Gilda's Club

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Gilda's Club

• A Legacy for life

Hong Hui Huang Department of Hematology Ren Ji
Hospital
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• Gilda's Club is a special place where the focus
  is on living with cancer. And where men, women
  and children with any kind of cancer and their
  family members and friends can plan and build
  life-changing emotional and social support.

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Mission of Gilda's Club

• The mission of Gilda's Club is to provide places
  where men, women, and children with cancer and
  their families and friends join with others to
  build social and emotional support as a
  supplement to medical care.

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Mission of Gilda's Club

• free of charge and non-profit,
• offer support and networking groups, lectures,
  workshops and social events in a nonresidential,
  home-like setting,
• Funding is solicited from private individuals,
  corporations, and foundations.

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Gilda Radner
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Gilda Radner

• Gilda's Club is named in memory of comedian
• Gilda Radner died from ovarian cancer in 1989
• Gilda is best known for
• her work on NBC's Saturday Night Live
• her book, It's Always Something, describes her
  life with cancer.

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Joanna Bull
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Joanna Bull

• the founder of Gilda's Club and sits on the Board
  of Directors of Gilda's Club Worldwide
• worked as a cancer psychotherapist during the
  Gilda's illness

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Joanna Bull

• worked to establish free cancer support
  communities
• first at the pioneering Center for the Healing
  Arts in Los Angeles,
• later at The Wellness Community in Santa Monica
  and Redondo Beach, California.
• trained and supervised therapists extensively in
  the concept,
• worked with hundreds of people with cancer and
  their family members on psychosocial issues
  related to cancer.

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Joanna Bull

• the author of Gilda's Club Philosophy and
  Program,
• a frequent lecturer at cancer-related institutes
  and psycho-oncology meetings and conferences
  around the world,
• an advisor to the National Cancer Legislation
  Advisory Committee.

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Where to find Gildas Club

• The first Gilda's Club, including a worldwide
  training center, opened its signature red door in
  New York City in 1995.
• Since that time, additional clubhouses have
  opened in larger cities (Chicago, Detroit,
  London, Montreal, Toronto), smaller cities (Fort
  Lauderdale, Quad Cities, Hackensack, Rochester)
  and several points in between (Nashville, Grand
  Rapids, White Plains).

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Clubhouse

• Although every Gildas Clubhouse is different in
  size and layout, each has specific rooms designed
  for parts of the Gildas Club program.

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Program overview

• Support and Networking Groups
• Weekly Wellness Groups for those living with
  cancer
• Family Groups for family members and friends,
• Monthly Networking Groups on a particular kind of
  cancer or topic of common interest (prostate
  cancer, young adults with cancer, living solo
  with cancer, etc.)

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Program overview

• Lectures and Workshops
• These activities provide opportunities for
  acquiring new skills, tools, information and
  techniques to learn how to live with cancer.
• Typical lecture topics
• stress reduction, nutrition, talking to your
  children about cancer, and managing pain.
• Major workshop areas
• art and other forms of self-expression,
  meditation, exercise and yoga, and cooking.

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Program overview

• Social Activities
• These are among the most popular offerings at
  Gilda's Clubs.
• potluck suppers with music
• karaoke nights
• joke fests
• comedy nights
• major celebrations around special holidays
  (Halloween is a real favorite!)
• Having members and families come together for fun
  creates bonds that enhance other individual and
  group experiences.

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Program overview

• Team Convene
• Facilitated by a staff member, these two-hour
  sessions are requested by a person with cancer or
  family member to create an active support network
  at the time of diagnosis and for any challenging
  situations that may follow (e.g., a hospital stay
  or home recuperation).
• Sessions include all significant friends and
  family in a member's life, who join together to
  provide support for transportation, food
  preparation, childcare, etc.

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Program overview

• Family Focus
• The Family Focus meeting, including anyone a
  member defines as family and facilitated by a
  staff member, is designed to enlist the entire
  family as a resource and help them learn together
  how to live with cancer.
• It seeks to identify and discuss family beliefs
  about cancer, critical family issues, and
  immediate practical problems as well as
  solutions.

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Program overview

• Noogieland
• This is both the Gilda's Club program and play
  area for children, as well as a supplement to the
  core program for parents who are members.
• In a special area of every clubhouse, activities
  are conducted for children impacted by cancer,
  whether directly or by having a family member or
  friend with cancer.
• Most Gilda's Clubs also have several kinds of
  activity for teens, who frequently volunteer in
  many parts of the clubhouse.

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Terminology

• psycotherapy
• recurrence
• anaplastic astrocytoma
• ovarian cancer
• advanced cervical cancer
• non-hodgkins lymphoma
• Memorial Sloan-Kettering Cancer Center
• needle aspiration

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Terminology

• radiation
• chemotherapy
• cranioplasty
• PAP smear
• Temodar(TM) (temozolomide)
• Carboplatin
• Taxol
• anti-angiogenesis

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