Interdisciplinary Care and Treatment Involves Us TOO

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Interdisciplinary Care and Treatment Involves Us
TOO

• James Kiefert, EdD
• Chairman, Board of Directors
• Us TOO International
• Prostate Cancer Education and Support Network

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Why is Prostate Cancer Important?

• One in every 6 men will be diagnosed with
  Prostate Cancer in his life
• There are slightly more cases of Prostate Cancer
  diagnosed each year than Breast Cancer (230,000
  vs. 216,000, the top two annual cancer diagnoses)
  
• An American man is 33 more likely to develop
  Prostate Cancer than an American women is to get
  Breast Cancer
• 38 Million Baby-Boomers are aging and at risk
• Source Prostate Cancer Foundation and
  American Cancer Society

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The Numbers will Increase as the Baby Boomers Age

• Despite advances, 30,000 deaths due to Prostate
  Cancer happen each year, that is 90 American men
  each day
• Within the next 10 years (2015), we will see an
  increase of nearly 70 to 50,000 deaths per year
• In the next 15 years, by 2020, the total number
  that die from PCa will be 650,000more than the
  number of men killed in all US wars in the last
  100 years (since 1900642,352 deaths)
• Source Prostate Cancer Foundation

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Us TOO International Network

• Founded in 1990 by a group of Prostate Cancer
  Patients, still directed by patients and family
  members
• Network of Support Groups now is 320 and reaches
  44 states and 10 countries
• Us TOO Mission Communicate Timely, Personalized
  and Reliable Information Enabling Informed
  Choices Regarding Detection and Treatment of
  Prostate Cancer

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Us TOO International Network

• Web based information and support at
  www.ustoo.org 14 virtual communities on Prostate
  Pointers and an e-newsletter Prostate Cancer NEWS
  You Can Use
• Hotsheet Monthly Newsletters 22,000 distributed
  through Support Groups
• The power of peer support and patient directed
  care and treatment

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Detection and Screening

• The importance of Know your PSA
• Outreach to people at higher risk
• There are no side effects to a blood test or a
  DRE
• Process of Diagnosis
• Family Practitioner
• Urologist, takes biopsy

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Diagnosis, Recommendations and Treatment Planning

• Post-biopsy exploration and additional testing,
  second opinions
• The Gold Standard recommendation surgery and
  the pressure to act immediately
• Feelings of shock and denial
• More options exist now than ever before

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Information Gathering and Decision Making

• Patient and family information gathering and
  informed decision-making
• Need to make the right decision
• The added burden of conflict-recommendations,
  comments and relationships

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On-going Treatment and Post-Treatment Issues

• Treatment decisions continue, new decision points
• Life style challenges and changes
• Stress, job issues
• Diet and exercise
• Medication management and changes
• Side effects, Patient expectations vs. discussed
  typical outcomes

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Stepping up to the Growing Challenge

• Preparation and communication are essential
• New treatment approaches mean patients need
  involvement with educated Urologists and
  Oncologists
• Recognize the Baby Boom generation now entering
  high incidence age
• Number diagnosed per year climbing to
  300,000/year in the next 10 years (40)
• Source Prostate Cancer Foundation

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Teamwork and Communication

• In my support group I hear men looking to their
  physician as the quarterback of their team
• Communication is essential
• The burden of cancer is made worse when
  conflicting messages are present

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Making a Difference Together

• Look for Us TOO at www.ustoo.org and at
  1-800-80-UsTOO (1-800-808-7866)
• Never doubt that a small group of thoughtful,
  committed citizens can change the world indeed,
  it's the only thing that ever has. Margaret Mead