Conference Summary and Closing Remarks

1
Conference Summary andClosing Remarks

• Robb Linkins
• October 2003

2
The Cup (Almost) Half Full
95
43
3
Impact of HIPAA Privacy Rule

• HIPAA permits providers to report to registries
  without individual authorization
• Most registries can report to providers without
  individual authorization

4
Some Important Partners

• American Immunization Registry Association (AIRA)
• Every Child by Two (ECBT)
• Association of Immunization Managers (AIM)

5
Programmatic Registry Operations Workgroup (PROW)

• Standards developed
• vaccine management
• provider quality assurance
• service delivery
• consumer information
• surveillance
• assessment

6
Coverage with 3 Doses of PCV7 in 7 Month Old
Children in One Sentinel Site by Calendar Date
Shortage ended
Shortage began
ACIP recommendation
PCV7 licensed
7
Sentinel Sites

• CDC funded 8 sentinel sites for data quality
  improvement initiatives
• Next Steps
• competitive awards process planned

For additional information Diana Bartlett at
ZXD5_at_cdc.gov
8
NIS/RegistryData Comparison Project

• Lessons learned
• Acceptable - yes
• gt 80 consent
• Feasible - yes
• 2 sites gt 80 participation
• Helpful?

9
NIS/RegistryData Comparison ProjectHelpful?

• Assess feasibility of identifying at risk
  providers and children for incomplete data
• Determine the usefulness of supplementing NIS
  with registry data
• Support replicating elsewhere
• Consider incorporating methodology into
  certification process

10
Certification Thank You!

• Tamara Lewis
• Robb Linkins
• Dennis Michaud
• Joe Nay
• Carl Phillip
• Mehrdad Shafa
• Paula Soper
• Ed Thompson
• Michael Vahldieck
• John Warming
• Jeff Weihl
• Warren Williams

• Susan Abernathy
• Steven Black
• Barbara Canavan
• Simon Cohn
• Floyd Eisenberg
• Michael Flynn
• Julie Gamez
• Jason Goldwater
• Ed Gotlieb
• Claire Hannan
• Joan Henneberry
• Robert Jenders

11
Registry CertificationBackground

• Developed draft certification criteria
• Pilot tested in 3 states
• Michigan
• New Jersey
• Utah

12
Certification Standards Achieved based on Draft
Criteria, Pilot Test Results (n3)
13
Registry CertificationBackground

• Developed draft certification criteria
• Pilot tested in 3 states
• Planning final pilot, 2004
• Anticipating roll-out, 2005

14
Implications of Reorganization

• Aligns registries with program delivery
• Synergizes resources
• Improves accountability
• Strengthens focus on registries as tools rather
  than systems

15
Registry Challenges
Data Quality
Data Use
Registry Acceptability
Provider Participation
16
A Special Thank You!

• Our Partners
• Every Child by Two
• External Planning Committee
• DESA
• Georgia Department of Human Resources
• Task Force for Child Survival

• CDC Staff
• Debbie Autman
• Amanda Bryant
• Susan Farrall
• Suzanne Johnson de Leon
• Ron Nuse
• Cecelia Thompson
• Kathy Towers-Solis
• Sharnell Wilson
• Registry Branch Staff