Arrangements for Involvement

1
Checklist for CARDIAC NETWORK INVOLVEMENT -WHAT
TO EXPECT

• Invitation to meetings
• Diversity requirement will be considered e.g.
  Access, dietary, language.
• Access to translation and transport services will
  be explained.
• Consideration will be taken when holding meetings
  at times that may be more appropriate for patient
  and public involvement, e.g. before the school
  run, avoid Fridays and respect all religious
  festivals.
• Transport details will be included in any
  invitations to meeting (map, parking availability
  and cost, wheelchair access).
• Invitation letters will inform patients and
  carers if lunch or refreshments are provided.
• Patients and carers will be referred to by
  their name on any agenda items rather than
  patient rep.
• Expense claim forms will be given to patient and
  carers.

• Arrangements for Involvement
• A minimum of 2 places in any formal standings
  groups are open to patient or carer
  representatives. Two people increases
  effectiveness, offering both peer support and
  absence cover.
• Involvement in a maximum number of three groups.
  This reduces the potential of involvement burn
  out.
• Multiple forms of support, including peer support
  from other representatives.
• We use the term carer to mean any family member,
  friend or close one.

2
Checklist for CARDIAC NETWORK INVOLVEMENT -WHAT
TO EXPECT

• During a meeting
• Decision-making processes will be made clear and
  equal weight will be given to patient and carer
  representative members views.
• Patients and carers will be introduced to all
  group members and time will be allocated to
  ensure everyone understands each others remit.
• After a meeting
• Appropriate expenses will be paid.
• Patients and carers will be met and any questions
  answered.
• Patients and carers will be referred to by name
  in the minutes rather than patient rep.

• Before a meeting
• Signage will be used to indicate the location of
  the meeting room.
• Patients and carers will be introduced by name to
  the Chair and the person taking the minutes.
• A code of conduct and protocol will be developed
  to determine how the meetings will run and what
  each others responsibility will be.
• Jargon will be avoided wherever possible.
• Patients and carers will be met before a meeting
  to discuss the minutes and agenda.