Teaching you the skills you need to take an active part in staying healthy

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• Teaching you the skills you need to take an
  active part in staying healthy!

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Funders

• WV Developmental Disabilities Council
• Sisters of St. Joseph Charitable Fund
• Ross Family Foundation
• Godfrey Oakley Foundation
• Parkersburg Area Community Foundation
• United Way Alliance of the Mid Ohio Valley

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Fast Facts

• West Virginia has the highest per capita rate of
  disabilities in the United States.
• 26.8 of the states population, or more than 1
  out of every 4 WVians have a disability.
• Thats enough people to fill
  Mountaineer
  field 9 times!
• Thats over 7 times the
  population of Charleston.

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The Arc of the Mid Ohio Valley

• Serve approximately 3000 families per year
• 10-County Region (primary) WV (other)
• Funders Include
• United Way Alliance of the Mid Ohio Valley
• Corporate Individual Contributions
• Grant Writing
• Noahs Arc Thrift Shops
• Family Support Program
• Program Revenue
• 28 programs and services
• Serve ages birth to the
  end of life

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What is Health Wellness?

• Disability is not an illness. The concept of
  health means the same for persons with or without
  disabilities achieving and sustaining an optimal
  level of wellness both physical and mentalthat
  promotes a fullness of life (Krahn 2003).

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What is Health Wellness?

• For persons with disabilities, as for those
  without disabilities, to be healthy, it means
  having the tools and knowledge to help promote
  wellness and knowing the risk factors that can
  promote illness and the protective factors that
  can prevent it.
• For persons with all kinds of disabilities it
  also means knowing that conditions secondary to a
  disability can be treated successfully.

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What is Health Wellness?

• Health also means that persons with disabilities
  can access appropriate, integrated, culturally
  sensitive and respectful health care that meets
  the needs of a whole person, not just a
  disability.

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A healthy lifestyle means more that not having a
disability..It means

• Eating well
• Going to the doctor for regular check-ups
• Handling stress well
• Getting plenty of exercise
• Relaxing and Resting
• Making healthy choices

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Benefits of Healthy Lifestyles

• Prevents complications of a disability
• Makes daily activities easier with increased
  strength and energy
• Helps individuals feel happier and improves
  quality of life

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Program Focus Areas

• Fitness Recreation
• Primary Preventative Care
• Health Nutrition
• Emergency Preparedness

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History of Program - 2005

• Initial funding was secured
• Wood County/Mid Ohio Valley were pilot
• Part-time coordinator hired
• Advisory Board established
• 49 individuals enrolled in program
• 36 active participants in multiple Fitness and
  Recreation activities
• 13 mailings to 200 people complete
• 609 people touched by program
• 41 presentations made

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Program Successes Year One

• Program Signup
• Excitement spread and participation increased
  steadily over the year
• Change in attitude in the group homes staff
• Multiple interactions with home administrators
  and management
• Increased participation by residents of those
  group homes has increased in programs of The Arc
  across the board

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Program Successes Year One

• Walking Club
• consistent participation increased from 3 to 16
• HW participant was the team captain for The Arc
  Heart Walk team, attended the captain's luncheon
  and was listed on the AHA website as such!
• Participated inclusively in the Parkersburg
  Homecoming's 2 mile walk as part of the highly
  publicized Half-Marathon
• Participants comparing their pedometer readings
  throughout the day while they worked, ate dinner,
  etc.

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Program Successes Year One

• Women Be Healthy - WOW!
• First session had 22 participants who came all 5
  weeks
• Participants ranged from individuals living on
  their own to those with 24-hour assistance
• Change in attitudes amongst group homes staff
• One comment was "I have never seen these women be
  treated like the adults they are".
• Pre Post surveys showed a definite improvement
  in the participants knowledge of the material
  covered, from both consumers and staff.

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Program Successes Year One

• Lunch Learns
• If you feed them they will come"!
• Opportunity to teach a handful of consumers, who
  would not have been exposed otherwise, to some
  basic wellness issues including dental care, cold
  flu germ control, nutrition, setting goals,
  tobacco issues, stretching, etc.
• One participant asked if they could take the
  leftover educational materials because she wanted
  to take them home with her to teach her
  housemates what she had learned.

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Program Successes Year One

• Aerobics Class
• Participant's enjoyment and involvement in a
  class that incorporated basic aerobic, step,
  stretching, yogo, etc.
• Enlightenment of collaborating community
  organizations (YWCA) to inclusive, not
  segregated, activities

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Program Successes Year One

• Living Well With A Disability
• 4 facilitators were certified for the 8-week
  program
• Modifications were made to ensure individuals
  with cognitive and intellectual disabilities were
  able to comprehend content
• 5 participants in each session
• Great feedback particularly in the Goal
  Setting and Dealing with Stress components!

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History of Program - 2006

• Two expansion sites identified
• Memos of Understanding
  drafted and signed
• Part-time coordinators hired
• Advisory Board established
• 116 individuals enrolled in
  program
• 520 unduplicated people
  touched by program

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Program Successes Year Two

• Increased calls to agencies implementing
  requesting registration forms and calendars
• Steady increase in participation
• Enthusiasm, inquisitiveness, and overall interest
  of the participants
• Participants are actively holding their staff,
  personal assistants, and family members
  accountable for smoking, eating junk food, and
  making doctors appointments

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Program Successes Year Two

• Participant testimonials
• One was heard saying This program changed my
  life.
• Another has made it known that by using the
  altered breathing techniques she was taught
  during a Women Be Healthy session, she can now
  stay calm and focus when she was not able to
  before.

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Program Successes Year Two

• Personal assistants, staff, and family members
  gave positive feedback
• Were thrilled for their loved ones to have
  personal growth opportunities presented at an
  age-appropriate level, on meaningful topics.

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Program Successes Year Two

• Walking Club
• Opportunities for individuals with developmental
  disabilities to be viewed in positive, socially
  valued roles in the community increased
• Participants actively organized and participated
  in (including raising funds for the causes) both
  the American Heart Walk and the Relay For Life.
• Participants attended a Women Go Red event that
  was attended by many community leaders.

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History of Program - 2007

• Three more expansion sites identified
• Memos of Understanding drafted and signed
• Part-time coordinators hired
• Advisory Board established
• 300 individuals enrolled in program
• 791 unduplicated people touched by program
• Men Be Healthy curriculum developed
• Relaxation CD completed
• Rate Your Plate components included
• 199 presentations made

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Program Successes Year Three

• New strong collaborations developed
• Wheeling Jesuit University new perspective
• Service-Learning departments of our states
  higher educational facilities have emerged as
  partners.
• Partnerships are mutually beneficial
• students and faculty are gaining first-hand
  training and experience interacting people with
  developmental disabilities, and those with
  developmental disabilities are being provided
  with valuable services and education from the
  students and faculty

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Program Successes Year Three

• New strong collaborations developed
• WVU Extensions Nutrition Outreach Program
• instructors are providing comprehensive nutrition
  trainings designed for those on low-income
  budgets and modifications to their eight-week
  programming.
• Men Be Healthy curriculum complete
• presented in three areas of the state resulting
  in increased knowledge from participants

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History of Program - 2008

• Educational materials on emergency preparedness
  and disaster response for people with
  developmental disabilities and family members
  developed trainings conducted
• To date, almost 400 individuals are enrolled in
  program
• Program CD complete with most program material
  included
• Physician training presentation complete and
  presented
• 41 organizations collaborating on the project

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Program Successes Year Four

• New strong collaborations developed
• WVU of Parkersburg
• Fitness and yoga courses (credit) were open to
  individuals participating in the HW program to
  encourage inclusion (at no cost)
• Legislative Advocacy
• Training for self-advocates on how
  to speak about issues
  pertaining to health-related topics
• Successful visits to state Capitol

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Program Promotion

• Newsletters/Website
• Calendars/Reminder Flyers
• WV People First Conference
• Cross-Promotion at Events
• Meetings with Disability Service Provider
  Agencies
• Direct Mailings to Teachers
• Outreach to DHHR/DRS/Sheltered Wshp

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Requirements for Enrollment

• Participants agree to stay for 1 year
• Participants agree to take part in at least one
  activity in each of the three focus areas
• Participants agree to
  complete the pre- and
  post- health status
  surveys and release the information
  to us

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Program Registration

• Registration Packet
• Participant Agreement
• Activity Interest Sheet
• Program Registration
• Informed Consent
• Health Status Survey

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Welcome Packet

• Health Wellth Bag
• Health Care Tool Kit
• Toothbrush/Paste/Floss
• Water Bottle
• Pedometer
• Fact Sheets
• Component Folders

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Collaborating Sites

• Memo of Understanding
• Inclusion of individuals outside of client base
• Must host a disability awareness, etiquette, and
  inclusion training
  for community and
  collaborators
• Budget
• Reports

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Fitness Recreation Components

• Walking Clubs
• Held 2x week from May
  to October
• Participants track steps
  with pedometers and through West Virginia
  on the Move.
• Held at most inclusive location available
  (example city park, university walking track)

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Fitness Recreation Components

• Relay for Life Heart Walk
• Program participants signed up and formed teams
  with themselves as team leaders raised money for
  their team through fundraising received
  literature on cancer and heart disease
  prevention and then walked for their causes.

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Fitness and Recreation Components

• Collaboration with local fitness clubs and
  universities
• Currently consumers participate in inclusive
  Aerobics, Kickboxing, Strength
  Training, Yoga and Relaxation

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Fitness and Recreation Components

• Exercise Video Relaxation CD
• taped using both staff program participants.
• Currently being prepared for distribution for
  those who want to exercise at home or who are not
  able to come and enjoy
  classes on schedule days.

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A Participants View
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Primary Preventative Components

• Tobacco Cessation/Prevention
• Over 400 individuals with a disability have
  received documents detailing the importance of
  being or becoming tobacco-free.
• Health Departments have
  collaborated on lunch
  learns and
  health fairs.

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Primary Preventative Components

• Living Well With a Disability
• Eight week program with curriculum that is based
  on the assumption that goal setting and problem
  solving provide a framework for a healthy
  lifestyle.
• Sessions include Beating the
  Blues, Communications,
  Seeking info, Physical Activity,
  Eating Well Being Safe,
  Self-Esteem, and
  Disability Pride.

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Primary Preventative Components

• Women Be Healthy
• Series designed to educate adult women with
  cognitive or intellectual disabilities understand
  what it is to be a healthy woman
• Gender-specific material is present-
  ed on an appropriate cognitive level
  with emphasis on doctors
  visits, relaxation to over come
  anxiety, self exams,
  the body, pelvic/groin
  area, cancer with treatments and
  prevention, role playing, and at
  the end of the visiting a doctors
  office and tour the facility

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A Participants View
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A Participants View
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I would like to say that the adult women
involved with this program enjoyed sharing and
acknowledging their interest and concerns about
their health. They felt more at ease
knowing what a preventive check-up meant to them
and to their health care providers and knowing
what to expect during there check-ups and the
reasons for them It was and is a joy to know
that we can provide preventative health care for
all ages and stage regardless of disability to
all women I appreciate being involved in
this wonderful program.-Kate Hasse RN CFNP
A Practitoners View
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Primary Preventative Components

• Men Be Healthy
• Series designed to educate adult men with
  cognitive or intellectual disabilities understand
  what it is to be a healthy man
• Gender-specific material is presented on an
  appropriate cognitive level with emphasis on
  doctors visits, relaxation to over come anxiety,
  self exams, the body, pelvic/groin area, cancer
  with treatments and prevention, role playing, and
  at the end of the visiting a doctors office and
  tour the facility

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Primary Preventative Components

• Health Fairs
• Collaborations with local health care education
  professionals
• Basic baseline and follow up
  blood pressure testing
• Body composition assessments
• Total cholesterol/glucose tests
• Other screenings including
  hearing, skin cancer, flexibility,
  eye sight, etc.
• 250 consumers attend these
  events every year.

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Primary Preventative Components

• Healthcare Toolkit
• For individuals with disabilities and the people
  who support them
• Designed to improve direct communication between
  the healthcare provider and the person with the
  disability.
• Kit includes a set of forms for tracking
  healthcare concerns, patient visits, and
  interventions.
• Healthcare Resource Guide
• Updated annually to track
  available services and
  programs in local
  community that are
  free or reduced cost.

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Primary Preventative Components

• Training of Healthcare Personnel
• Health Wellth has opened
  doors for educating various
  individuals in the medical
  field
• People First Language
• Disability Etiquette
• Breaking Down Communication
  Barriers
• Disability-Specific Trainings

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Health Care Issues

• Persons with disabilities have
  health care needs like
  everyone else.
• Disability is neither inability nor sickness.
• Most persons with disabilities are just as
  healthy as
  people who dont have disabilities
  however, for a
  variety of reasons, persons with
  disabilities can be at greater risk for illness.
• Most people with disabilities can, and do, work,
  play, learn, and enjoy full healthy lives in
  their communities.

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Health Care Issues

• Persons with disability need health
  care professionals who really
  listen
  to, communicate with, and respect them.
• People with disabilities need health care
  professionals who treat all of their health
  needs, not just their disability.
• With accommodations and supports, ample access to
  health care, engagement in wellness activities,
  and the impetus that comes from supportive
  friends and families, persons
  with disabilities can, and do, lead long,
  productive, and healthy lives.

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Healthcare Professionals are Responsible for
Treating the Whole Person, Not Just the
Disability
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Challenges

• Challenges include,
• Insufficient knowledge and awareness of
  by the public,
  health care, and wellness service providers,
  educators,
  administrators, the media and others.
• Health care professionals and community attitudes
  and behaviors that lead people to see and respond
  only to the disability, not to the whole person.
• Insufficient health care and wellness promotion
  services and information that is adapted for
  persons with disabilities.
• Service systems that do not always make use of
  innovative and creative approaches to enhance the
  health and wellness of persons with disabilities.

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Health Care Issues
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Health Nutrition Components

• Cooking Club
• Incorporates structured nutritional information
  into every session.
• On average 40 consumers attend these
  activities every month
• Participants have also volunteered to be the
  Guest Chef and teach their peers
  how to cook healthy independently.

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Health Nutrition Components

• Grocery Store tour at local grocers
• Consumers learn how to make healthy selections
  and where to go for these
  foods in a store.

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A Participants View
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Health Nutrition Components

• Monthly Lunch Learn educational series
• Participants attend mini sessions that cover
  varying topics that have included
• Fire prevention, How to Stop Germs, Volunteering
  in the Community, Diabetes Education,
  Chiropractic Health, Diets, How to Plant an Herb
  Garden out your window to use in your meals at
  home, and so many more..

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Health Nutrition Components
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Health Nutrition Components
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A Participants View
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Health Nutrition Components

• How to Understand and Use the Nutrition Facts
  Label training
• This hour long class teaches consumers how to
  read a serving size label, calories, calories
  from fat, nutrients, understanding the footnotes
  on the bottom of the nutrition facts, daily
  values, nutrients with percents, and nutrients
  with out percents.

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A Direct Support Staffs View
The Arc sponsors many great programs for people
with disabilities but I think we all agree that
the Health and Wellness program is one of the
most important that we attend. It focuses on
learning to live a healthier lifestyles that is
important for everyone These programs lead to a
longer, healthier life,
allows interaction with
new people, and adds fun into their
busy schedules. The staff
here also enjoys these
programs as much as
the residents. Thanks Guys! Jennifer Watson,
Counselor Horizons
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A Parents View

• I wanted you to know how much my son,
  Jeffery Vaughn, enjoyed the Health and Wellth
  Programs he attends. He rarely misses anything
  that is scheduled andNot only is it important
  that he is On the Move, but he enjoys the
  social interaction as well.
• He also participated in the Healthy Screening
  by Mountain State Blue Cross/Blue Shield. Jeffery
  has benefited from all the
  Health and Wellness Programs
  especially the socialization which
  I think is so important. Jeffery is
  autistic and social
  interaction is really difficult
  for him.
• -Linda Vaughn, Parent

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Emergency Preparedness Components

• Education of Individuals with Disabilities and
  those who serve them
• Education of First Responders, Emergency
  Planners, Volunteer Response Agencies
• Involvement of Individuals with Disabilities and
  Direct Care
  Providers in Planning
• Local and State Level

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Lessons Learned Keys to Success

• Hire passionate staff to coordinate
• Must have support from the top of site
  coordinating agencies
• Reminders.Reminders.Reminders
• If at first you dont succeed, rethink and try
  again.
• Repeat.Repeat.Repeat
• Must sell program to direct care providers to
  ensure involvement of PWDD

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Health Wellth Products Available

• Heath Wellth Registration packets
• Women Be Healthy Curriculum NC Office on
  Disability
• Living Well with a Disability Curriculum - Rural
  Health Institute, Montana
• Disability Etiquette People First Language
  trainings
• Guest Chef/ Cooking Club Guidelines Nutrition
  topics
• Healthcare Toolkit Wisconsin Council on
  Developmental Disabilities
• Lunch Learn Topics and Educational Materials
• Pedometers- WV on The Move
• Participant Health Wellth Bags
• How to read Labels/Nutritional Guidelines
• Men Be Healthy Curriculum
• Exercise Video
• Health Wealth flyer templates
• Relaxation CD
• Program Materials CD
• Emergency Preparedness for PWDD Video (in
  process)
• First Responder Training on Special Population
  Issues Video (in process)

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Collaborating Groups/Agencies/Organizations

• WV Developmental Disabilities Council
• America On the Move/WV On the Move
• YWCA
• City(s) of Parkersburg, Fairmont, Charleston
• SW Resources
• WV Office of Maternal, Family, Child Health
• Wisconsin Developmental Disabilities Council
• Dr. Brian Powderly staff
• Camden Clark Memorial Hospital
• Montana Rural Health Institute
• ResCare, REM, Horizons, Self-Advocates
• American Heart Association
• University of NC Office on Disabilities
• American Cancer Society
• The Arc of Three Rivers
• Cross Lanes Methodist Church
• South Charleston Rec Center

• WVU Extension
• Wood County Recreation
• Marion County Vintage Program
• Diabetes Centers
• Right From The Start
• Ohio Valley University
• Local Dentists
• Parkersburg Cardiology Associates
• St. Josephs Hospital
• HealthSouth
• Local Yoga Instructors
• Sweetsong Recording
• WVU Center for Excellence in Disabilities
• Dr. Heather McCarter
• The Arc of Marion County
• YWCA of Harrison County
• WVU-P

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• Teaching you the skills you need to take an
  active part in staying healthy!