Developing and evaluating antistigma programme: Glasgow AntiStigma Partnership

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Developing and evaluating anti-stigma
programme Glasgow Anti-Stigma Partnership

• Lee Knifton
• Neil Quinn
• 11th July 2008

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Glasgow anti-stigma partnership

• Community of practice and learning
• Over 70 partner organisations
• Service user, mental health, community
  development, education, arts, economic
  development and many more..whose problem is
  stigma?

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How we work

• Service user empowerment
• Shared decision making
• active partnership from organisations
• Acknowledging different concepts of mental health
  and wellbeing
• Organised into settings and thematic teams
• Robust research with academic partners,
  publication and learning

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What is stigma?

• Knowledge
• Attitudes
• Discriminatory behaviour
• Self stigma
• Interpersonal (family and community)
• Structural

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Stigmatising beliefs

• Dangerous
• Blame
• Recovery pessimism
• Oddness
• Lack of capability or social contribution
• Unable to maintain relationships
• Weak/pitiful
• Shame
• Contagion

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Is stigma prevalent?

• Broadly positive expressed attitudes in the
  Scottish Public Attitudes Survey (2006)
• But significant public discrimination including
  harassment (Berzins et al 2003)
• High unemployment rates

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What works in addressing stigma

• Combine national, regional and local approaches
• Education messages must be clear, targeted,
  positive and focus upon recovery
• positive personal contact with service users
  leading in campaigning activities emotional
  engagement through narratives
• (Link Phelan 2001, Penn and Martin 1998, Gale
  et al 2004)

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General principles

• Moving from stigma to discrimination
• Moving from top down work to community
  development approaches
• Moving from advertising and media to positive
  contact, empowerment, narratives and engagement
• From negative dont stigmatise messages to
  positive ones
• Involving non-mental health organisations from
  outset - influences scope, scale and
  sustainability of activity

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Aspirations

• 4 lessons a year for each young person
• Peer support in each school
• Multi-media campaigns in workplaces
• Thousands of people taking equality workshops
• The largest mental health arts festival of its
  kind
• Community development with refugees and asylum
  seekers
• Addressing stigma with ethnic minority
  communities -research, community conversation
  workshops, faith leaders, arts events,
  storytelling and empowerment
• Awareness raising with the 6 regional
  universities
• Peer led work with older people
• Awareness raising with mental health
  practitioners and pre-registration students

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Positive Mental Attitudes

• An anti-stigma programme in a low-income area
• Worked in key settings in East Glasgow for 5
  years schools, youth agencies, workplaces,
  mental health services, regeneration, later life,
  asylum seekers
• Evidence in relation to process and impact

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Mosaics

• Research and intervention model with BME
  communities
• Patterns of stigma varied between and within
  communities role of shame and concerns about
  marriage prospects but strong recovery optimism
• Perceived causes as punishment from God, black
  magic, spirits or jinn
• Further evidence that anti-stigma campaigns are
  not always appropriate for minority communities
• Interventions led by communities, which engage
  people directly and use cultural explanations,
  will be more effective

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Mosaics Model

• Arts festivals and large scale events
• Engaging mental health planners and practitioners
  in dialogue with community organisations
• Media and marketing campaign (translated
  leaflets, BME media channels)
• Storytelling project
• Work with faith leaders
• Community Conversation

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Arts festival

• Build upon good practice
• Engage different audiences
• Explore meaning
• Worlds largest mental health arts festival
  film, theatre, music, comedy, literature
• Evaluation with 500 attenders

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Making connections to reduce stigma

• Connecting local, cities, national and
  international
• Connecting agendas - service users,
  practitioners, academics, mainstream
• Connecting tactics - campaigns, education,
  legislation, empowerment
• Connecting across civil rights movements