Promoting Diversity in the UCEDD Network

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Promoting Diversity in the UCEDD Network

• Royal Walker
• Institute for Disability Studies, University of
  Southern Mississippi
• Barbara Wheeler
• USC UCEDD

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Cultural Competence

• Cultural competence requires that organizations
• have a defined set of values and principles, and
  demonstrate behaviors, attitudes, policies and
  structures that enable them to work effectively
  cross-culturally.
• have the capacity to (1) value diversity, (2)
  conduct self-assessment, (3) manage the dynamics
  of difference, (4) acquire and institutionalize
  cultural knowledge and (5) adapt to diversity and
  the cultural contexts of the communities they
  serve.
• incorporate the above in all aspects of policy
  making, administration, practice, service
  delivery and involve systematically consumers,
  key stakeholders and communities.
• Cultural competence is a developmental process
  that evolves over an extended period. Both
  individuals and organizations are at various
  levels of awareness, knowledge and skills along
  the cultural competence continuum. (adapted from
  Cross et al., 1989

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Cultural Diversity

• Differences in race, ethnicity, language,
  nationality, religion, etc. among various groups
  within a community.
• A community is said to be culturally diverse if
  its residents include members of different
  groups.

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Racial/cultural/linguistic Disparities

• Refers to differences in outcomes due to
• Race
• Culture
• Language

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A quick overview of the evidence
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Evidence of Health Disparities Racial and
ethnic minorities are

• MORE likely to
• Die from breast cancer, despite similar
  mammography screening rates
• Die from HIV/AIDS
• Receive less desirable procedures, ie., lower
  limb amputations for diabetes
• Be diagnosed with severe MH disorders, i.e.,
  schizophrenia
• LESS likely to
• Receive routine medical procedures
• Undergo bypass surgery
• Receive kidney dialysis or transplants
• Receive current Rx drugs for the same condition

IOM, 2002 Kendall Hatton, 2002
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Educational Disparities Brown v Board of
Education, 1954

• Separate is not equal

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Evidence of Disparities in Education Latinos

• While Latinos are not over-represented in special
  education in general, English-Language Learners
  (ELL) are seriously over-represented in two
  categories of special education (1) mental
  retardation and (2) speech (LAS), especially at
  the secondary level.
• The problem worsens over time with
  over-representation of ELL students in special
  education emerging by grade five and increasingly
  visible by grade twelve

Artiles, Rueda, Salazar, Higareda, in press
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Arent R/C/L Disparities about being poor?

• Even with documented economic gains for members
  of both majority and minority groups in the past
  20 years, health disparities between races
  persist when SES is controlled for.

Institute of Medicine, 2002 Kendall Jones, 2002
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Improving Cultural Responsiveness of the System
and Promoting Equity

• The Role and Contribution of UCEDDs

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States with 30 or more Minority Populations
New York
Massachusetts
Nevada
New Jersey
California
Colorado
Virginia
Illinois
Maryland
North Carolina
Arizona
New Mexico
South Carolina
Mississippi
Georgia
Texas
Florida
Louisiana
Hawaii
Legend
Legend

• Mission
• N Nirs
• W Website

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UCEDD Projects Training

• 8 UCEDDs have a cultural diversity coordinator
• Targeting under-represented minorities into
  careers in MCH (Alabama St, and Civitan)
• Cultural diversity training for EC professionals
  serving Latino families (Arkansas)
• Multi-cultural education (monograph) (Rose
  Kennedy Center)
• Cross-cultural competence training for MH
  professionals (USC)
• Navajo Nation Comprehensive System for Personnel
  Development (New Mexico)
• LEND programs with Cultural Competence
  information

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UCEDD Projects Research

• M-C perspectives on self-determination (Hawaii,
  USC, Kansas)
• Barriers to health services for people IDD from
  immigrant communities (Minnesota ICI)
• NIH Partners in ResearchBarriers to
  participation in bio-medical autism Research for
  Latino families (USC)
• Needs assessment of barriers to quality care for
  Southeast Asians (UC Davis)
• Needs of families with internationally adopted
  young children from China (Connecticut UCEDD)

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UCEDD Projects Community Services and TA

• Developing culturally appropriate vocation rehab.
  programs (NAU)
• Growing in Beauty partnershipIDEA services to
  Navajo communities (NAU)
• Building capacity of minority CBOs (USC)
• Health Services projectSoutheast Asian
  immigrants (UC Davis)
• Project Bloomdeveloping CC services (JFK
  Partners, Colorado)
• Colorado Family Support 360 (JFK Partners)
• Juniper Gardens Childrens Project (education,
  primary healthcare, counseling, arts) (Kansas)

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UCEDD Projects Community Services and TA (cont)

• Primeros PasosEC intervention in Latino
  Community (Johns Hopkins)
• American Indian Disability TA Special Resource
  Center (Montana)
• Indian Childrens Program Specialty Resources (New
  Mexico)
• Cheyenne River Reservation/Pine Ridge Reservation
  Dev. Clinics (South Dakota)
• Project Early Reading Intervention and Project
  World vocabulary development (Texas AM)
• Indian Childrens Program diagnostic and clinical
  services (Utah State)

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UCEDD Projects Community Outreach and Education

• Culture competence training for State Employees
  (Illinois IDHD)
• Training for child care providers on serving
  culturally diverse children and families
  (Arkansas Partners for Inclusive Communities)
• Youth Development Training Diversity and Assets
  (Georgia UCEDD)
• Transition training for American Indian educators
  and Administrators (Minnesota ICI)
• Training, Resources and Information for the
  Advancement of Degrees for youth from underserved
  areas (U. of Southern Mississippi)
• Camino Seguro Westbilingual online information
  and services database (Bolling Center, Tennessee)
• Hispanic Disability Outreach program (Vanderbilt,
  Tennessee)
• Website in Spanish (Puerto Rico)

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UCEDD Projects Systems Change

• National Center on Cultural Competence
  (Georgetown)
• NJ Statewide Network on Cultural Competence
  (Boggs Center)

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Improving cultural responsiveness in the
disability field

• Where do we go from here?

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Parallel Movements Finding the common ground