ACTIVITIES OF PATIENTS LEADERS NETWORK IN AFRICAN REGION

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9th International iCSi Conference Budapest 2008
ACTIVITIES OF PATIENTS LEADERS NETWORK IN
AFRICAN REGION
AIA REPORT 2007 - 2008
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African Infertility Alliance

• African Infertility Alliance (AIA) patients
  leaders community has kept close relations
  through the e-newsletter. It started
  in 2007 consisting of quarterly news from Uganda,
  Kenya, Zimbabwe, Israel, South Africa and
  Nigeria. Issues I to IV came out on 12th
  January, 12th April, 12th August and 12th
  December 2007.
• The news can also be found in the International
  Consumer Support for Infertility www.icsi.ws /
  Africa Region
• Members have an interactive communication network
  through emails and telephone.

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Contd

• AIA activities have rolled to other countries in
  Africa. The countries that have expressed
  interest in being part of AIA include Tanzania,
  Rwanda, Burundi, (East and Central Africa).
• AIA has started communications and learning more
  about infertility in those countries. Guidelines
  on how to start patients organizations have
  started.

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Participation in the online survey

• AIA member countries participated in the survey
  for patients voices. The online survey was
  conducted by Joyce Fertility Support Centre
  Uganda. Results of the survey were presented in
  the Arusha Expert Meeting for Low Cost
  Infertility treatment for Developing Countries.

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Patients organizations that participated in the
online survey

• CHEN Fertility Association Israel Mrs. Ofra
  Balaban
• Hope Fertility Support Centre Kenya Mrs. Sarah
  Muthange Ndwiga
• Fertility Network Zimbabwe Mrs. Evelyn Madziba
• Joyce Fertility Support Centre Uganda Mrs. Rita
  Sembuya
• Concebir Argentina - Ms. Estella Chardon and Ms.
  Maria Isabel de Rolando

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2008 Projects for AIA

• 2008, AIA would like to call for more members
  from the region to come on board.
• The alliance is strongly involved in the Low Cost
  Infertility treatment. This calls for all
  developing countries to have patients
  representation in the project. For that matter,
  we encourage every representative of developing
  countries to register their interest and sign up
  for participation in the low cost infertility
  treatment for developing countries.
• It is suggested by some members that a regional
  meeting take place once a year in Africa.

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Point of information

• Joyce Fertility Support Centre website is
  undergoing a refurbishment currently it is not
  online until end of March 2008. All information
  about AIA will be found in iCSi regional
  alliances.

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Acknowledgment

• All members for their continued support in
  sharing and guiding on activities in AIA.
• iCSi for its continued support in the education,
  awareness and trainings where patient leaders are
  invited in the iCSi symposiums. These activities
  facilitate skills and enabling environments in
  the work of the subgroup.

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Mrs. Rita Sembuya N, Chair African Infertility
Alliance 32 Windsor Crescent Kololo, off Babiiha
Avenue, next Athina Club P.O. Box 28095 Kampala
-Uganda Tel [phone] Cell phone 256
(774) 100, 873 Email joycefertility_at_hotmail.com
sembuyar_at_yahoo.com