NATIONAL MENTAL HEALTH REGISTRY NMHR

1
NATIONAL MENTAL HEALTH REGISTRY (NMHR)

• Source Data Producers Meeting
• 2006
• Date 18 May 2006 (Thursday)
• Place Pediatric Institute, Hospital Kuala Lumpur
• Time 8.30 1.00 pm

2
NMHR

• Background
• Launching
• Objectives
• Organization and Structure
• SDPs
• Progress

3
NMHR

• Was established in 2003 to continuously and
  systematically collect data on all aspects of
  mental health relevant to its management,
  prevention and control in Malaysia.
• Was officially launched on 9 July 2005 by
  Minister of Health at Legend Hotel

4
Objectives of NMHR
5
Objectives of NMHR
6
The Launching Photo Gallery
7
(No Transcript)
8
(No Transcript)
9
(No Transcript)
10
(No Transcript)
11
(No Transcript)
12
(No Transcript)
13
(No Transcript)
14
(No Transcript)
15
(No Transcript)
16
(No Transcript)
17
(No Transcript)
18
(No Transcript)
19

• More photos of the launching, log on to our
  website
• www.nmhr.gov.my

20
Organization of NMHR
SPONSORS
ADVISORY COMMITTEES
MENTAL HEALTH REGISTRY UNIT (MHRU)
SOURCE DATA PRODUCERS
USERS
21
Sponsors

• The registry will be sponsored by the Ministry of
  Health and supported by several of its
  organizations
• Mental Health Services,
• Public Health Department
• Medical Development Division

22
Responsibilities of Sponsors

• Ensure effective, efficient and responsive
  operation of NMHR
• Provide leadership and direction for the registry
• Establish an Advisory Committee
• Provide financial, human and information
  resources required for the registry

23
Advisory Committee

• An Advisory Committee for Mental Health Registry
  shall be established by sponsors to oversee the
  operations of the registry. Interested parties
  including source data producers, MHRU and target
  groups or users are represented on this
  committee.

24
Mental Health Registry Unit (MHRU)

• The collection, and analysis of data, and
  feedback of information are performed in a single
  centre referred to as MHRU. This is a
  sophisticated unit staffed by epidemiologist,
  statistician, information technology personnel
  and other supporting staff.

25

• MHRU Office

26
Roles of MHRU

• Coordinating Centre
• Management office
• Maintain a register database
• Publish an annual registry report
• Support registry activities

27
Work process at MHRU

• Main Operation in Data Collection
• Received data from all participating centres
• Data entry
• Data query
• Data analysis, data cleaning, data verification
• Reporting

28
Users or Target groups

• These are the individuals or institutions to whom
  the regular registry reports are addressed. They
  are public health practitioner, health care
  provider, health service planner and decision
  maker, researcher and sometimes include the press
  and public. It is their needs for information to
  assist in planning and implementing disease
  control and prevention activity that justify the
  investment in registry.

29
Source Data Producers (SDP)

• These are the individuals or institutions who
  collect the required data. It is the most costly
  and difficult element of the system. It has to be
  systematic and uniform, and producers of source
  data need to be trained and motivated to ensure
  high data quality.

30
Roles of SDP

• Doctor in charge Her/his duties are to
• Give a briefing to new doctors and paramedical
  staff about the National Mental Health Registry
  as stated in the manual.
• Ensure and monitor that the data collection
  process follow the methodology as stated in
  instruction manual.
• Emphasize to doctors about the nature of carbon
  on the Schizophrenia Forms.
• Ensure the eligibility of writing.
• Ensure the accuracy and reliability of data
  collected.

31
Roles of SDP

• Site coordinator (paramedics) whose duties are
  
• Request Schizophrenia Notification Forms from
  Registry Manager of MHRU
• Ensure that forms are adequate for continuous
  data collection (at least 50 set in stock)
• Check the data are complete before sending to
  Mental Health Registry Unit
• Send the complete forms to Mental Health Registry
  Unit monthly
• Keep the copy of the forms in the file that has
  been provided.
• Complete the queries of missing compulsory data
• Maintain a good line of communication with MHRU
  personnel

32
Roles of SDP

• Ensure Data quality
• Quality control measures must be in place in all
  the processes both at the source data provider
  and registry coordinating office.

SDP
Registry
Data collected must be accurate, reliability and
timely.
33
Roles of SDP

• Missing Compulsory Data (queries)
• Missing compulsory data must be completed by the
  SDPs in order to reduce missing data during the
  analysis and reporting.

34
SDPs

• Number of SDPs by year
• Number of SDPs by institution
• Number of SDPS by state
• Data submission from all SDPs

35
Number of SDPs by year
36
Number of SDP by Institutions
37
Number of SDP by state
38
Notification submission by year
39
Notification and Outcome submission by centre

• CLICK TITLE TO HYPERLINK

40
Report on Data Submission

• CLICK TITLE FOR HYPERLINK

41
Problems in Data Submission

• Data is not submitted timely
• Missing compulsory data
• Query not replied
• No submission at all
• No communication between coordinators and
  Registry Manager
• Changes of coordinators

42
Problems in Data Submission

• How to overcome the problem???

43
Problems in Data Collection by SDPs

• Let us know what are the problems at your place
• How to overcome the problem???

44
Questionnaire Result
45
Questionnaire Result
46
Questionnaire Result
47
Questionnaire Result
48
Questionnaire Result
49
Questionnaire Result - Cadangan

• 2 SC untuk setiap SDP dan beri sijil penghargaan
  kpd semua SC
• CRF yang tidak berkarbon dan libatkan semua staff
  seperti MO paramedik lain
• kes dari kecemasan mesti dimaklumkan segera
  kepada SC
• libat ramai staff dan maklum kepada semua pihak
• mesti kerja berpasukan di pusat masing-masing
• mesti maklum kepada semua staff berkenaan NMHR
• Sediakan Manual Instruction yang lebih jelas

50
Questionnaire Result - Cadangan

• mesyuarat perlu diadakan 6 bulan sekali
• mesyuarat yang berterusan mesti diadakan
• NMHR mesti maklum kepada pegawai (Doktor) untuk
  mudahkan kerja
• notified new diagnosis sahaja
• register semua kes baru walaupun data year
  sebelum 2004
• sediakan contoh CRF yang telah diisi untuk
  rujukan
• sediakan guideline untuk MO yang mengisi borang
• taklimat kepada pakar yang melawat

51
NMHR Progress

• Publication
• Till date, NMHR has published
• Jan May 2003 Preliminary report
• 2003 - 2004 Schizophrenia Annual report
• Expansion of NMHR
• Suicide Registry
• Depressive Disorder and Deliberate Self Harm
  Registry
• Substance Dependence Registry

52
Suggestion to improve NMHR

• We welcome any suggestion from SDPs on how we can
  improve the quality of data collection and on any
  relevant issue.

53
Contact NMHR

• Any question pertaining to NMHR, kindly contact
  this number
• 03-2615 5790
• 03-2615 5791
• nmhr_at_nmhr.gov.my

54
Contact NMHR

• Department of Psychiatry and Mental Health
• Hospital Kuala Lumpur
• 50586 Kuala Lumpur

55
(No Transcript)