SEER Case Consolidation Study: Design

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SEER Case Consolidation StudyDesign Objective

• NAACCR 2009 Annual Conference
• San Diego, CA
• May 18, 2009
• Lois A. Dickie, CTR
• Public Health Analyst
• NCI SEER

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Case Consolidation in a Nutshell

• Merging multiple documents
• Best information

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Current Consolidation Status

• Concept is consistent across SEER
• Processes differ
• Variations in registry software

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Why Case Consolidation?

• More documents
• Evolution of medicine patient care
• Technology
• Educated patients
• Registries requesting guidelines
• NAACCR Consolidation of Demographic Data Items

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The Study Objective

• Probability of developing business rules
  guidelines.
• Dictionary of Standard Terms

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Study Design Challenges

• Evaluate 17 registries
• multiple data management systems
• individual processes
• How to evaluate information

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The Design Overview

• Evaluate consolidation processes business rules
  by
• Questionnaire
• Case scenarios

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Overview contd

• Web-based software tool
• Data analysis
• Recommendations

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The Methodology Phase 1- Data Collection

• Editing staff will consolidate provide
  rationales for changes
• Six sites

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Phase 1- Data Collection

• Data fields are
• Site/laterality
• Histology/behavior/grade
• CS codes
• Treatment date started

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Phase 2- Process Assessment

• Questionnaire
• Editing manager
• Process
• Data sources
• Format

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Phase 3- Data Analysis

• Questionnaire
• Study results

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Phase 3- Results Recommendations

• Guidelines
• Business rules
• Dictionary of standard terminology

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When?

• 2010

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Questions?

• dickielo_at_mail.nih.gov

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Case Consolidation Math

• 111111