eLSe eLearning for Seniors : a personal testimony

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eLSeeLearning for Seniors a personal testimony

• Henk Van daele
• PhD Education
• Prof. em. Univ. Gent VUB
• born 1930 retired 1995
• FILTER Amsterdam, February 10, 2006

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November 1999 gt 1 billion cancer cells
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Diagnosis what the doctor said

• Invasive ductal carcinoma
  carcinoma ?
  
  ductal carcinoma ?
  
  invasive ductal carcinoma ?
  
• Sentinel lymph node biopsy
• biopsy ?
• lymph node biopsy ?
• sentinel lymph node biopsy ?
  

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Treatment 1 surgery

• Modified radical mastectomy
  mastectomy ?
  radical mastectomy ?
  modified radical mastectomy ?
• Axillary lymph node removal

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Treatment 2

• Chemotherapy ?
• Radiation therapy ?
• Hormonal therapy ? (estrogen positive cells)

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Winter 1999-2000

• Start of my new study period I wanted to know
  start of my personal research
• What
  is cancer ?
• What is
  breast cancer ?
• What is male
  breast cancer ?
• Why do men get breast
  cancer ?
• Differences female versus male breast cancer ?
• How should I cope with this
  illness ?
• Oncopsychological aspects (females-males) ?

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First result of my research

• Publication of my book
  Borstkanker met puntjes
  (Amsterdam-Antwerpen, Houtekiet, 2002)

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Ongoing results of my research

• I am a peer counselor (vrijwilliger-lotgenoot
  Leven zoals Voorheen BorstkankerVereniging
  NL
• I continue to study breast cancer (internet,
  national and international conferences,
  scientific literature)
• I lecture on (male) breast cancer, from the point
  of view of a patient
• I became involved in cancer education and cancer
  advocacy

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Internet GOOGLE January 28, 2006

• Borstkanker mannen 215.000 results
  
  
  (20.09.05 95.800)
• Male breast cancer 10.500.000 results
  
  
  (20.09.05 5.440.000)
• Cancer du sein hommes 2.810.000 results
  
  
  (20.09.05 907.000)
• Brustkrebs Männer 551.000 results
  
  
  (20.09.05 295.000)
• The number of results is increasing daily !

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Mass of information how to choose ?

• Only scientific websites
• - Universities
• - Scientific organizations ex. American Cancer
  Society
• - Cancer hospitals ex. Memorial Sloan Kettering
  Cancer Center
• - Oncological journals Breast cancer journals
  (with peer review)

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Health On the Net

• Some websites have a quality label HON
• HON Health On the Net Foundation (Geneva)
• HON Foundation is an NGO in Special Consultative
  Status with the Economic and Social Council of
  the United Nations

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Conclusions

• Thanks to my breast cancer, I have found a very
  interesting new hobby !
• eLearning has become a daily pastime
• Thanks to my BrCa, I have made a lot of new
  friends (national and international)
• Thanks to my BrCa and my relations with fellow
  sufferers, I feel useful
• Studying BrCa 1 way of coping with BrCa