Working with PCRN South West

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Working with PCRN South West
Paul Morrish, DeNDRoN SW Primary Care CSG
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DeNDRoN

• What is it for?
• Who is it?
• How do you contribute?

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• Part of the UK Clinical Research Network
  (UKCRN), DeNDRoN facilitates the conduct of
  randomised prospective trials and other
  well-designed studies of the dementias and
  neurodegenerative diseases, including those for
  prevention, diagnosis and treatment

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DeNDRoN - places involved

• 7 Local Research Networks
• South West
• South Coast
• North West
• North East
• North Thames
• East Anglia
• Thames Valley

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South West DeNDRoN

• Clinical Lead Prof Roy Jones (Bath)
• Deputy Lead Prof John Zajicek (Plymouth)
• Manager Erica Marriage (Bath)

• Covers North and West Hubs of PCRN-SW
• 8,500 towards GP Champions
• 20,000 Primary Care Engagement Programme

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South Coast DeNDRoN

• Clinical Lead Dr David Wilkinson (Southampton)
• Deputy Lead Dr Helen Roberts (Southampton)
• Manager to be appointed (Southampton)

• Covers East Hub of PCRN-SW
• 17,000 for research staff in East Hub

• DeNDRoN 007 sites
• 10,000 Primary Care Engagement Programme

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DeNDRoN Clinical Studies Groups

• Dementias
• PD
• MND
• HD
• Primary Care
• Methodology
• Neuropathology and Brain Banking

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Primary Care CSG- Members
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Primary Care CSG - Brief

• To develop and oversee a portfolio of studies
• To identify gaps in research
• To consider studies adopted by other CSG
• To consider international studies
• 3 yearly peer review of portfolio

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Primary Care CSG - Priorities

• Clinical predictors and prevention of progression
  in dementia
• Early recognition of dementias and Parkinsons
  disease in primary care
• Characterising pathways into services
• Prevention of disability in diagnosed dementia
  syndromes
• Effects of co-morbidities and their management
• Best buy models of generalism/ specialism in
  neurodegenerative disorders
• Reduction of depression in dementia
• End of life care and long term support     

Summary The Primary Care CSG has met twice and
will continue to meet bi-annually.
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DeNDRoN

• Individuals can enquire/contribute through
• LRN (LRN committee, research officers, locality
  managers, administrators, clinical champions)
• CSG
• See www.dendron.org.uk/index.html