Allgemeiner%20Vortrag%20DKMS

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__________________________ DKMS AMERICAS
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________ Bone Marrow Donor Registration Training
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__________________________ DKMS
INTRODUCTION _____________________________________
____________________
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DKMS Mission

• The DKMS mission is to save lives by recruiting
  bone marrow donors for leukemia patients. More
  than 18,000 DKMS donors have helped save lives by
  donating their bone marrow. DKMS is the largest
  and most experienced bone marrow donor center in
  the world with close to 2 million registered
  donors.

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About DKMS
DKMS was founded in 1991 by Peter Harf and his
wife's physician, Prof. Dr. Gerhard Ehninger.
Their goal was simple to build a bone marrow
donor center to help other leukemia patients
around the world find their life-saving match.
In 2004, Katharina Harf and her father founded
DKMS Americas in memory of her mother, Mechtild,
opening an office in New York City to diversify
the donor pool. DKMS Americas has registered
over 100,000 donors in the U.S., which allowed
more than 100 patients to receive a life-saving
transplant.
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__________________________ BONE MARROW DONORS
_________________________________________________
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Why Are Bone Marrow Donors Needed?

• Every year, more than 10,000 men, women and
  children could benefit from
• a bone marrow transplant.
• Each year, more than 140,000 people are
  diagnosed with blood cancer,
• such as leukemia or lymphoma.
• Every 5 minutes someone is diagnosed with blood
  cancer and every 10
• minutes, blood cancer takes a precious life.
• Leukemia is the most common disease children in
  the U.S. die of.
• Many could be saved by a bone marrow transplant

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The Donor Registry

• There are 7 million volunteer bone marrow donors
  registered in the United States.
• Only 30 of patients will find a donor match
  within their family.
• 70 of patients depend on a complete stranger
  they need you to be the one to
• give them a second chance at life.
• Only 3 out of 10 patients will receive the
  transplant that can save their life.
• Patients are most likely to match donors of their
  same race and ethnicity. Minorities are
• under-represented in the national registry.

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How You Are Helping

• Your pharmacies participation will help increase
  the number of bone marrow donors on the national
  registry
• More donors will increase the likelihood of
  finding compatible matches and increase the
  number of life-saving transplants
• The more donors who register, the more lives can
  be saved.

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__________________________________________________
__________________________ HOW TO REGISTER BONE
MARROW DONORS ____________________________________
_____________________
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Registration Process

• 1. Ask the donor if they have already registered
  as a bone marrow donor
• If the person says yes, let them know that he
  only needs to register as a bone marrow donor
  ONCE. If he is unsure, the donor should call
  1-800-MARROW-2 to confirm whether he is already
  registered.
• 2. Inform the donor that he will be on the
  national Be The Match Registry, until his 61st
• birthday, and can be matched with any
  patient in need. Not just one specific person.
• 3. Have the donor review the eligibility
  criteria. (Sign 1) Ask the donor if he has a
  medical
• condition that is not listed. If he does,
  then please refer to the assessment tool that
  will
• be sent to you with the shipment of donor
  drive supplies.
• 4. Have donor review the height and weight
  guidelines (Sign 2)
• 5. Have the donor read about the donation process
  (Sign 3). This is VERY important.

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Eligibility Requirements


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Height and Weight Guidelines


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Donation Process


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Donation Process (contd)

• The previous slide is VERY important
• It is imperative that the donor understand the
  two ways to donate stem cells and that
• they are comfortable with either procedure as
  the patients doctor determines the
• method of donation
• We need to be sure that our donors give
  informed consent
• If donors seem very apprehensive or unsure, do
  NOT sign them up. They can always
• sign-up on-line at www.dkmsamericas.org/marro
  w-donor-form

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Filling out the Registration Form

• 1. After the donor has confirmed that he meets
  the eligibility requirements, knows about the two
  ways to donate and understands their commitment,
  proceed with filling out the registration form
  with the donor (write clearly)
• 2. All fields are required except for Social
  Security Number, Drivers License and
• Employer information, however, the SS is
  extremely helpful in locating the donor
• quickly. All information collected is
  confidential.
• 3. At least two telephone numbers and one
  non-academic e-mail address must be recorded
• 4. The contact person should be someone who
  DOES NOT live with the donor, but will know where
  they are in future years
• 5. We cannot register donors with missing
  information or a missing signature
• 6. Please ensure that the donor signs and dates
  the form. You or another volunteer will sign as
  the witness

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SAMPLE Completed Registration Form
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Tissue Sample Collection- A Simple Cheek Swab

• Have the donor swish and swallow a small amount
  of water.
• The volunteer will place one bar code sticker
  from the registration form onto the top
  right-hand corner of the white envelope provided.
  This is how we know the tissue sample belongs to
  the donor.
• The donor will carefully open the packet of cheek
  swabs. One packet contains two swabs. Please
  discard the wrapper.
• Make sure the swabs do not touch any surface
  other than the inside of their cheek.
• The donor will take one swab and rub it against
  the inside of one cheek in a circular motion for
  about 10 seconds. Then, they will repeat with the
  second swab on the other cheek. Wait a few
  seconds for the swabs to dry.
• The donor will place each swab DIRECTLY in the
  envelope with the barcode sticker.
• Seal the envelope.

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Financial Contributions/Fundraising

• Ask the donor if they would like to make a
  monetary contribution to help DKMS finance the
  65 registration cost. DKMS will use 100 of all
  donations to register donors and continue our
  life-saving work. (E.g. if 100 people register,
  it costs 6,500 500 donors 32,500 1,000
  donors 65,000, etc.)
• DKMS accepts cash, credit card, and checks made
  payable to DKMS Americas. Donations are
  tax-deductible. Enter the donation amount in the
  monetary donation field on the registration form
  and check the payment type.
• You can also help DKMS fundraise by
• (Some examples)
• - Working with other local business and ask if
  they would be willing to give a
• portion of the days sales
• - Send letter to local business asking for a
  donation to support the drive (DKMS
• can provide you with this)
• - Hold a silent auction, raffle, etc.

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Final Steps

• Give the donor the pink copy of the registration
  form. The white and yellow copies (separated) are
  returned to DKMS.
• Forms and envelopes with the swabs inside, and
  all unused materials must be returned to me via
  Fed Ex (Fed Ex labels provided). You can either
  drop it off at a Fed Ex location or call
  1-800-GO-Fed-Ex to arrange a pick up. PLEASE
  RETURN ALL MATERIALS BACK TO DKMS BY NOVEMBER
  30th, 2009!

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THANK YOU
Thank you for joining DKMS in the fight against
leukemia. Together we can help make a difference.
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