The Personal Health Record

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The Personal Health Record

• Foundation and Definition
• Jill Burrington-Brown, MS, RHIA, FAHIMA
• American Health Information Management
  Association
• Jill.Burrington-Brown_at_AHIMA.org

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July, 2003 Connecting for Health

• The Personal Health Working Group fielded an
  online survey on consumer attitudes toward a
  Personal Health Record (PHR).

• 71 believe PHR would improve the quality of
  healthcare
• 69 would use PHR on-line
• People with greater healthcare needs report
  highest interest

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AHIMA produces www.MyPHR.com

• Established in October, 2003
• As a public service
• Provides education and PHR forms free to the
  public

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July, 2004 Connecting For Health

• PUBLISHED
• Connecting Americans to their Healthcare
• Achieving Electronic Connectivity in Healthcare
• www.connectingforhealth.org

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AHIMAs eHIM Workgroup The Role of the
PHR in the EHR

• Workgroup Convened January, 2005
• Worked through March, 2005
• Formulate a definition of the EHR
• Describe industry activities and models
• Describe common data elements
• Identify emerging HIM Roles
• Recommend methods of consumer education

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DEFINITION

• The Personal Health Record (PHR) is an
  electronic, lifelong resource of health
  information needed by individuals to make health
  decisions.  Individuals own and manage the
  information in the PHR, which comes from
  healthcare providers and the individual.  The PHR
  is maintained in a secure and private
  environment, with the individual determining
  rights of access.  The PHR does not replace the
  legal record of any provider.

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Types of PHRs

• Paper based
• PC-based
• Web-based
• Hybrid Desktop/Web-based
• Portable Devices

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AHIMAs Consumer Education Program

• March,2005 AHIMA develops Community Training
  for the PHR, a public education presentation kit.
• Your Personal Health Information Why its
  important and how to access, manage, and protect
  it.
• Train the Trainer Model 450 presenters, 250
  presentations in 2006.

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Health Level 7 (HL7)

• HL7 Workgroup on the PHR
• PHR Functionality
• Interoperability
• How it links to the EHR

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Electronic Health Data Exchanges Patient and
Consumer Principles for System Design

• 7 Patient and Consumer Principles
• Individuals should be able to access their health
  and medical data
• Individuals should be able to decide when their
  health data are shared and with whom.
• Individuals should be able to designate someone
  else to access and control their records
• Individuals should receive easily understood
  information
• Individuals should be able to review who has had
  access to their health data
• Health Data Exchanges must protect integrity,
  security, and privacy of and individuals
  information
• Independent bodies, accountable to the public,
  should oversee the Health Data Exchanges.
• Markle Foundation October 2005
• http//www.markle.org/downloadable_assets/101105_s
  urvey_summary.pdf

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AHIC Consumer Empowerment Workgroup

• Oct. 2005 Long Term (2-3 Year) Goals
• Gain widespread adoption of a personal health
  record that is
• easy to use
• portable
• longitudinal
• affordable, and
• consumer-centered

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NCVHS Report and Recommendations

• February, 2006
• Personal Health Records and Personal Health
  Record Systems
• 20 recommendations in Privacy, Security,
  Interoperability, Federal Roles, and Advancing
  Research

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Summary PHR Activities

• Activity and interest at many levels
• Private (CFH and Markle)
• Government (NCVHS, AHIC)
• Professional (AHIMA)
• Issues Education of public and clinicians,
  ownership, control, content, standards and
  interoperability.

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References

• HL7 www.hl7.org
• Connecting for Health www.connectingforhealth.or
  g
• AHIC http//www.hhs.gov/healthit/ahic.html
• AHIC Breakthrough Projects www.hhs.gov/healthit/b
  reakthrough.html

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More Resources

• Katrina Health Project www.katrinahealth.org
• AHIMAs PHR work
• Role of the Personal Health Record in the EHR
• http//library.ahima.org/xpedio/groups/public/docu
  ments/ahima/bok1_027539.hcsp?dDocNamebok1_027539