Measuring social participation

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Measuring social participation

• Ros Madden
• Australian Institute of Health and Welfare

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The age of measurement

• Participation
• How do we measure something so complex and
  important?
• But if we dont try, how is it valued in
  measurement systems?
• First define and describe

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Developing defintions
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A new approach
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ICF Interaction of Concepts
Body function structure (Impairment)
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Definitions

• Participation is involvement in a life situation.
• Environmental factors make up the physical,
  social and attitudinal environment in which
  people live and conduct their lives.
• (These are either barriers to or facilitators of
  the persons functioning.)

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Activities and Participation
Learning and applying knowledge
General tasks and demands
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Activities and Participation
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Environmental factors
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Disability and participation
UN Standard Rules
human rights
ICF
Universal design
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Australian measures for Activities and
Participation
difficulty (ICF generic qualifier)
Activities
need for assistance (AIHW developed qualifier)
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Participation qualifiers developed by AIHW

• Review of quality of life literature
• Universal and holistic life domains
• Perspectives (objective and subjective)
• Autonomy and choice
• Person/environment interaction

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An objective measure of participation
Extent of participation is measured using the
scale
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Measuring participation using the persons
perspective
Satisfaction with participation is measured using
the scale
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The use of ICF in Australia

• National data dictionaries
• Data items in national data collections
• ABS disability, ageing and carers survey
• Census in 2006
• Disability support services
• Medical indemnity
• Childrens services
• Rehabilitation, athletics

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Topics for indicators
Welfare areas
Healthyliving
Air, food water
Shelter housing
Health
Safety
Autonomy participation
Education knowledge
Economic resources security
Labour force
Transport communication
Recreation leisure
Family formation functioning
Socialcohesion
Social support networks
Trust
Community civic engagement
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Measuring activity and participation in Australia

• ICF participation domains used as a framework for
  reporting outcomes (AIHW biennial reports to
  Parliament)
• education and school
• employment
• Income
• social activities
• community living

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Difficulty in life areas 000 people (min. no.
aged under 65)
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Needing assistance in life areas 000 people
(min no. aged under 65)
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Assistance needs not fully met (min)
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Where to next?
national data standards implemented
take up of participation and environmental
factors
better information on access to specialist and
generic services
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Thank you

• For more information
• www.aihw.gov.au
• For publications
• http//www.aihw.gov.au/disability/publications.cfm