Title: The state of the science
1The state of the science
- A look behind the findings
2A review of the state of the art
- To capture what is known and not known about the
risks to children affected by HIV/AIDS in Africa - To identify the content gaps and methodological
limitations - To inform the design management of programmes
3Guiding questions
- In what ways are children with HIV parents
orphans disadvantaged? - How is their survival, health, nutrition,
education and emotional well-being at risk? - What other groups of children have been made
vulnerable by HIV and AIDS? - What are the contributions and limitations of
research to date?
4Selection of studies
- Measure disparity and disadvantage
- Sub-Saharan Africa
- Recent
- Empirical - rigorous and reliable
5First finding
Many of the relevant studies are hard to find.
6Drawing from many disciplines
7The Gambia N774 children
Rakai, Uganda N19,983
Masaka, Uganda N10,000
Longitudinal studies
Kisesa, Tanzania N20,000
Karonga, Malawi 593 index adults 2520 offspring
Manicaland, Zim N34,000 (14,169 children)
Blantyre, Malawi 808 children
KwaZulu Natal, SA 10,000 households
8What have we learned?
In Manicaland, Zimbabwe (14,169 children in over
8000 households)
Primary school completion
9What have we learned?
- Differential impact of losing a father, mother or
both parents - Timing of vulnerability
- Causal pathways behind the risk
- (love or money?)
10 Mother termin-ally ill
Guardian dies
Mother HIV
Household dissolves
Mother dies
Child moves
Birth 2 4 6 8 10 12 14 16 18
Age (yrs)
11Research gaps
- What about orphaned and affected adolescents?
- Specific health and education risks?
- Their risk of HIV compared to other adolescents?
- Lasting emotional effects
- Their role as caregivers?
12Gaps
- Who are the other children affected by HIV and
AIDS? - Those with parents alive but absent
- Those who experience death of an adult member of
household - Those with parents diagnosed with HIV
- Those in households that have fostered orphans
13Gaps
- Capturing the most vulnerable
- Those between households
- Those in dissolved or relocated households
- Those who are not in households
14Challenges
- like driving a Mercedes down a cow-track
- Thomas Mayer, economist, on application of fancy
tools to real-world phenomena that are not easy
to model, much less to measure.
15Challenges
- How can we use what we know
- To design and direct programs?
- To allocate resources?
- To expand coverage of support for affected
children?
16Suggestions ensure application of research
- Meaningful community involvement in research
- Map research, distil findings inform
practitioners - Speed it up