Missouris Response to Autism Spectrum Disorders

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Missouris Response to Autism Spectrum Disorders

• Beyond the Spectrum
• NASDDDS Mid-Year Meeting
• Nashville, Tennessee
• May 7-9, 2008

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Critical Components

• Autism Related Research
• Number, incidence, correlates, and causes of ASD
  and other developmental disabilities
• Valid and reliable early screening and diagnostic
  tools
• Evidence Based Interventions
• Early Detection and Intervention
• Increase awareness, reduce barriers to screening
  and diagnosis
• Train professionals to use valid and reliable
  screening tools, and provide evidence based
  interventions
• Access to Intervention, Supports and Services
• Promote evidence based interventions
• General Revenue, HCBS Waivers, Autism Specific

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Things to Consider

• How many individuals in your state, across all
  state and local service delivery systems have an
  ASD diagnosis?
• Who is currently receiving supports and services
  from the state DD system? How many individuals
  are waiting for supports and services?
• What interventions, supports and services are
  they currently receiving?
• What is the quality and effectiveness of the
  supports and services?
• Are evidence based interventions being provided?

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Things to Consider

• What is the capacity of the state DD system to
  meet the needs of individuals with and on the
  waiting list?
• What is the capacity of the current supports and
  services delivery system?
• Pre-service training
• Community based provider organizations
• School systems, child-care, medical community,
  higher education, employment, etc.
• Screening, evaluation, diagnosis, intervention
• Evidence based interventions

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Other Considerations

• What is the impact of the advocacy by the autism
  community on the developmental disability
  community overall?
• What is the current status of other developmental
  disabilities in the State? Are they increasing,
  decreasing, or remaining the same?
• What partnerships currently exist?
• What partnerships do we need to develop?

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Show-Me Partners Timeline

• 1991- 1993 Missouri Autism projects
• 1995 MRDD funds University of Missouri Autism
  Clinic
• 2002 Senate sub-committee symposium on autism
• 2003 Missouris Autism Research and Response
  Agenda
• 2004 Missouri Autism Project Registry
  foundational paper
• 2005 MU Thompson Center endowed
• 2006 Missouris Rapid Response to Autism
  Initiative
• 2006 Missouri Autism Coalition and Voices for
  Autism
• 2007 Blue Ribbon Panel and Report
• 2008 Missouri Autism Centers of Excellence are
  funded
• 2008 Missouri joins IANExchange group, State
  Collaborations
• 2008 Missouri Commission on Autism and Office
  of Autism Services

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Legislation pending
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Missouris Response to Autism

• Missouris Autism Projects allow families to
  define regional systems of care
• 5 local councils with representation on statewide
  council
• The Southeast Project is a model that offers a
  regional network of services, ABA services for
  young families, and a supported employment pilot

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Missouris Response to Autism

• Mid-Missouri Autism Rapid Response Initiative
• -Early detection
• -Community coalitions
• -Care coordination
• FY09 budget item to expand Rapid Response

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Missouris Response to Autism

• Missouri Autism Centers of Excellence
• FY08 Budget Item created 3 centers
• -Reduce diagnostic wait lists
• -Provide intervention services or care
  coordination to
• link families with services
• -Develop autism-specific education and outreach
  programs

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Missouris Response to Autism

• Current legislation pending creating the
  Commission on Autism and Office of Autism
  Services
• Commission focuses on Missouris plan to address
  autism through interagency collaboration and
  navigation of services throughout life stages
• The Office of Autism Services has dedicated staff
  for program development and coordination

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Families Navigational Challenges

• Transition from birth to 3 services
• Transition from early childhood programs
• Transition from high school to meaningful
  employment or meaningful day
• Transition to adult services, including
  residential services
• Coordination between home, school, programs and
  treatment

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