Helping Californians Use Their Power to Donate Life

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The Donate Life California Registry

• Helping Californians Use Their Powerto Donate
  Life
• Presented byOneLegacy

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Waiting Donating A Widening Gap
Source UNOS
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Patients on the UNOS List
21 of total waiting
Source UNOS, 1/14/05
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Californias OPOs
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Pink Dots Donor Cards in Action

• The Pink Dot is not legally binding it shows
  intent only
• A signed donor card is a legally binding document
• Families are approached to give consent to
  donation

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The Problem

• A donor card is presented at time of family
  approach in lt 5 of cases
• Pink donor dots and donor cards are great
  awareness tools but seldom available when
  donation is being considered
• Many card-carrying donors believe they are
  already on a computerized registry, so they
  dont discuss wishes with family

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The Registry Why It Matters

• Individuals who have signed a donor card want
  their wishes to be honored
• The certainty of knowing the wishes of the
  deceased is a gift to families
• The solution Donate Life California Registry

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Current Organ Donor Registries
38 active stateregistries
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The Registry In Action

• Registrant signs up on secure online database
• At time of referral, patient looked up on
  registry
• If patient registered, Document of Gift faxed to
  coordinator

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Verification of Registration / Document of Gift
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The Registry In Action (contd)

• If patient not registered, consent process
  proceeds as in past practice
• In either case, Hospital/OPO team meets to
  discuss family approach

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Registry Special Features

• Completely secure database
• English and Spanish mirror sites
• Donation limitations for specific organs/tissues,
  use for research, or uses of tissue
• Ability to update donor profile later
• Confirmation email to self, family, friends

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California Registry Background

• Registry authorized, but not funded, by SB 108
  (Speier, 2001)
• SB 112 (Speier, 2003) shifted the responsibility
  for implementation to the states four federally
  designated organ procurement organizations (OPOs)

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Pending Legislation

• Goal Expand DMV Role
• SB 689, which will link DMV drivers license/ID
  process with donor registry
• States with DMV partnership register up to 70
  of potential donors

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The Registry and You

• The understanding and acceptance of the registry
  by healthcare professionals is mission-critical
  to the registry's success.
• The Donate Life California Registry confirms
  donor intent through a secure database and eases
  the decision making process for families and
  hospitals.

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The Registry and You (contd)

• Your patients and colleagues will ultimately
  benefit.
• You have an opportunity to fulfill an important
  act of community service simply by sharing
  information about the Donate Life California
  Registry who those in your practice, agency or
  medical center.

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The Registry and You (contd)

• The referral process remains unchanged.
• Hospital staff should still refer severely
  brain-injured patients.
• Please include your OPO in any family discussion
  regarding organ tissue donation.

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Registrys Impact on Consent Process

• The Donate Life California registry provides a
  clear and legally binding means of pursuing first
  person consent for organ and tissue donation.
• All OPOs in states with an organ and tissue donor
  consent (vs. intent-only) registry pursue
  first person consent when a donor is listed on
  the registry.

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What is First Person Consent?

• First person consent means that the donors
  decision is paramount and should be respected at
  all costs (per UNOS guidelines).
• When someone adds their name to the donor
  registry, they create a legally binding document.
• The burden of making the donation decision is
  removed from the family.

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Legality of First Person Consent

• Uniform Anatomical Gift Act (UAGA) under Health
  and Safety Code, section 7150.5(h) A valid
  Document of Gift is binding upon hospitals and
  families without need for further consent from
  next of kin.
• The enrollment form provided by the Donate Life
  California Registry is the Document of Gift.

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Legality of First Person Consent (contd)

• California Vehicle Code states that the donor
  registry enrollment form shall constitute a
  legal document under the UAGAand shall remain
  binding after the donors death despite any
  express desire of next of kin opposed to the
  donation.

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Legal Basis for Digital Signatures

• All individuals who have signed up on the Donate
  Life California Registry provide a legally
  binding electronic signature when they accept the
  terms and conditions of the enrollment form.

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Legal Basis for Digital Signatures (contd)

• 7150.5 of the UAGA states that any signed
  statement that is in compliance with this
  chapter, or a drivers license or identification
  card that meets the requirements for validity set
  forth in the Vehicle Code, shall be honored and
  no further consent or approval from the next of
  kin or other person listed shall be required.

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Legal Basis for Digital Signatures (contd)

• The original rationale for witnessing a document
  of gift was to verify the identity of the
  individual making the gift. The online registry
  has other methods of identity verification built
  in with the unique identifiers of mothers maiden
  name, California drivers license/identification
  card number, and place of birth.

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Legal Basis for Digital Signatures (contd)

• The signature requirement for most documents of
  gift under the UAGA is specifically waived by
  amendments concerning documents of gift made by
  means of online registration and drivers
  licenses. The Donate Life California Registry
  uses the same methods of signature validation as
  are required by Californias Uniform Electronic
  Transactions Act (UETA), section 1633 of the
  Civil Code.

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If You Choose to Be a Donor
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Share your personal decision with your family
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Sign up online with the Donate Life California
Registry
www.donateLIFEcalifornia.org www.doneVIDAcaliforni
a.org
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Live a long, healthy life!
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