Parent Professional Partnership Assuring an Integrated System of Care for CSHCN

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• Parent Professional Partnership Assuring an
  Integrated System of Care for CSHCN

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Deborah Garneau, OSHCN DirectorRI Department of
HealthLisa Schaffran, Associate DirectorRI
Parent Information Network
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Parent Professional Partnerships at Work

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Parent Professional Partnerships at Work

• Health Care in Rhode Island
• Universal Newborn Screening
• Hospitals and Specialty Services
• Comprehensive Medicaid Program
• 3 Major Health Plans
• RIte Care/RIte Share

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Parent Professional Partnerships at Work

• Health Care in Rhode Island
• High Rates of Insured Children
• Medical Home Model
• Medical Care for CSHCNs
• CEDARR Family Centers

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Parent Professional Partnerships at Work

• The RI you may not know
• 6th highest prevalence of CSHCN
• Early Intervention and Special Education
• Facing a budget deficit of 500 Million
• Immigration
• Languages

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Parent Professional Partnerships at Work

• Needs Assessment
• Physician and Family Concerns
• Disconnect between health care and community
  social services
• Difficult to navigate community-based service and
  support systems

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Parent Professional Partnerships at Work

• State Partners Pilot Program to Bridge the Gap
• Development of a model to bridge the physician
  practices community programs resources
• Provides parent consultant services to primary
  and specialty care physicians dedicated to
  serving CSHCNs and their families
• PPEP model was established Pilot implemented

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Parent Professional Partnerships at Work
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Parent Professional Partnerships at Work

• Department of HEALTH
• Title V Special Needs Office
• Quality Assurance Initiatives
• Valuing Parents as Partners
• Natural Development of Model

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Parent Professional Partnerships at Work

• What is the PPEP?
• Medical Home project that provides enhancement
  services in a high quality and cost effective
  manner
• Family centered approach to health care
• Collaborative care that depends on all partners
  for success
• THE PARTNERS

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Parent Professional Partnerships at Work

• The Rhode Island Partners
• Department of Health- OSHCN
• Department of Human Services
• Rhode Island Parent Information Network
• Neighborhood Health Plan of RI
• Family Voices of RI
• Hasbro Childrens Hospital
• American Academy of Pediatrics
• All Participating Sites

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Parent Professional Partnerships at Work

• Department of HEALTH
• Administer the PPEP
• Financial Management
• Physician / Practice Correspondence
• Data and Evaluation

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Parent Professional Partnerships at Work
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Parent Professional Partnerships at Work

• Rhode Island Parent Information Network (RIPIN)
• Founded in 1991
• Statewide, 501(c)(3), charitable, nonprofit
  organization with a collective programmatic reach
  that extends to every Rhode Island community, the
  states major family-serving systems, schools,
  associations, and agencies
• Serves more than 20,000 families each year

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Parent Professional Partnerships at Work

• Rhode Island Parent Information Network (RIPIN)
  Mission
• RIPIN informs/educates, supports, and empowers
  ALL families to be equal partners in advocacy for
  the education, health, and socio-economic well
  being of their children and families.And
  Achieves family centered systems changes, which
  are culturally competent, and community based by
  partnering with, collaborating with, and
  educating key stakeholders.

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Parent Professional Partnerships at Work

• Rhode Island Parent Information Network (RIPIN)
  
• Offers 11 programs and services to all families
  and professionals in RI
• Federally designated PTIC, PIRC, and the Family
  to Family Health Information and Education Center
• Home to Family Voices of RI
• Provides Parent Consultant Services