Building a Perinatal Data System in Hawaii

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Building a Perinatal Data System in Hawaii

• Cheryl B. Prince, Ph.D.
• MCH Epidemiologist
• CDC/Hawaii Department of Health

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The MCH program in Hawaii, like many other MCH
programs used Program data rather than population
data to describe the women, infants, and children
they served.
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Advantages of MCH Program Data

• Data relatively easy to collect
• Data collected from all clients
• Describes MCH clients being served

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Advantages of MCH Program Data

• Variables familiar to program staff
• Used to evaluate new programs
• Used to justify existing programs

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Disadvantages of MCH Program Data

• Omit families NOT served by MCH
• Data may be incomplete or missing
• Variables not affected by Program may NOT be
  included
• May NOT adequately assess impact of Program on
  population

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Perinatal Data Issues

• Vital statistics office queried annually for MCH
  reports
• Multiple requests were burdensome for vital
  statistics staff

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Perinatal Data Issues

• Vital statistics staff only collect data, they
  dont generate it
• Quality of data did NOT improve with EBC

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Perinatal Data System Building

• MCH statisticians receive raw perinatal data file
• MCH requests for Vital Statistics reports
  significantly decreased

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Perinatal Data System Building

• Birth certificate data analysis takes place at
  the Program level
• Increased Program interest in improving quality
  of data

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• Building a
• Perinatal Data System
• requires a
• collaborative effort

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Collaborations between

• MCH and Vital Statistics
• MCH and University of Hawaii
• MCH and birthing facilities

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Results of Collaborations

• Title V, SSDI funds used to improve data quality
• Hawaii qualifies for multiple federal grants
• Public/private partnership developed to improve
  data quality

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Perinatal Data Grants

• Healthy Start Initiative
• Pregnancy Risk Assessment Monitoring System
  (PRAMS)
• Data Utilization and Enhancement

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Malama A Hoopili Pono

• HRSA Healthy Start Initiative Project
• Reduce disparities in infant mortality

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Malama A Hoopili Pono

• Hawaiian, Filipina, Pacific Islanders
• Community based on island of Hawaii (Big Island)
• Culturally relevant prenatal and infant care and
  health education

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PRAMS Hawaii

• Objective Assess perinatal health and
  socio-economic risks of Hawaiian/Part Hawaiian
  families.
• Stratification
• Hawaiian/Part Hawaiian vs. Other
• Urban Oahu vs. Rural Oahu vs. Neighbor Islands

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PRAMS Hawaii (continued)

• Response Rates
• June Dec. 1999 73
• Jan. Dec. 2000 79
• Jan. May 2001 79

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Data Utilization Enhancement

• MCH working with birthing facilities and hospital
  discharge data agency
• Building hospital-based perinatal data systems
• Improving Electronic Birth Certificate reporting
  to Department of Health

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Profile of Data Needs and Priorities

• The primary data need in Hawaii is to collect
  information that relates to the Title V
  objectives paying special attention to the
  relevant state specific objectives.

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Building a perinatal data system in Hawaii
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NAPHSIS Conference 2003
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MAHALO! (Thank You)