Australian Clinical Quality Registries

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Australian Clinical Quality Registries
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Contents

• Commission
• Role and work program
• Information Strategy
• Priority projects
• Australian Clinical Quality Registries
• Definitions
• Project Plan
• Collaborations and consultations
• Pilot projects to test and validate
• Operating Principles and Technical Standards.

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Australian Commission on Safety and Quality in
Health Care

• Commissions role and remit
• lead and coordinate improvements in safety and
  quality in health care
• disseminate knowledge and advocate for safety and
  quality
• report on the state of safety and quality
• recommend national data sets for safety and
  quality
• provide strategic advice to Health Ministers on
  best practice thinking to drive quality
  improvement
• recommend standards for safety and quality
  improvement.
• Website http//www.safetyandquality.gov.au/

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Priority Programs

• Australian Health Ministers Conference (AHMC)
  approved the Commissions Priority Programs. The
  programs stem from the Commissions Five Year
  Work Plan.
• The Priority Programs include
• Patient Charter of Rights
• Open Disclosure
• Hygiene/HAI
• Patient Identification
• Handover
• Medication Safety
• Accreditation.

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Information Strategy

• Why?
• Building relevant and reliable evidence to
  improve safety and quality
• Using existing information to best advantage
• Enhancing available data
• Supporting best practice.
• To underpin other programs and as information
  projects.
• Available from http//www.safetyandquality.gov.au
  /

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Information Strategy

• Goals and work streams
• Information to support quality improvement of
  clinical practice
• Better use of information
• Summary information capable of monitoring
  Australias performance (benchmarking)
• Improve national health information
  infrastructure.

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Information Strategy priority projects

• Priority projects within the Information Strategy
• National indicators
• Australian clinical quality registries
• Improving and sharing incident information
• National data sets and standards
• Core maternity indicators.

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Australian Clinical Quality Registries

• Some definitions
• Australian national focus
• Clinical quality feedback into clinical
  practice focus on improving safety and quality
  in health care.
• Primary purpose of the registry is to improve
  the safety or quality of health care.

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Australian Clinical Quality Registries

• Why?
• Developing standards to strengthen the role of
  registries
• Provide a template for dealing with common
  issues
• Standardise methodologies, data definitions,
  identifiers
• Aid efficiencies
• Enhance impact and relevance of registries
• A clearer understanding of registries for funding
  bodies, ethics committees, etc.

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Australian Clinical Quality Registries

• Australian Clinical Quality Registry
  characteristics
• Clear purpose and scope
• Governance models
• Privacy principles and legislation
• Information management principles
• Standard technical design for key registry
  components
• Involve the relevant national professional
  organisations
• Capacity to analyse data and provide timely
  advice
• Minimum reporting requirements
• Add value over and above augmentation of routine
  collections.

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Project plan phases
Validate operating and
Recommend standards for
Develop operating
Scope the requirement
Develop technical design
technical standards
clinical quality registries
standards
Phase 3
Phase 1
Preliminary Phase
Phase 4
Phase 2
Concurrent
Issues paper
Draft operating principles for
RFT documents, RFT
EOI documents, EOI

Australian Clinical Quality
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clinical quality registries
evaluation plan contract
evaluation plan contracts
Registries

Principles
Project plan, funding and
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Evaluation RFT documents,
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procurement documentation
AHMAC/ AHMC paper
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RFT evaluation plan
contract
Evaluation report
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Collaboration and consultation

• Addressing these questions is an opportunity
• to combine the expertise and experience
• from the registries community
• from the academic community, e.g. CRE PS
• from the e-health world, e.g. NeHTA
• from the information/data world, e.g. AHRDMA,
  AIHW
• from the government sector, e.g. Commission, DOHA
  and jurisdictions
• to develop standards that will materially
  contribute to the improvements in collection and
  use of health information
• to lead to improvements in clinical practice.

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Pilots

• Pilots to test and validate the principles
• Following an RFT process (in no particular
  order)
• Australasian Rehabilitation Outcomes Centre
  (AROC)
• Bi-national Burns Registry
• Neck of Femur Fracture Registry of Australia
  (NOffRA)
• National Breast Cancer Audit (NBCA)
• Australian Stroke Registry (AuSCR)
• Australian Cardiac Procedures Registry (ACPR)

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NBCA
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AuSCR
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ACPR
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Operating Principles

• 42 draft Operating Principles, including
• Key attributes
• Data collection
• Data elements
• Risk adjustment
• Data security
• Data quality
• Organisation and governance
• Custodianship
• Ethics and privacy
• Outputs and reporting.

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Contact

• Australian Commission on Safety and Quality in
  Health Care
• http//www.safetyandquality.gov.au
• Neville Board, Information Strategy Manager
• Neville.Board_at_safetyandquality.gov.au
• Dr. Niall Johnson
• niall.johnson_at_safetyandquality.gov.au