Children with Diabetes: A Resource Guide for Families and Schools

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Children with DiabetesA Resource Guide for
Families and Schools

• Maureen Spence, MS, RD, CDN
• New York State
• Diabetes Prevention and Control Program

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A quick review of initiatives for NYS children
type 1 and type 2 diabetes

• Preventing Type 2 Diabetes in Children Making
  the Case for Healthy Schools (DVD)
• Partners for Success School Nurses and the Care
  of Children with Diabetes at School
• Glucagon Administration Training Tools and
  Resources CD

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A quick review of initiatives for NYS children
type 1 and type 2 diabetes

• Certified Diabetes Educators/ NYS Schools
  Training and Education Initiative
• I am Lovable and Capable (IALAC) A Day in the
  Life of a Child with Diabetes DVD
• Children with Diabetes A resource guide for
  families and schools

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Children with Diabetes A Resource Guide for
Families and Schools

• Great information for families of newly
  diagnosed child
• Necessary information for school nurses and
  school staff
• Revision of previous publications (family guide
  and school guide)
• Updated and new information in one comprehensive
  guide
• Focus on Team Approach

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Goals

• Provide a healthy and medically safe environment
  in the home, school and community setting.
• Ensure equal access to educational and
  recreational opportunities
• Secure the highest quality care and management of
  diabetes
• Decrease type 2 diabetes and reduce risk factors

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(No Transcript)
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Revision Process

• Established/convened an expert workgroup
• Developed draft outline
• Wrote section by section
• Research
• Consultation with workgroup members
• Incorporate feedback from workgroup

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Revision Process (contd)

• Obtained NYSDOH approval
• Designed new cover
• Printing bids/ Layout designed and approved
• Many DPCP sub-group meetings
• Lots of writing and re-writing!

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Target Audience

• Families
• Parents/Guardians
• Caregivers
• Siblings
• Family Friends and Relatives

• Schools
• School District Administrators
• Principals/School Administrators
• School Nurses
• Teachers
• Counselors
• Coaches and Physical Education Instructors
• Food Service Managers and Lunch Room Staff
• Other School Personnel

The guide may also be used by diabetes advocates,
stakeholders and decision makers interested in
learning more about diabetes issues in NYS and
the critical role of families and schools.
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New, revised, updated or expanded information

• Diabetes-related research, resources and
  references
• Clinical practice recommendations
• Medical and technological advances
• Prevention of type 2 diabetes in children

• Diabetes team roles and responsibilities
• Athletics and diabetes
• Emergency and natural disaster preparedness
• Legal issues related to diabetes care in children
• Sample tools, forms and plans

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Content of Resource Guide

• Overview of Diabetes and Children
• General Diabetes Information
• Type 1 Diabetes
• Type 2 Diabetes
• Reducing Risk for Type 2 Diabetes
• Team Approach

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Content (contd)

• Starting Line-Up Roles and Responsibilities
• Diabetes On the Go!
• Special Considerations for Children with Diabetes
• Diabetes in Children and the Law
• Appendix

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Sharing the Guide

• Bulk shipments in Fall 2008
• Mass-mailing in Spring 2009
• Websites and Listservs
• NYSDOH, JDRF, ADA, Statewide School Health
  Services Center
• Partner Newsletters
• By request from DPCP

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Bulk Shipment Distribution

• Nine JDRF Chapters in NYS (1000)
• Six ADA Chapters in NYS (1100)
• NYC Dept. of Health and Mental Hygiene (2000)
• ADA National Office (150)
• NY Statewide School Health Services Center (50)
• Other NYS DPCP Partners and School Nurses by
  request (600)

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Mass-mailing

• Public and Non-public School Buildings (6700)
• Certified Diabetes Educators in NYS (140)
• Endocrinologists and Pediatricians (7000)
• Local Children with Special Health Care Needs
  Programs (58)
• NYS Diabetes Task Force (52)
• Diabetes Prevention and Control Programs (58)
• ADA Recognized Programs (109)

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THANK YOU!!

• Contact info
• Maureen Spence
• mms07_at_health.state.ny.us
• [phone]