Welcome

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You Me

• Affirm
• Ah ha!
• Squirm
• Disagree

Who You Are? Experts in the Room About me!
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Transition to Adulthood
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Growing Up Ready to LIVE!
Health Wellness Humor
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(No Transcript)
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Health Impacts All Aspects of Life

• Success in the classroom, within the community,
  and on the job requires that young people are
  healthy.
• To stay healthy, young people need an
  understanding of their health and to participate
  in their health care decisions.

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• What would you think
• a group of successful
• adults with disabilities
• would say is the most
• important factor
• that assisted them
• in being successful?

6 Choices
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FACTORS ASSOCIATED WITH RESILIENCE for youth
with disabilities Which is MOST important?

• Self-perception as not handicapped
• Involvement with household chores
• Having a network of friends
• Having non-disabled and disabled friends
• Family and peer support
• Parental support w/out over protectiveness
• Source Weiner, 1992

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FACTORS ASSOCIATED WITH RESILIENCE for youth
with disabilities Which is MOST important?

• Self-perception as not handicapped
• Involvement with household chores
• Having a network of friends
• Having non-disabled and disabled friends
• Family and peer support
• Parental support w/out over protectiveness
• Source Weiner, 1992

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Family

• 
  Aspirations
• Expectations
• Aspirations? Youth (Opportunity to Try)
• Expectations?Adults (Raising the bar)
• HEALTHY - How to stay well for longer periods

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Youth With Disabilities Stated Needs for Success
in Adulthood

• PRIORITIES
• Career development (develop skills for a job and
  how to find out about jobs they would enjoy)
• Independent living skills
• Finding quality medical care (paying for it USA)
  
  
• Legal rights
• Protect themselves from crime (USA)
• Obtain financing for school (USA)

SOURCE Point of Departure, a PACER Center
publication Fall, 1996
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Youth are Talking Are we listening?

• Survey - 1300 YOUTH with SHCN / disabilities
• Main concerns for health
• What to do in an emergency,
• Learning to stay healthy
• How to get health insurance,
• What could happen if condition
• gets worse.
• SOURCE Joint survey - Minnesota Title V CSHCN
  Program and the PACER Center, 1995
• SOURCE National Youth Leadership Network
  Survey-2001
• 300 youth leaders disabilities

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Why Do People Work?
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Outcome Realities

• Nearly 40 of youth with SHCN cannot identify a
  primary care physician
• 20 consider their specialist to be their
  regular physician
• Primary health concerns are not being met
• Fewer work opportunities, lower high school grad
  rates and increased drop out from college
• YSHCN are 3 X more likely to live on income lt
  15,000

CHOICES Survey, 1997 NOD/Harris Poll, 2000 KY
TEACH, 2002
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Hmmmm. Reactions? Discussion First
thoughts?
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Health Transition
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• Disability is
• a natural part of the human experience and in
  no way diminishes the right of individuals to
  participate in
• or contribute to society.

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CORE National Performance Measures

• Transition
• 1. Family
• 2. Screening
• 3. Medical Home
• 4. Health Insurance
• 5. Community
• 6. Transition

• Youth Involvement
• Secondary Disabilities
• Peds to Adult
• Extend Dependent Coverage
• Entitlement to Eligibility
• 6. Inclusion in Community

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Screening

• SECONDARY
  DISABILITIES
• -
  Prevention/Monitor
• - Mental Health
• - High Risk
  Behaviors
• AGING DETERIORATION
• - Info long-term effects (wear tear Rx,
  health cx)
• - New disability issues adjustments

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Screen for Life Areas

• How does health affect
• Employment
• Leisure, Recreation
• Community transportation, housing, activities
• Higher Education or Training

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Screen for All Health Needs

• Hygiene (look good, feel good, smell good)
• Nutrition (Stamina, Bowel Management, obesity,
  etc.)
• Exercise (fitness and stamina)
• Sexuality Issues (masturbation, STIs, GLBT)
• OB-GYN (Routine care, Birth Control, Rape)
• Mental Health (genetic, situational)
• Routine (Immunizations, Blood-work, Vision, etc.)

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Health Insurance
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Transition Insurance
NO HEALTH INSURANCE 40 college graduates
(first year after grad) 50 HS grads who dont
go to college 40 age 1929, uninsured during
the year 2x rate for adults ages 30-64
Source Commonwealth, 2003, 2005
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Extended Coverage Family Plan
1. Adult Disabled Dependent Care (40 states)
Incapable of self-sustaining employment by reason
of mental or physical handicap, as certified by
the child's physician on a form provided by the
insurer, hospital or medical service corporation
or health care center 2. Adult, childless
continued on Family Plan Increasing age limit
to 25-30 CO, CT, DE, ID, IN, IL, ME, MD, MA,
MI, MT, NH, NJ, NM, OR, PA, RI, SD, TX, VT, VA,
WA, WV
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• TICKET TO WORK
• http//www.socialsecurity.gov/work/aboutticket.ht
  ml
• Employment Network (EN) of their choice to obtain
  employment services, vocational rehabilitation
  services, or other support services to help the
  beneficiary find and maintain employment
• MEDICARE (SSDI)
• Premium-free coverage for 4.5 years beyond the
  current limit for disability beneficiaries who
  work.
• Medicaid (SSI)
• Most States have the option of providing Medicaid
  coverage to more people between the ages of 16-64
  with disabilities who work.

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This bottle of Natural Spring Water is
provided as a service for our guest. If
consumed, 5.25 will be billed to your room.

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Case Study
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Health Affects Everything!

• Joes Story
• Great job
• Excellent training
• Own apartment
• Good social life
• Then what.???

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Assessing Health in TransitionEmployment

• Does Joes health condition dictate certain work
  conditions?
• Will Joes medication affect his job duties?
• Should he disclose his health condition to the
  employer?
• Does his health dictate hours of work?

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Post Secondary Education

• Does Joe need to take his medication while in
  class or at work?
• How will it affect his performance?
• Will Joe need accommodations in his schedule for
  medical treatments and/or appointments?

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Home Living

• Does Joe .
• understand his seizure disorder?
• carry his own emergency medical information?
• understand the side effects of his medication?
• have an emergency plan?
• have health insurance?

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Community Life

• Does Joe ..
• have an adult health care practitioner?
• know how to communicate his health care needs?
• know when, how and where to fill a prescription?
• know how to travel to the doctor or drugstore?
  Does he have transportation?

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Leisure-Recreation

• Does Joe understand the effects of recreational
  drugs or alcohol on his health and seizure
  disorder?
• Will his medication or health condition affect
  his choice of activities?

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Using the IEP for Health Transition

• Goal
• I will learn about my seizure disorder and my
  health needs to live more safely in the
  community.
• Objective
• I will write a report for social studies on
  seizure disorders.
• I will learn three side effects of my medication

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Using the IEP for Health Transition

• Objective
• I will develop an emergency plan with my
  physician and present it to my case manager.
• I will identify and interview two adult
  physicians and choose a new adult doctor by June,
  2008.

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Tools
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• Handout Portable Medical Summary
• Carry in your wallet
• Good Days
• - Cheat Sheet Use as a reference tool
• Accurate medical history
• Correct contact s
• Document disability
• Health Crisis
• Expedite EMS transport ER/ED care
• Paper talks when you can not

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• Know Your Health Wellness Baseline
• How does your body feel on a good day?
• What is your typical
• - body temperature
• - respiration count
• - elimination habits?
• - quality of skin (front and back)

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(No Transcript)
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Little Miss-Matched

• 5M

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• What would you do,
• if you thought you could not fail?

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Patti Hackett, MEd Co-Director, HRTW Center
pattihackett_at_hrtw.org pattihackett_at_yahoo.com