Childrens Palliative Care and Complex Needs

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Childrens Palliative Care and Complex Needs

• Dr Nicola Eaton

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Projects

• National Evaluation
• Aims
• Description of services
• Description of the children and families who
  access these services
• An assessment of the impact of these services on
  family functioning and well-being
• Method
• survey and psychological tools

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• Local Childrens Palliative Care Partnership
  Evaluation
• Based on National Evaluation
• Social services (3 areas)
• Lifetime
• Jessie May Trust

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• Staff perspectives on setting up a service
• Funded by Queens Nursing Institute
• Aim to investigate CCNs experience of setting
  up a service
• Method telephone interviews
• Output guidelines

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• Impact on Fathers
• Avon Primary Care Research Collaborative funded
• Aim to investigate and describe the impact on
  fathers of having a child with a life limiting
  condition
• Method SS Interviews
• Output Questionnaire for future national study

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Planning stage

• Complementary and alternative medicine use in
  families with children with palliative or complex
  care needs
• Siblings what are their needs and how are they
  met?
• Pain management in non communicating children