Jewish Genetic Disease Consortium

1
Jewish Genetic Disease Consortium
2
Vision Statement

• The Jewish Genetic Disease Consortium (JGDC) was
  created as a means by which a number of smaller,
  individual organizations could join together to
  heighten awareness of Jewish genetic diseases,
  with a strong and unified voice.

3
Goal and Objective

• Educate and raise awareness by combining
  resources and experience to best reach target
  audience
• Ashkenazi Jewish population
• Medical professionals
• Rabbis Cantors

4
Consortium Development

• April 2003- Meeting with Dr. Adele Schneider,
  Director of the Victor Center for Jewish Genetic
  Diseases, Phila. PA
• November 2004 - FD Hope Conference on Jewish
  Genetic Diseases
• January 7, 2005 - Booth at Health Fair - Grand
  Central Station - NYC
• January 31, 2005 meeting of 7 organizations
• March 14, 2005 Jewish Genetic Disease
  Consortium (JGDC) formed 1,500 membership fee
  per organization
• 14 member organizations at present

5
Communication Tools

• Development of joint ad that ran in The Forward,
  The Jewish News, The New York Observer (free),
  About Our Children
• Development of JGDC brochure
• Development of letterhead, envelopes, business
  cards, etc.
• Development of website launched May 2006
• Development of 10X10 foot booth for display at
  conferences conventions
• Development of press release
• Development of 60 second Public Service
  Announcement (PSA)

6
JGDC Outreach

• Development of seminar for rabbis
• Development and launch of Grand Rounds Seminar
  for OB/GYNs
• Communication with ACOG
• Proposal for screening students at Rutgers
  University
• Hebrew Union College-Jewish Institute of Religion
  - development of JGD education module for 4th
  5th year rabbinic students and alumni
• Partnered with Gift of Life (blood donor
  transplant organization) to distribute
  educational materials
• JGDC brochures to be distributed at International
  Conference on Jewish Genealogy in August 2006
• Exhibit at Kosher Bridal Shower

7
Representation at Conventions

• Booth at Union of Reform Judaism Biennial
  Convention in Houston Nov. 2005
• Booth at Philadelphia screening program at Hillel
  at U Penn
• April 2006
• Booth at Central Conference of American Rabbis in
  San Diego June 2006
• Booth at United Jewish Communities General
  Assembly Convention in LA Nov. 2006

8
Looking to the Future

• National Role-out of Grand Rounds Seminar Program
• Expand Outreach to Medical Providers and Genetic
  Counseling Centers
• Expand Carrier Screening Programs in Communities
  and at Universities
• Continue Outreach to Rabbinical Programs
• Continue Education of the
• Ashkenazi Jewish Population