PowerPointpresentasjon

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Home Mechanical Ventilation In Norway
Ove Fondenes Norwegian Centre for Home
Mechanical Ventilation University Hospital of
Bergen
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Contents

• Epidemiology of HMV in Norway
• Description
• Challenges
• Norwegian centre for home mechanical ventilation
• Organisation
• Tasks

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University Hospital of Bergen
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Norwegian centre for Home Mechanical Ventilation
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Prevalence of HMV worldwide
Prevalence per 100 000 population
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HMV Trends last decade

• Increasing number of patients
• Increasing number of children
• Non invasive ventilation dominating treatment
  modality
• Neuromuscular diseases and chest wall
  deformities. COPD less frequently

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Challenges in HMV
SLOWLY PROGRESSIVE DISEASE
RAPIDLY PROGRESSIVE DISEASE
ETHICS
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Challenges in HMV
Risk of treatment failure
Self- reliancy
100
RESOURCES
0
hours
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Ventilator dependency (hours)
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Challenges in HMV
PROFICIENCY
15 20 pr. 100 000
10 15
5 - 10
lt 5
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Tasks of the Centre

• Develop and maintain competence in the field of
  HMV in different regions of the country
  concerning
• Diagnostic and therapeutic procedures
• Adults and children
• Courses, conferences, seminars,
  in-hospital training, educational material
• Graduate / post- graduate
• Patient / Patient caregivers

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Teaching programme - 3 levels Basic
Intermediate - Advanced
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Postgraduate course 7- 9/4 - 2003
Respirasjonssvikt og hjemmerespirator behandling
hos barn og voksne
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Tasks of the Centre

• Patient Registry - Establishment and quality
  assurance

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Patient Registry Questionnaire
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Tasks of the Centre

• Patient Registry - Establishment and quality
  assurance
• Research and establishment of relations with the
  medical science community and medical
  associations abroad  
• Patient registry /diagnostic and therapeutic
  equipment / respiratory care techniques

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Tasks of the Centre

• Patient Registry - Establishment and quality
  assurance
• Research and establishment of relations with the
  medical science community and medical
  associations abroad  
• Counselling / guidance

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Tasks of the Centre

• Patient Registry - Establishment and quality
  assurance
• Research and establishment of relations with the
  medical science community and medical
  associations abroad  
• Counselling / guidance
• Establish and adapt national guidelines in
  accordance with existing evidence based
  international guidelines

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Guidelines - background material -

• National sources
• Departement of health - utredningsserie 2-92
• National Guidelines
• Norwegian society of pulmonary medicine
• Guidelines in HMV 94
• Making Guidelines How to do, Norwegian Board of
  health - 99
• Routines and provisions - compiled autumn 2002 -
  NKH
• International sources
• Consensus Conference report, Chest -99

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Perfomance measurements

• Increasing number of patients
• Equal opportunity to services
• Standard of care
• Improved proficiency of health personnel and care
  givers
• User satisfaction
• QOL
• Research

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Organisation

• In - hospital
• Nationally

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The national network
Doctors Nurses Physiotherapists
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The national network
North
Middle
West
East
South
19 part- time co - workers
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Co-worker assignments

• Survey of regional resources
• Knowledge in the field of HMV
• Material
• Leadership commitment
• Spread information
• Ensuring quality of patient registry locally
• Teaching / training
• Organizing HMV facilities

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Networking

• Reports
• Telephone
• E- mail
• Web site
• In hospital training
• Conferences
• Regional meetings
• Bergen - annually
• Courses
• Equipment
• Pre-made teaching aids
• Litterature services

Counselling
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Increased availability Improved care
Expertise by networking
Nasjonalt kompetansesenter for
Hjemmerespiratorbehandling Haukeland University
Hospital PHONE [phone] Fax [phone]
81 e-mail hjemmerespirator_at_helse-bergen.no