Title: Price and usage variation
 1Price and usage variation
Mark BrookerWFH Public Policy Officer
- Global Forum 
- Montreal - September 27, 2005
2WFH Annual Global Survey
-  6th WFH Global survey 
- Data reported by WFH Member organizations in 
 collaboration with clinicians and health
 officials
- Demographic information on patient population, 
 blood borne infection, access to treatment
 products, health care system, and use and cost of
 factor concentrates
- Other data sources 
- World Bank for population, GDP and health care 
 spending
- OECD for PPP figures 
3WFH Annual Global Survey
- Number of countries in survey 96 
- Percentage of world population covered by 2004 
 survey 85
-   
- Number of people identified with hemophilia A and 
 B 120,812
- Number of people identified with von Willebrand 
 disease 43,334
- Number of people identified with other bleeding 
 disorders 11,384
-   
- Total number of people with bleeding disorders 
 identified 175,530
-  
4WFH Annual Global Survey  product use 
- Usage data caveats 
- Figures are not independently verified  quality 
 varies
- Total annual usage may actually be total annual 
 purchase
- Data may not include all CFCs  some products may 
 be acquired through alternate sources
5WFH Annual Global Survey  product use
- Factor VIII use 
- 49 countries reporting 
- Total reported consumption 
- of factor VIII concentrates in 2004 
- 1,576,859,835 IU
6WFH Annual Global Survey  product use
- Per capita use by GNP 
- Per capita factor VIII usage (GNP per capita 
 above US10,000)
- 5.32 IU 
- Per capita factor VIII usage (GNP between 
 US2000-US10,000)
- 0.75 IU 
- Per capita factor VIII usage (GNP below 
 US2,000)
- 0.08 IU
7WFH Annual Global Survey  product use
- Factor IX use 
- 49 countries reporting 
- Total reported consumption 
- of factor IX concentrates in 2004 
-  236,679,516 IU 
8WFH Annual Global Survey  product use
- Per capita factor IX usage GDP 
- Per capita factor IX usage (GNP above US10,000) 
- 0.72 IU 
- Per capita factor IX usage (GNP between 
 US2000-US10,000)
- 0.13 IU 
- Per capita factor IX usage (GNP below US2,000) 
- 0.02 IU
9WFH Annual Global Survey  prices 
 10WFH Annual Global Survey  prices 
- Prices of 17 products 
- 16 countries buying both factors VIII and IX, at 
 least 3 products, and reporting prices
- Caveats 
- Figures are not independently verified  quality 
 varies
- Different ways of paying (prices from different 
 points in the chain)
- Reported price of CFCs may actually be an 
 arbitrary figure to cover other costs
- Exchange rates  prices reported in local 
 currency  exchange rate from the middle of the
 year
- Volume purchased not known
11WFH Annual Global Survey  prices
- Purchasing Power Parity (PPP) 
-  PPP measures how much a currency can buy in 
 terms of an international measure (usually
 dollars), since goods and services have different
 prices in some countries than in others. PPP
 exchange rates are used in international
 comparisons of standard of living.
- (Source for PPP figures OECD) 
12WFH Annual Global Survey  prices
- Sample price ranges for individual factor VIII 
 products
13WFH Annual Global Survey  prices
- Sample price ranges for individual factor IX 
 products
14WFH Annual Global Survey  prices 
 15WFH Annual Global Survey  prices 
 16WFH Annual Global Survey  prices 
 17WFH Annual Global Survey  prices 
 18WFH Annual Global Survey  prices 
 19Price and usage variation
- Conclusions 
- A broad range of prices paid from 0.25 to about 
 1.75.
- Median prices from 0.60 to 1.00 
- Comparing prices using PPP narrows the range of 
 price differences. But even using PPP, as a
 proportion of per capita income, the cost of
 products is significantly higher in the
 developing world.
-  
20Price and usage variation
- Thank you 
- Dr. Bruce Evatt 
- The volunteers who provide the Global Survey data