Academic Practice Partnerships

1
Academic Practice Partnerships

• Kerry Silvey Nan Newell
• Oregon Public Health Genetics Program
• April 28, 2008

2
Overview

• Partnership with Oregon Health and Science
  University (OHSU)
• Education Training
• At universities
• For public health
• Investigations and publications with academic
  partners
• Genetic privacy for Oregonians
• Advisory committee membership

3
Partnership with OHSU

• Genetics Program is a formal partnership
• PH Office of Family Health and OHSU Center for
  Children and Youth with Special Health Needs
• We contract with faculty member Kerry Silvey part
  time

4
Education and Training at Universities

• Combined MPH program Collaboration among
• OHSU
• Oregon State Univ
• Portland State Univ
• Mentoring students/ interns
• Presentations and posters at annual MPH symposia

5
Education and Training at Universities

• Genetics grand rounds at OHSU
• Telemedicine to improve access to genetic
  services
• Kaiser family history project
• Talks at other Oregon institutions
• Western Oregon University
• Linfield College
• University of Portland
• Pacific University

6
Education and Training for Public Health Workforce

• Genetics, environment, and cancer risk
• Dr. Joanna Cain, Director of Womens Health, OHSU

7
Education and Training for Public Health Workforce

• Obesity, nutrition, and nutrigenomics
• Dr. Karen Edwards, Director of the Center for
  Genomics and Public Health, U. of Washington

8
Education and Training for Public Health Workforce

• Colon cancer and family history
• Barbara Pettersen, Genetic Counseling of Central
  Oregon

9
Education and Training for Public Health Workforce

• How do the American people feel about a biobank?
• Portland one of five cities included in public
  assessment using town hall meetings
• Dr. Kathy Hudson, Director of the Genetics and
  Public Policy Center, Johns Hopkins University

10
Education and Training for Public Health Workforce

• Fetal Alcohol Syndrome
• the Genetics of Alcoholism
• September 2004
• Kerry Silvey - Public Health Genetics Specialist
• Kiley Ariail - State Genetics Program
  Coordinator

11
Investigations with Academic Partners

• With an MD/MPH intern from OHSU, FQHC study
  investigating family history collection

12
Investigations with Academic Partners

• Kaiser Permanente
• Qualitative study on how primary care providers
  collect and use family history information in the
  Kaiser system.
• Providers also evaluated the CDC Family
  HealthwareTM tool
• Manuscript in preparation
• University of Washington
• Using PRAMS, determine public awareness of
  prenatal testing
• Are there differences in awareness between rural
  and urban areas?
• Preliminary results presented at the Public
  Health Genomics Summit in Atlanta, January 2008

13
Investigations with Academic Partners

• OHSU
• Genetics and telemedicine project Brought
  together a physician, a nurse, a genetic
  counselor, and a nutritionist to review 23
  potential rural genetic cases using telemedicine
• Genetics Program contracted for a literature
  review Use of family history and modifiable risk
  factors to reduce the incidence of chronic
  diseases

14
Investigations with Academic Partners

• OHSU, cont
• A Model Framework for Integrating Genomics into
  Public Health Programs
• Creation of a genomics integration model
  framework for public health programs based on the
  Stages of Change model of individual behavior
  change. The model serves as a guide to program
  planning and evaluation.
• Results presented at the Public Health Genomics
  Summit in Atlanta, January 2008. Manuscript in
  preparation.

15
OCTRI Grant Application

• Oregon Clinical Translational and Research
  Institute (OHSU and Kaiser)
• To study family history practice and use of
  informatics in medically underserved patient
  populations.
• Population Federally Qualified Health Centers
  (FQHCs) in the Oregon Community Health
  Information Network (OCHIN).
• Will identify salient themes, clinician
  variability, and consensus relating to family
  history and clinical decision support.

16
Genetic Privacy for Oregonians

• Oregon passed a genetic privacy law in 1995
• Mandated an advisory committee to assess the
  implementation and propose updates as needed
• Members include people from OHSU, PSU

17
Genetic Privacy for Oregonians

• Educate IRBs

18
Genetic Privacy for Oregonians

• Report to legislature every other year

19
Genetic Privacy for Oregonians

• Develop fact sheets for researchers and the public

20
Advisory Committee Membership with Academic
Partners

• Breast Cancer Prevention
• Colorectal Cancer Prevention
• Oregon Diabetes Coalition
• Oregon Newborn Screening Program
• Western States Genetic Services Collaborative
• Newborn Screening for Cystic Fibrosis
• Oregon Medicaid Genetic Services
• Genetic Privacy and Research

21
Conclusion

• Our academic partnerships have been very
  productive.
• Partnerships have brought multiple organizations
  together to leverage resources and provide
  diversity.
• We have made progress on
• Understanding how family history is used in the
  clinic
• Helping clinicians and researchers in navigating
  the Genetic Privacy Law
• Bringing awareness of how genomics fits into
  day-to-day public health
• Understanding how genetic and prenatal
  information is used in rural areas