Mark Duman

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Patient Information ForumOverview

• Mark Duman
• chair_at_pifonline.org.uk
• 07985 639 887
• September 2006
• www.pifonline.org.uk

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The User Environment

• Information needed at all levels of Patient
  Public Involvement (PPI)

Citizens Juries
Citizens
Users
Individuals
Wellness/ treatments/ choice
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The Organisational Environment
White papers/ consultations
Strategy
Support
Grassroots
Consumers/ patients/ carers/ family
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Patient Information Forumcommunicating for
better health

• Improve the quality of health information and
  communication
• Established via Kings Fund in 1997
• Original focus on acute trusts in London
• Umbrella group of around 350 health
  communicators in the UK (and Ireland)
• NHS Trusts, and NHS Direct, NHS Direct Wales,
  NHS24, MHRA, NICE, Picker, UK National Screening
  Committee (50)
• Commercial e.g. BUPA, EMIS, Lloydspharmacy,
  Pfizer (20)
• Patient groups e.g. Alzheimers Society,
  Diabetes UK, Epilepsy Action, MIND, Scottish
  Consumer Council (20)
• Professional e.g. Royal Colleges, General Medical
  Council, Academic and Other e.g. BBC (10)
• Funding from 50 membership fee/ events
• Efforts of Steering Group and others mainly
  voluntary

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Highlights

• Influencing policy
• Department of Health Information for Choice
  workstream
• Steering/ Advisory Groups WiPP, IDM, health
  literacy
• Skills for Health patient educator competences
• Choice Information Taskforce
• Recognising excellence
• Support BUPA Foundation communication awards
• Launched Ask About Medicines awards
• Disseminating guidance
• NHS Patient Information Toolkit
• Kings Fund Producing Patient Information
• Tools from PiF members EQIP/ JudgeHealth/
  HiQuality
• Sharing good practice
• Website and PiF aware
• Six workshops
• Four major conferences

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Current Products Services

• Networking/ Sharing experience, policies and
  proposals
• PiF aware email alerts
• PiF query
• Website www.pifonline.org.uk
• Member benefits e.g. 33 off Health Expectations
• Annual conference(s)
• Workshops - 15-50 people meet to improve a
  common theme
• Policy e.g. DH Information Accreditation Scheme
  (May 06)
• Topical e.g. Record access (Oct. 06) Medicines
  (Dec. 06)
• Geographical e.g. Canny Patient Information (Mar.
  06)
• Training (e.g. BMA Library, ABPI IPI, LMCA)

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Future Products Services

• PiF Appraisal
• Practical review of printed and other materials
• Synergistic with Information Accreditation Scheme
  (in England)
• PiF Events
• Conferences
• Workshops
• PiF People
• Network providing consulting around health
  information communication
• Focus on learning from patient and public
  experience
• PiF Training
• Developing and delivering health information
  communication modules
• Brokerage with partners e.g. Connect, RNIB
• Promoting a Personal Development Plan for
  patients

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What could I do now?

• Join www.pifonline.org.uk/join
• Attend and contribute to PiF events
• Submit relevant work to PiF aware
• Help us develop workshops around your topic(s) of
  interest
• Use PiF members as a sounding board for your
  work/ research
• Get involved in PiF management