TBI, SelfAdvocacy

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TBI,Self-Advocacy NavigatingHealth Care
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What is PA?
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Washington
Washington Protection Advocacy System315 Fifth
Avenue South Suite 850Seattle WA 981041
800-562-2702 VOICE 1-800-905-0209
TTYwww.wpas-rights.org
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Idaho
Co-Ad, Inc.4477 Emerald, Suite B-100Boise, ID
83706(208)336-5353 (Voice/TDD)[phone]
(FAX)1-866-262-3462 (TOLL FREE)coadinc_at_cableone.
net
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Wyoming
320 West 25th Street, 2nd Floor   Cheyenne,
Wyoming 82001Phone [phone]
toll freewww.wypanda.vcn.com
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Advocacy is Problem Solving to

• To protect rights or change unfair
  discriminatory or abusive treatment to fair,
  equal and humane treatment.
• To improve services, gain eligibility for
  services or change the amount or quality of
  services to better meet the needs of an
  individual
• To remove barriers which prevent access to full
  participation in community life

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Advocacy Styles
Unique approaches to problem solving Styles
change, develop, acquire flexibility
Whats your style?
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Types of Advocacy
Self-Advocacy Mediation Complaint Grievance
Process Regulatory Agencies
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Recognize your biases and how they may be
influencing you Ask others you trust for their
opinions Carefully consider criticism that you
are biased Be respectful and inclusive Stay
focused
Biases
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BuildingYourAdvocacyPlan
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1. Assessing the Problem
Break down the problem Set goals Recognize your
Biases Be objective Troubleshoot early Determine
allies Balance information againstadvocacy
style and talents
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2. Forming an advocacy team/allies
Find the common cause Troubleshoot
conflictinginterests within the group Establish
structure Establish decision-making process Match
group talents with your plan Make sure everyone
is at the table
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Supporters Who are they What can you do to
get more? Barriers How do you overcome them?
Opponents Who are they? Can they be
persuaded?
Decision-makers Who are they? Resources What
do you have? What do you not have? How can
you get it?
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3.Gather Information Form Solutions
Research! Examine what has been done
before Research the opposition Create a paper
trail
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Information you need Opponents position What has
been done before Plan for gathering information
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4. Choosing your strategies
Policy reform Organized community
response (flooding with complaints) Dispute
resolution Media Legal Other . . .
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5. Writing your Plan
Start with your solution Break down the steps to
reach your solution Organize Prioritize your
activities Continually evaluate progress as a
group Be on the lookout for new allies Prepare
for when the going gets tough
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Step-by-step plan
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6. Evaluate Followup
Make sure you have an agreement Look at what
remains to be done Evaluate your overall plan
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Did you reach your goal? What worked What
didnt What could you do better?
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Healthcare Advocacy
Same Steps Different Methods Helpful Tips
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Your Paper Trail

• Appointment info
• Doctor/Clinic List
• Questions to ask your doctor (s)
• Your copy of records
• Note changes in your health
• Keep track of medications
• PROBLEMS

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BeforeYour Healthcare Visit
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Identify the Problem
Why is it a problem When was it noticed What is
responsible What would resolve the problem
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Have your goal in mind

• Keep your eye on the goal dont let details bog
  you down
• Dont settle for one outcome may be other ways
  to meet your goal
• Choose the right person for the right job may
  not happen with first try

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Write it Down
Keep track of appointment time Write down goal
Write down questions ahead of time Keep test
results or other documents for which you have
questions together
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During Your Healthcare Visit
Be Clear State your goal and questions Take
lots of notes If you dont understand, ask
Keep track of diagnoses and medicines prescribed
(include herbal)
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After, or In-between your appointments
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Follow Up
Make notes of people you talk to When is a good
time to call back? Track dates when results will
be in when to make appts. etc.
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Managing YourMedical Records
SOAP - style Accuracy Significance
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Your Medical Records
Privacy Obtaining Copies of Making changes or
corrections to
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Health Care MedicaidMedicareCharity Care
Statewide Health Insurance Benefits Advisors
(SHIBA)1-800-562-6900
Resources
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Brain Injury Advocacy
Head Injury Hotline212 Pioneer Bldg Seattle, WA
98104-2221 206-621-8558www headinjury com
TBI ARMS - Traumatic Brain Injury Advocacy,
Resource, Mentoring Services 360-387-6428
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Health Care Fraud
Leads to abuse neglect Important to report
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Questions