MultiGeneration Register

1
Multi-Generation Register

• Purpose and Use
• Contents
• Links to other Registers
• Sources
• Development
• Production
• Results and Quality
• Legal Rules

2
Main Purpose
Multi-Generation Register

• To establish, maintain and provide links between
  
• Child - Biological Mother and Father
• Child - Adoptive Mother and Father
• for research purposes !
• Annual Versions
• New improved and extended version every year

3
Use
Multi-Generation Register

• Medical Studies
• Where kinship plays a vital role
• Social Studies
• Where e.g. family situation and adoptions is of
  key importance
• Linkage
• to Medical Registers, Cancer Register, Census
  Registers, etc.

4
Research Studies
Multi-Generation Register

• The Importance of Hereditary, Environmental and
  Immunology Factors in Pregnancy Complications and
  the Health of the New-Born Child
• Age at Childbirth and Number of Children
  Factors in Studies of Breast Cancer Risks
• Maternal Lung Cancer and Testicular Cancer Risk
  in the Offspring
• New Evidence on Germ-Cell Testicular Cancer
  Aetiology
• Twins, Families and Cancer
• Long-term Outcome of Patients with Rheumatoid
  Arthritis and Systemic Lupus Erythematosus with
  Special Reference to Cardiovascular Disease
• Familial Resemblance of Body Mass Index and
  Familial Risk of High and Low Body Mass Index
• Lone Parenting, Socio-economic Conditions and
  Severe Ill-healt

5
Contents
Multi-Generation Register

• Basic Data Source National Population
  Registration
• Main Data Store Total Population Register
  (TPR)
• Main Information Links between Persons and
  Biological - and Adoptive Parents
• Main Variable Personal Identity Number (PIN)
• PIN Identifies Persons
• Links Persons and Parents

6
Relations
Multi-Generation Register

• Biological Parents
• Adoptive Parents
• Siblings
• Stepchildren, Stepbrother, Stepsister
• Aunts, Uncles
• Cousins
• Grandparents
• Etc.

7
Index Person
Multi-Generation Register

• Index Persons are the main objects
• Born 1932 and later
• and
• Resident in Sweden some time from 1961
• 9 million Index Persons in the 2003 Version
• Annual increase through Birth and Immigration

8
Target Population
Multi-Generation Register

• Target Population All Index Persons
• Born 1932
• Resident 1961

9
Variables
Multi-Generation Register

• Index person
• Personal Identity Number
• Sex
• Country of Birth
• Immigration Date of Adopted
• Index Person
• Biological Mother and Father
• Personal Identity Number
• Date of Birth
• Country of Birth
• Childs Position Mother/Father
• Number of Children Mother/ Father

• Adoptive Mother and Father
• Personal Identity Number
• Date of Birth
• Country of Birth
• Date of Adoption Mother/ Father
• Date of ended Adoption Mother/ Father
• Source Code

10
Links to other Registers
The Register System
11
Sources
Multi-Generation Register

• Total Population Register (TPR)
  Main Source
• Birth Register 1961-1967
  Dead and Emigrated before 1991
• Personal Records
  Born 1932-1967 and Dead 1961-1967
• Population and Housing Census 1960 and 1970
  Missing Data on Country of Birth

12
Development
Multi-Generation Register

• Cooperation with Karolinska Institutet
• Funding Swedish Cancer Foundation, Wallenberg
  Foundation
• Focus on Index Persons with missing Data on
  Parents
• born 1932-1967
• and
• dead 1961-1967
• Source
• Personal Records from National Population
  Registration Data
• in National Archives

13
Production
Multi-Generation Register
14
Results Details by source
Multi-Generation Register

• Source Number of Details
• Total Population Register 55 000 000
• Birth Register 1961-1967 70 000
• Personal Records 59 000
• Census 1960, 1970 32 000

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ResultsCoverage
Multi-Generation Register

• Coverage Share ()
• Index Persons (9 million) almost 100
• Biological Mother / Father 85 / 83
  
• born in Sweden
  97 / 95 born in Sweden 1950 -
  99 / 98 born abroad
  27 / 23

16
Legal Rules
Confidentiality

• Confidentiality Test
• Secrecy Act
• Statistical Confidentiality - Information is
  Secret
• Exceptions for Research and Statistics
• Personal Data Act
• Handling of Personal Information Legal,
  Correct Manner, Best Practice, Adequate, Relevant
• Sensitive Information Consent
• Official Statistics Act
• Longitudinal Information Serial Number as
  Identifier

17

• Mr Ingvar Johannesson
• Senior Adviser
• International Consultant
• Fields of work
• Population Registration, Population Registers,
  Population
• Statistics, Population and Housing Censuses
• Statistics Sweden
• SE-701 89 Örebro
• SWEDEN
• Tel [phone],
• Fax [phone]
• E-mail ingvar.johannesson_at_scb.se

18
System overview
Total Population Register (TPR)
19
Databases
Total Population Register (TPR)