Partnering to Achieve Health Reform

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Partnering to Achieve Health Reform

• Welcome
• Overview of Presentation
• The RI Framework
• Data, Policy Advocacy
• System of Continuous Feedback
• Application in your state
• How you can reach us

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Partnering to Achieve Health Reform
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Partnering to Achieve Health Reform

• Health Care in Rhode Island
• Universal Newborn Screening
• Hospitals and Specialty Services
• Comprehensive Medicaid Program
• 3 Major Health Plans
• RIte Care/RIte Share

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Partnering to Achieve Health Reform

• Health Care in Rhode Island
• High Rates of Insured Children
• Medical Home Model
• Medical Care for CYSHCNs
• CEDARR Family Centers

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Partnering to Achieve Health Reform

• The RI you may not know
• 6th highest prevalence of CYSHCN
• Early Intervention and Special Education
• Facing a budget deficit of 500 Million
• Immigration
• Languages
• Second highest unemployment rate in US
• Fragmented government structure

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Partnering to Achieve Health Reform

• Family Voices DOH Partnership
• RIPIN
• Family Voices/F2F Health Information Center
• PTIC PIRC
• RIDOH Office of Special Needs
• Needs Assessment
• Coordinated System of Care

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Partnering to Achieve Health Reform
Coordinated System of Care for CYSHCN and their
families
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Partnering to Achieve Health Reform

• What we know about CYSHCN
• Family Stories
• National Survey of CYSHCN
• Special Education (Part C Part B)
• Family Voices
• Family to Family Health Information Center
• RIPIN Contacts
• Youth Behavior Risk Survey
• Pediatric Practice Enhancement Project

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Partnering to Achieve Health Reform

• Policy Forums
• RI Specific
• Leadership Roundtable for CYSHCN
• Family Voices Leadership Team
• RIPIN Policy Team
• Global Waiver Taskforce
• HealthRIght
• National Groups
• American Academy of Pediatrics
• Family Voices
• AMCHP

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Partnering to Achieve Health Reform

• Family Voices Leadership Team
• Family Voices of RI/F2FHIC
• Rhode Island Parent Information Network
• RI Department of Health (Title V)
• RI Department of Human Services (Medicaid)
• RI Department of Education
• Neighborhood Health Plan of RI
• Hasbro Childrens Hospital
• American Academy of Pediatrics
• Autism Project of RI
• Paul V. Sherlock Center on Disabilities (UCED)
• Providence Center (Behavioral Health)

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Partnering to Achieve Health Reform

• Family Voices Leadership Team
• Mission Vision
• Composition
• Meeting Frequency
• Building partnerships
• Networking
• Strategizing
• Public policy initiatives (unified voice)

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Partnering to Achieve Health Reform

• RIPIN Policy Team
• Purpose
• Building family leaders
• Learning by doing
• Responding to legislative initiatives
• Developing policy recommendations
• Composition
• Meeting Frequency

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Partnering to Achieve Health Reform

• Advocacy/Education
• Family Voices
• Legislative Testimony
• Letter writing technical assistance
• RI F2FHIC News/Alerts list serve

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Partnering to Achieve Health Reform

• Leadership Development
• Family Voices Leadership Guide
• Community Health Workers
• Family Liaison Worker Training
• Youth Leadership Initiatives

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Partnering to Achieve Health Reform

• Data, Policy Advocacy in Practice
• CEDARR RIs Care Coordination System
• Managed Care for CYSHCNs
• Behavioral Health
• Medicaid Global Waiver

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Partnering to Achieve Health Reform

• Dawn Wardyga, Director, Health Public Policy
• RI Parent Information Network
• 175 Main Street, Pawtucket, RI
• Phone [phone]
• Email familyvoices_at_ripin.org
• Deborah Garneau, OSHCN Director
• RI Department of Health
• 3 Capitol Hill, Room 302, Providence, RI
• Phone [phone]
• Email deborah.garneau_at_health.ri.gov