Group MT Lead Angela
Mkandla Admin LIP
Disability Ref Group MT Lead Angela
Mkandla Admin LIP
Palliative Care MT Link Elaine Pickles
7

• Direct Payments legislation
• Community Care (Direct Payments Act) 1996
• Direct payments can be made to disabled people
  aged 18-65 (later extended to people over 65) who
  are willing and able to consent to this.
• Carers and Disabled Children Act 2000
• Direct Payments also made available to the
  parents of disabled children and to carers
• The Health and Social Care Act 2000
• Local authorities are required to offer Direct
  Payments to all eligible individuals.

8

• ASIST
• (Actively Seeking Independence Support Team)
• Independent Living Advisers
• Provide information about all aspects of Direct
  Payments.
• Provide assistance to advertise, recruit and
  develop good relationships with workers.
• Provide information and advice about training and
  Health Safety.
• Provide ongoing support whenever required.

9

• ASIST
• (Actively Seeking Independence Support Team)
• Finance Support Workers
• Provide help to set up and maintain
  straightforward records (paper and/or electronic
  as preferred by the Direct Payments recipient)
• Provide help to open a bank account and manage
  funding
• Provide practical assistance to prepare for
  payroll
• Teach people to set up and operate their own
  financial systems independently if they want to

10

• In my mind, you cant split personal care
  into separate components - personal care, health
  care, social care. Its a holistic approach . .
  . it all contributes to the well-being and health
  of the whole person.
• Direct Payments user quoted in J Leece J Bornat
  (eds) Developments in Direct Payments 2006

11

• Direct Payments can not
• be made for health services
• It has been suggested that we should extend
  the principle of individual budgets and direct
  payments to the NHS. We do not propose to do so,
  since we believe this would compromise the
  founding principle of the NHS that care should be
  free at the point of need. Social care operates
  on a different basis and has always included
  means testing and the principles of self and
  co-payment for services.
• Section 4.39 Chapter 4 Better access to
  community services, Our Health, Our Care, Our
  Say a new direction for community services. DoH
  2006.

12

• Summary
• Implementing the NSF for Long Term Conditions
  gives service providers the opportunity to work
  in partnership with disabled people.
• Together we can turn ideals such as meaningful
  involvement and choice and control for people
  who use our services into reality.
• In the crucial area of joint packages of care
  that include Direct Payments, because of the
  restrictions still in place, there is a long way
  to go.